Living with Disabilities

gothicfires
gothicfires Posts: 240 Member
Not as catching as Dieting with Disabilities but I didn't want anyone to misunderstand my meaning of diet. I prefer the meaning as 'how you eat' not 'losing weight'.

I have a physical disability that makes it very difficult to exercise. The more active I am in the more pain I am in. I take narcotics daily just to be comfortable sitting on my bum. 10 years ago when I was a little more able I lost 42 pounds going from 192 to 150lbs. I was walking 1.4 miles a day. Now I can't even walk to the house next door to use their pool... I'll be driving my car.

Why am I writing this?

Because it wasn't my disability that took me from being 150 to 210. It was my food choices. Now I'm making different choices. It will be a bigger struggle but I am determined to be responsible for my health. I welcome anyone to add me as their friend who also has a disability or if you need encouragement from someone who knows this isn't going to be easy.

Replies

  • pedidiva
    pedidiva Posts: 199 Member
    What kind of disability? Back, wheel chair bound, neuromuscular disease, chronic lung or heart disease, etc.

    Swimming may be helpful. If you are in a wheelchair, get some walking poles (like Exerstriders) and give youor self an upper body workout, can you cycle on a recumbent bike?

  • farzadk123
    farzadk123 Posts: 2 Member
    have you ever considered using non-narcotic pain management. I know weed can make pain tolerance easier. As for eating look up the cause of eating too much. Becker has a CBT based weight loss which may be useful to you.
  • pedidiva
    pedidiva Posts: 199 Member
    second Beck
  • Sharon_73
    Sharon_73 Posts: 189 Member
    What type of mobility impairments do you have? My partner is is a paraplegic with low level spina bifida. He is a former national adaptive rower and is a competitive sledge hockey player. He owns his own personal training studio and is a specialist in adaptive fitness. Every day at his studio he trains men and women with various disabilities. CP, Spina Bifida, Amputations, Stroke etc etc. Your mobility is creating a challenge for you but there is so much you can do! Taking charge of your nutrition is a huge positive step in making the changes you want to see in yourself!
    Feel free to send me a friend request and I will do my best to lend support and encouragement and pass along any insight I have.
  • gothicfires
    gothicfires Posts: 240 Member
    I have MHE. The simplest way to explain it is that my body is filled with benign bone and cartilage tumors. My skeleton is also deformed. I don't have full range motion in all my joints. My joints are also breaking down because they are bearing weight in a manner they were not designed to do. This would have happened even if i wasn't overweight, just not as fast. When I move my muscles move over tumors. The things you do without thinking about hurts. If you do something that hurts multiply that pain by 5 on a good day.

    I'm not in a wheel chair all the time. I don't own one but I use them when I go shopping. I can't use non narcotic pain medicine. It doesn't work and weed is not only legal but I don't believe in it. Believe it or not you can use narcotics and not be high or mentally addicted to them. They are a means to make my life as 'normal' as possible. Without them I wouldn't be able to do much more than watch tv.

    I also know why I over eat Beck... it's call not watching what I eat. Saying that one gained weight because they ate to much doesn't mean one stuffs their face with everything they can reach. It was a simple statement that I ate more calories than my body needed and I was admitting it.

    I have an eating plan that has worked for me before. I will be using the pool next door. I have found workouts for people who sit in chairs. I can't do yoga but I stretch and when I feel upto it I'll try to get up and dance for the length of a song.

    I appreciate the spirit in which everyone posted here but I wasn't looking for a rescue. I was looking for people who either also had difficulties or who would like to work together.

    Sharon I wrote most of this before you posted. I edited it a little bit to give a little more explanation of my limitations. If anyone wants to find out something new just google the letters MHE. My skeleton looks like a humanoid space alien. I thank you and Pedidiva for the concern and respect. While a disabled person my not be able to do a specific one thing there is going to be something that they can do, even if it is more difficult and takes longer for them to do. Disabled doesn't me unable.
  • pedidiva
    pedidiva Posts: 199 Member
    MHE is a terrible disease. Have you had genetic counseling? I think that the chair yoga,/exercises and pool therapy may be the best options for you. You may want to consider an appt with the dietician to help find what eating plan may be best for you. Guided imagery has been helpful for pain. You may want to ask your doc for a PT referral to see if any other exercises can be done in a home program.
  • gothicfires
    gothicfires Posts: 240 Member
    (i noticed a typo in my previous post. Legal should have been illegal. Pot is illegal where I live.)

    I won't lie and say that mhe is easy to live with but there are people who have problems that my be less debilitating and more mentally damaging. I once saw a documentary on a boy with sweaty hands and had to be thankful that I have mhe. At least with mhe I'm not embarrassed to reach out and shake someone's hand.

    I've lost weight before. in 2004 I lost 42 pounds. The first 30 I lost sitting on my *kitten*. I wasn't actively working out until the last 12. A few years ago I lost 20 pounds on the method I will use this time, high protein, high fiber. I had great energy and never felt deprived.

    I've got my head and my heart in the right place this time around. I've got the plan and the will to execute it. I would love for my activities to be bellydancing, classical fencing, mountain hiking... that's just not going to happen. So if you can do all of those things, then do them and enjoy the hell out of them because I will most likely have to take extra pain medication or a muscle relaxer just to get to sleep tonight because I spent half an hour doing low impact aerobics in the pool.

    Thanks for asking pedidiva, your concern is appreciated.
  • mbaker566
    mbaker566 Posts: 11,233 Member
    medical marijuana is not about getting high, and in fact that component is being bred out of many of the medical strains-just an aside

    yoga was a lifesaver for me and my myalgia. there is chair yoga that is restorative. and I also get to take less pills. not to start mind you but eventually less pills.

    I congratulate you on your commitment to your journey to a healthier you
  • Sharon_73
    Sharon_73 Posts: 189 Member
    If it is OK with you, I would like to ask my boyfriend and his business partner for suggestions on exercises that you may be able to incorporate without increasing the pain.

    You say you would like to do bellydancing and fencing but that isn't going to happen....who knows....maybe you will be the first person to develop adaptive bellydancing and fencing!

    As for the other side of it, the nutrition, you mention a few years ago you did high protein, high fibre and had great energy so I think you have your answer right there as to what you need to do!
  • francinayoung
    francinayoung Posts: 5 Member
    farzadk123 wrote: »
    have you ever considered using non-narcotic pain management. I know weed can make pain tolerance easier. As for eating look up the cause of eating too much. Becker has a CBT based weight loss which may be useful to you.

    Weed may help with pain but it also will cause the munchies...terrible for weight loss. Also, it's not legal everywhere.
  • mbaker566
    mbaker566 Posts: 11,233 Member
    farzadk123 wrote: »
    have you ever considered using non-narcotic pain management. I know weed can make pain tolerance easier. As for eating look up the cause of eating too much. Becker has a CBT based weight loss which may be useful to you.

    Weed may help with pain but it also will cause the munchies...terrible for weight loss. Also, it's not legal everywhere.

    I wish people would be educated about medical marijuana. this is not your street corner weed. Some strains may cause "the munchies" but not all. also there are many ways to take it. Mostly, all the "good stuff" is being bred out of the medical strains, depending on the reason for usage. They are using it to treat epilepsy and that strain is supposed to have no "high" side effects.

    I would think the strains being suggested for anxiety might cause munchies, but that also does not mean you have to eat. boredom causes munchies but you don't have to eat.

    I'm sure there are still medical strains that still get you high if that's what you want but it is certainly not a necessity

    There is great potential in the usage of marijuana but the legality of it is an issue
  • gothicfires
    gothicfires Posts: 240 Member
    Sorry I didn't go back and check this. Moyer, I don't have a problem with people using medical marijuana. I do believe that it is beneficial for some people. When I was researching what to do about the debilitating pain I was in I saw a youtube video about a guy with my condition who used it. It isn't possible for me to get in SC. If I could get it, I don't think it would be for me. I take oxycontin responsibly. It works for me. But I'm not under any illusion that everyone would have the same result.
  • mbaker566
    mbaker566 Posts: 11,233 Member
    Sorry I didn't go back and check this. Moyer, I don't have a problem with people using medical marijuana. I do believe that it is beneficial for some people. When I was researching what to do about the debilitating pain I was in I saw a youtube video about a guy with my condition who used it. It isn't possible for me to get in SC. If I could get it, I don't think it would be for me. I take oxycontin responsibly. It works for me. But I'm not under any illusion that everyone would have the same result.

    cool, it does have a lot of uses but it certainly isn't for everyone and it certainly is legal everywhere

    I will say I have seen more heroin addicts come thru prescription drugs than ever. So I generally look for nonprescription relief wherever possible. not MM as it's not legal here either, but nsaids, foam rollers, mediation and yoga, but I imagine that my condition cause much less pain then yours. good luck