losing weight with a shocking diagnoses

EyeWant2bethin · May 2015

jgnatca wrote: »

I did a quick browse and it looks like any sensible diet with reduced calories will make a difference. Weight loss and exercise are the most effective treatments for fatty liver disease. Insist on help from a dietitian and start logging your food (this will help when you sit down with a dietitian too) and then use the information to make improvements in your meals. You may be able to do this with small changes, like roasted chicken instead of breaded and fried, choose salad more often, replace sugared beverages, and track your snacking.

For exercise, walking and swimming will be the easiest on your joints until you are lighter.

Thank you save the dietician I have already done the other changes maybe it's time

EyeWant2bethin · May 2015

ElizabethKalmbach wrote: »

My best friend has a prolactinoma, and we were amused that the side effect on her tumor shrinking meds that was the MOST concerning was in fact, "compulsive gambling."

That amusing anecdote aside, start somewhere. Anywhere. Make a tiny change every week, and you will eventually snowball into a healthy lifestyle. Being pregnant (or having your body think that you are pregnant) doesn't necessarily make you take on fat. It's generally the urge to eat more (progesterone IS a *kitten* that way) and moving less (bed rest is a hellacious prescription for finishing off a difficult pregnancy) that generally causes significant weight gain during pregnancy. And your body will take on extra water/blood volume but that takes care of itself. Therefore, you need to move more and eat less to lose the weight you do not want, however you can. (And there are endless complications here from tiredness and nausea from meds or just the condition itself, and I'm SO, SO sorry you're dealing with all this.) It can be as simple as waking a little more every day. Switching from soda to water. And so on. Don't try to do everything all at once, because that can be overwhelming. Make a change and stick to it until it's a habit. Then make another change. You can absolutely do it.

Thank you I have already cut out fast food soda and fried foods but for what ever reason eating lean meats and exercise just isn't enough sure I lose like 6 pounds but then it just stops and I gain it all back in still eating and doing my exercise the same. It's crazy.

EyeWant2bethin · May 2015

GA_belle wrote: »

I'm sorry that you are going through all this. What kind of doctor are you seeing? I can only speak from my personal experience. I was diagnosed with PCOS about twenty years ago and after several years finally sought out an endocrinologist. One of the first things they did was test for Cushing's disease, which has similar symptoms and can be caused by a pituitary tumor. I did not have Cushing's and they confirmed the PCOS diagnosis. If you are not seeing an endocrinologist, you might consider it. Some people have luck treating their PCOS symptoms with metformin, which is a diabetes medication. Unfortunately, it did not improve any of my symptoms. I've struggled with my weight for years, but I'm finally seeing some loss by tracking my calories. It's slow going, but it is working.

I'm seeing my gynocologist and my endocrinologist. Both are so helpful. I am doing amazing with the treatments my blood work is normal for once. Which gives me hope weight loss should be happening. My main concern is it isn't happening. Yeah I am healthy yeah my tumor is shrinking. But my weight loss isn't happening. Now the tumor treatment I am on does cause weight gain but luckily I am most definitely not gaining. Should I worry or as long as my blood work is normal just keep eating healthy taking my meds and exercising and let it all come out in the wash? I hate being this heavy see all the weight hit me in 3 months before this I was about 250. I have just been trying to get it off and nothings helping. I think it may be time to consult a nutritionist. I have even taken a diet pill which kept the weight off but did nothing to lose it.

EyeWant2bethin · May 2015

GA_belle wrote: »

I'm sorry that you are going through all this. What kind of doctor are you seeing? I can only speak from my personal experience. I was diagnosed with PCOS about twenty years ago and after several years finally sought out an endocrinologist. One of the first things they did was test for Cushing's disease, which has similar symptoms and can be caused by a pituitary tumor. I did not have Cushing's and they confirmed the PCOS diagnosis. If you are not seeing an endocrinologist, you might consider it. Some people have luck treating their PCOS symptoms with metformin, which is a diabetes medication. Unfortunately, it did not improve any of my symptoms. I've struggled with my weight for years, but I'm finally seeing some loss by tracking my calories. It's slow going, but it is working.

I'm seeing my gynocologist and my endocrinologist. Both are so helpful. I am doing amazing with the treatments my blood work is normal for once. Which gives me hope weight loss should be happening. My main concern is it isn't happening. Yeah I am healthy yeah my tumor is shrinking. But my weight loss isn't happening. Now the tumor treatment I am on does cause weight gain but luckily I am most definitely not gaining. Should I worry or as long as my blood work is normal just keep eating healthy taking my meds and exercising and let it all come out in the wash? I hate being this heavy see all the weight hit me in 3 months before this I was about 250. I have just been trying to get it off and nothings helping. I think it may be time to consult a nutritionist. I have even taken a diet pill which kept the weight off but did nothing to lose it. The diet pill was prescribed.

Samstan101 · May 2015

There's some great advise already posted and having started a little over 2 years ago at exactly your starting weight but fortunately for me without the underlying health issue you have I know how difficult that starting of and sticking to it is. However, there's one line in your original post that concerns me and I think you need to address for yourself as it mkes me think you haven't quite got your head where it needs to be to make this a long term, successful lifestyle change. That comment was:

"Half is my fault for foods I eat and the lack of motivation. I also have an unsupportive spouse. Oh he is great at acting supportive but never makes a long term change to help."

Sorry but no, no and no again! Unless he physically holds you down and force feeds you then its your "fault" (if you feel blame needs to be proportioned which I'm not sure it is - you are where you are and you can't change history). This has to be about you - your health and your happiness. Its entirely possible to lose the weight without your OH making any changes at all. Whilst my OH has been emotionally very supportive he hasn't changed what he eats, how he eats or how much exercise he doesn't do! I sometimes cook 2 seperate meals, and sometimes we have the same but I'll have smaller portions. If I go over my cals then the only person responsible for that is me. If he says he wants a pizza and I choose to have one even if it takes me over because basically pizza is delicious, that isn't his fault for wanting the pizza, its mine for not having the will power to show some moderation.

And I'm not trying to be mean but one thing I've realised is that sort of excuse is why I've failed before. I have had to accept responsibility for my choices for this to become a lifestyle change that I hope will be for the rest of my life.

I wish you the best of luck and hope you get your health issues under control so you can make the changes you want to make

Krystle1984 · May 2015

Samstan101 wrote: »

There's some great advise already posted and having started a little over 2 years ago at exactly your starting weight but fortunately for me without the underlying health issue you have I know how difficult that starting of and sticking to it is. However, there's one line in your original post that concerns me and I think you need to address for yourself as it mkes me think you haven't quite got your head where it needs to be to make this a long term, successful lifestyle change. That comment was:

"Half is my fault for foods I eat and the lack of motivation. I also have an unsupportive spouse. Oh he is great at acting supportive but never makes a long term change to help."

Sorry but no, no and no again! Unless he physically holds you down and force feeds you then its your "fault" (if you feel blame needs to be proportioned which I'm not sure it is - you are where you are and you can't change history). This has to be about you - your health and your happiness. Its entirely possible to lose the weight without your OH making any changes at all. Whilst my OH has been emotionally very supportive he hasn't changed what he eats, how he eats or how much exercise he doesn't do! I sometimes cook 2 seperate meals, and sometimes we have the same but I'll have smaller portions. If I go over my cals then the only person responsible for that is me. If he says he wants a pizza and I choose to have one even if it takes me over because basically pizza is delicious, that isn't his fault for wanting the pizza, its mine for not having the will power to show some moderation.

And I'm not trying to be mean but one thing I've realised is that sort of excuse is why I've failed before. I have had to accept responsibility for my choices for this to become a lifestyle change that I hope will be for the rest of my life.

I wish you the best of luck and hope you get your health issues under control so you can make the changes you want to make

That is exactly what I was going to say! I wondered why nobody else had commented on it!

I blamed my family and their poor eating habits for my obesity for years. Then I pulled my finger out, admitted I had no-one to blame but myself and lost 5 and a half stone. You can do it, just don't get caught up trying to change other people in the process - it doesn't work. They will change if and when they want to do it for themselves. The only person that can help you is YOU!

Good luck!

RuNaRoUnDaFiEld · May 2015

Turmeric has great benefit for the liver, I add it veggies when I steam or boil them.

LKArgh · May 2015

EyeWant2bethin wrote: »

aggelikik wrote: »

EyeWant2bethin wrote: »

I'm 27 i weigh 303 pounds I have tried to lose weight in past. Half is my fault for foods I eat and the lack of motivation. I also have an unsupportive spouse. Oh he is great at acting supportive but never makes a long term change to help. Much like a kid told to clean his room. November 4th a week after moving into our new home I had been getting sick for weeks for an unknown reason but nothing severe enough to make me think it was anything serious. I got shocking news. I had just been told my mom who I hadn't met had died at 47 in August no one cared to bury her or mourne her passing she was creamated and that was that. At this point I had no idea I had a ticking time bomb in me the reaction my family had to what was devastating to me set it off. A little background when I was born I was very sick and should have died. The Dr advised I would never walk talk etc.. basically be a vegatable my whole life. Well that didn't happen but everyone missed what was really wrong with me. They all assumed my mom had drank and did drugs while pregnant with me. No one had a clue what really ailled me. It also killed my mom at a very early age. Apparently there is a heriditary condition you can be born with that will cause this exact issue. It's called prolactinoma a benign hormone secreting tumor on the pituitary gland. My body basically was born thinking it was pregnant. So it damaged my liver and caused Pcos to hit me in addition made my body go into fat storing mode 24/7. Everything I eat my liver turns to fat. I got diagnosed Mar 23 2015. On top of which I have a sit down job. I know it just keeps on piling up... So basically my drs all want me to lose weight to fix everything. I am on a tumor treating med that is making my hair fall out even though it was not a listed side effect I take vitamin D E Cod liver oil with vitamin a & d milk thistle. Since I started my treatment my hormone level has regulated my weight gain has stablized. But I need help and guidance. I have non alchoholic fatty liver disease now and have to lose 60 pounds to get my liver healthy again. Please help i am willing to give it my all.

I am very sorry for what you have gone through. I admit I am no dr, but are you sure that the tumour has anything to do with the rest of the issues, and they are not just weight related? My only experience with prolactinoma is a friend who has it, and weight gain was not among the issues she ever reported, her main concerns were all fertility related. The things you describe, sound more like related to eating habits than an illness. I also must say that a quick google search does not relate your diagnosis to fat storage, liver failure or PCOS. I am not doubting you have a diagnosis that is very serious, but I think you need to make 100% clear with the dr what is caused by the tumour, what the meds will help with, which part of your health issues is caused by lifestyle, and what exactly you need to do. I understand you are overwhelmed, but you need to talk again to your dr, ask for specific advice, meet with a dietician, and change your lifestyle.

The tumor came from my mom. She died from it. As to the rest I was born with the tumor it has gone undiagnosed my entire life. The reason I know is when I was born my liver was so messed up I nearly died. In addition this is not a result of unhealthy eating. I can eat straight lean meats and veggies none stop for 6 months and still gain weight. When your liver is messed up this badly and trust me it is. Combine that with your body constantly producing prolactin which makes you menstrate irregular and your ovaries to become encased in cysts and in addition the prolactin is in such excess that it damages your liver further. You get a crapstorm. To put it bluntly I had a dad who cared more about himself than getting the right tests when I was born. He assumed my mom drank and did drugs when pregnant with me rather than acknkwledgeing I had a deeper issue. I was a month and a half over due. When in high school I was in jrotc, weightlifting, and I had a regular exercise routine and was constantly on a diet but I still gained weight. So next time you try to Google someone's condition and try to act like you know it's their fault, don't. I have been to more drs than you know been examined had untold needles in me. I even have had mri's when in addition to which showed its touching my right optic nerve which I coincidently have been blind in since birth. Also I have had 2 mini strokes and 2 traumatic brain injuries as a result from all this. Medical conditions are real. I ask for help because I want change not someone pointing a finger at me. If this were a matter of eating habits and exercise habits I would be a size 0.

No. You have health issues, no one is denying this. As many of us do. And same as in your case, it not our fault or your fault. You had an awful childhood. Me too. Many of us do. And we try to find ways to cope. Overeating might be one of them, certainly I can think of worse. You can also exercise and be in great shape and still overeat, not at all uncommon.
But in the end, no, you do not defy the laws of physics. Your circumstances, both physical and emotional, might make eating a healthy amount of calories hard. No one is saying that it is always easy. But you are at this weight, because you are eating too many calories. It might be your mechanism to cope with stress, for lots of people it is, I think it must be one of the most common reasons to overeat. But, at this stage, you need to decide if you want things to change or not. If you do, this is something you have the power to do. Not your boyfriend, not your parents, not anyone else. You said it yourself in one of your posts:
" I have already cut out fast food soda and fried foods but for what ever reason eating lean meats and exercise just isn't enough sure I lose like 6 pounds but then it just stops and I gain it all back in still eating and doing my exercise the same. It's crazy"
This is why you are failing, because you do nto acknowledge that this is not working. You need an eating plan you can live with, for life. You need to figure out how to eat a decent amount of calories, without going over, for life. A few days or weeks of lean meats and exercise, losing some pounds, then getting discouraged, this is yo yo dieting, not lifestyle change. Try a plan that includes calorie counting. Use your diary to actually count what you are eating. Including lean meat and vegetables and everythign else you eat. Use a scale and weigh everything. You will be surprised.

losing weight with a shocking diagnoses

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