Does anyone else havce UC and if so what do you eat!

skinnyme125
skinnyme125 Posts: 396 Member
edited September 24 in Food and Nutrition
I have UC and was wondering if any one else out there has it or crones as it is very similar. IF so what kind of things do you eat and what kind of medication are you on to maintain the issue. I can not consume dairy unless it is highly processed or i get very sick. I also take lactose intolerance pills to help when i just really want something with dairy in it. I also have a real hard time eating salad since it is raw vegetables and I can not eat raw vegetables, they tear me up inside and make me go,go, go. The same is true of fruit. I have a very hard time trying to find foods I can eat that wont make matters worse. I am also not sure if my meds are the best choice for my condition. So I would love to hear what you eat what meds you take and how they are working for you. Also if you share this autoimmune disease with me please add me as a friend. I could use the support as I am sure all of us can.
I am so excited to hear what everyone has to say.

Replies

  • TropicalKitty
    TropicalKitty Posts: 2,298 Member
    I don't have UC, but I have a good friend who does. I know she avoids strawberries (the lil seeds on the outside are a problem). I think she is careful with nuts too. As for the leaf issue, you might be able to cook them a bit on the stove - like spinach with some garlic is really yummy. She didn't have the milk issue - I've seen her eat lobster bisque.

    And of course as I type this, the drug she was on evades me. It was a larger brown pill. Ugh! I know when she stopped taking it, she ended up having a very bad flare up, refused to take it, and ended up very very ill in the hospital for several days. Be careful with your drugs!

    The last thing I want to say is more for support. Don't think about what you can't eat. Think about the wonderful things you can enjoy. :)
  • skinnyme125
    skinnyme125 Posts: 396 Member
    The problem seems to be that there are very few things that I can eat that wont hurt me. I am very religious about taking my meds. I have had way to many flareups even while being on my meds and the prednizone is the worst to try to fix it but seems to be the only answer they have for me right now. They say I could just have my colon removed but that would just cause a lot more complications, so i feel like that would be stupid to even consider until i don't have a choice anymore. I do love steamed veggies and eat those often. But since I do Go,go,go i have to be careful not to get too much of the fiber that loosens you up and more of the fiber that bulks it up. I know this sounds so disgusting to talk about but it is my life and I have dealt with it for 10 years and still feel lost at times.
  • inshapebymay
    inshapebymay Posts: 4
    Hey there!I am a 33 year old mother of 4 and I was just diagnosed with Crohn's Disease about a year and a half ago.It has took me a while to change my habits, but i think I am finally making some progress.I have been on so many meds, I am not sure where to start.Right now I am on Asacol, and Humira.The Humira is not working, and I am getting ready to go back to the doctor to change meds again.I just got a book and am reading it.It is called "The Makers Diet".It is a bible based diet.The guy who wrote it "cured" himself from Crohn's Disease!!!!!It is a VERY strict diet, and expensive, but if you are desperate, I really recommend that you read this book!!!!!

    When I have flare ups, they put me back on Prednisone, which in turn makes me gain weight.I havent had to go on the pred. is quite a while.I have been staying away from processed food, enriched flour, and high fructose corn syrup.I eat a TON of fruits and veggies.Since you cant eat fruits and veggies or dairy you are very limited.I think that maybe you should buy some drinks like boost or ensure to make sure you get all of your nutrition.Also, when I have flares, I eat baby food.I know that sounds pathetic, but it works!!The easier it is to digest, the better you feel!I'll add you and we can talk more.You can never have enough support when you are cursed with this horrible disease!
  • dwarfer22
    dwarfer22 Posts: 358 Member
    no clue about what to eat but I just had to comment on the hair. It is gorgeous in your profile pic. Very nice!
  • TropicalKitty
    TropicalKitty Posts: 2,298 Member
    It's all good. It's reality, so don't feel bad about discussing it. I've heard plenty about it from her! I remember when we were in college, I could hear the gurgling/farty type noises from her belly in class. She's on the west coast right now, so I can't ask her questions, which is what I was going to do. So when she wakes up, I'll hit her up and see what stuff she eats now. I think that bout in the hospital 10 yrs ago knocked some sense into her about taking her meds.

    I knew a guy at work that had UC and ended up having his colon removed. I don't know his details, but I wouldn't want to make that choice if I could avoid it. He's told me of "blow outs" with his ostomy bag in public...not at all something anyone should have to deal with.

    Anyway, I'll get back to you when I hear from her. :)

    Edit: one of the PP's triggered my memory...my friend is on Asacol! I knew I'd remember if I heard it!
  • skinnyme125
    skinnyme125 Posts: 396 Member
    no clue about what to eat but I just had to comment on the hair. It is gorgeous in your profile pic. Very nice!

    Thank you very much. I did this myself (which amazed me since i am a tom boy) Heehee. But it was for a Greek style 50th wedding anniversary party I was helping serve at for my Grandparents in laws. If you look closely I am also wearing a toga.:laugh:
  • skinnyme125
    skinnyme125 Posts: 396 Member
    Hey there!I am a 33 year old mother of 4 and I was just diagnosed with Crohn's Disease about a year and a half ago.It has took me a while to change my habits, but i think I am finally making some progress.I have been on so many meds, I am not sure where to start.Right now I am on Asacol, and Humira.The Humira is not working, and I am getting ready to go back to the doctor to change meds again.I just got a book and am reading it.It is called "The Makers Diet".It is a bible based diet.The guy who wrote it "cured" himself from Crohn's Disease!!!!!It is a VERY strict diet, and expensive, but if you are desperate, I really recommend that you read this book!!!!!

    When I have flare ups, they put me back on Prednisone, which in turn makes me gain weight.I havent had to go on the pred. is quite a while.I have been staying away from processed food, enriched flour, and high fructose corn syrup.I eat a TON of fruits and veggies.Since you cant eat fruits and veggies or dairy you are very limited.I think that maybe you should buy some drinks like boost or ensure to make sure you get all of your nutrition.Also, when I have flares, I eat baby food.I know that sounds pathetic, but it works!!The easier it is to digest, the better you feel!I'll add you and we can talk more.You can never have enough support when you are cursed with this horrible disease!

    I read an article about that man who did that diet and it sounded great. I am a college student and so is my husband. He is going to med school and I plan to be a teacher so money is not something we have right now. :) I have tried a book called tastes great no pain. It has helped me tons and it is for people with digestive problems of just about any kind. I loaned it to my cousin about a year ago and am still waiting on her to give it back with lots of encouragement from me. :) I need it to refer back to once in a while to make sure i am doing things correctly.
    I am on asacol 400 mg 3x a day and on sulfasalazine 500mg 4x a day and iron 65mg 3x s day and probiotic acidophilus 1x a day. It sees as if i take meds all day long. I have not been to a specialist yet but plan to once i move to a larger city in a few months.
  • skinnyme125
    skinnyme125 Posts: 396 Member
    I seriously thought about the baby food idea a few times. Maybe I will actually have to try it now.
  • TropicalKitty
    TropicalKitty Posts: 2,298 Member
    As promised, here's my online convo with my friend...sorry if it is annoying to read through. :)

    friend says:
    but she should avoid fried foods, roughage like raw veggies and fruits
    friend says:
    is she in flareup right now?
    like has she just been diagnosed?
    so basically for me, 
    after I got out of the hospital, I had to cut out a lot of things.. but then after a while I slowly incorporated things back in to see what i could tolerate
    here are the things I had to avoid:
    all raw veggies and fruits, carbonation, caffeine, alcohol, whole wheat (or any kind of grain with high fiber), fried foods
    oh
    tell her to eat yogurts with live active cultures
    liek activia
    JeSSy says:
    what stuff do you eat
    friend says:
    well, now since it's been a while since I had a flareup I have whole wheat toast.. but only 2 slices a day
    I eat yogurts
    yoplait and dannon are good for you
    as they have the cultures
    I have cooked veggies
    JeSSy says:
    what about veggies and fruits
    friend says:
    she can have canned fruits
    I can have fruits
    and veggies in salad and stuff
    but like I said it's been a while since i had a flareup
    I avoid broccoli raw
    and celery
    and strawberries for some reason make me bleed, probably cos of the seeds
    I eat lean meats
    fish, chicken
    I can tell when I'm feeling anemic, and I"ll eat lots of cooked spinache and some red meat
    and if she does drink, avoid hard alochols.. red wine is ok in moderation
    I think htere's a website as well for people with UC
    like livingwithuc.com
    or something

    I hope that helps you some. :) I understand, to some extent, the difficulties. I figured out last summer that I have a wheat sensitivity and I'll end up in the bathroom and feeling like ick for a few days when I have it. Not exactly the same, but I know how annoying tummy issues can be. And how much it can vary from person to person.
  • Grandee47
    Grandee47 Posts: 261 Member
    I have gastroparesis - a complication from scleroderma altho I understand it's common for diabetics - and have to stick to a mild soft foods and liquid diet. I thought at first it would be annoying, but it isn't really because I feel so much better when I eat this way. What I miss the most is raw veggies. I ate raw veggies and didn't know I was setting myself up for a huge blockage. You see, people with gastroparesis, also called stomach paralysis, can't digest fiber, so I went from a very healthy 25 grams of fiber a day to less than 1/3 that. I can eat veggies but they have to be cooked and mushed and absolutely no broccoli, cauliflower or other gassy veggies. I never in a million years thought that I, the sugarholic, would salivate for broccoli!!!!! I can have raw watery fruits like watermelon, but absolutely no peals from anything. Meat has to be pureed. I don't know much about UC, but I bet if you stuck to the "mush" diet for a week, you'd feel like a million bucks. I make my own soups and eat a lot of brothy, not cream-based soups. Years ago I cut way way back on my wheat intake. I do not have celiac, but I strongly believe I have a wheat intolerance. Giving it up almost cured my IBS and I always lose weight quicker when I remove the wheat. Best of luck to you figuring this out. Once you find out what causes you discomfort, it gets easier after that to eat. I have a club with my friends who, like me, have what we call "stupid diseases"....the club is - It is what it is and I'm making the best of it! :ohwell:
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