Any parents of special needs kids??

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Replies

  • slowrollem
    slowrollem Posts: 55 Member
    I'd love an invite to the group as well! I have a 14 yr old son with Aspergers.
  • keemakit
    keemakit Posts: 3 Member
    It's easy to feel alone, but you aren't. My 19-year-old daughter has a slew of diagnosis: sensory integration dysfunction, ADHD, PTSD, severe depression, anxiety, etc. Her whole life has been full of physical/emotional therapy, psychiatrists, hospital visits, medications, commitment facilities, therapeutic summer camps, etc. It never stops, even when they are grown. A lot of my weight comes from that stress - being strong and compassionate when your heart is tired and hurting. I should have spent a little more time taking care of myself, but you can't look back. So I am starting now! So happy to have found other folks walking the hard road with their precious kiddos. We really can give love to our families AND ourselves, even with the extra responsibilities... I believe it!
  • SaMa544
    SaMa544 Posts: 3 Member
    My son is also special needs on the spectrum including ADHD, anxiety, and sensory. You just have to find what moves them. For my son its music and dance. I am on his 3rd school to be able to help him. The more you fight for your son you will find a way weeding out the ones who do t want to put I. The extra effort.
  • nicjbar73
    nicjbar73 Posts: 47 Member
    please send me invite
  • mom2pne
    mom2pne Posts: 215 Member
    Hi! My son his autistic and also has a lot of brain atrophy due to not being diagnosed with his aorta and pulmonary vessels switched, small aorta and right ventricle and what kept him alive for those 3.5 weeks after birth which was a lot of hole between the chambers which let the blood mix, but as he got older the holes were getting smaller and so when he got diagnosed his blood oxygen level was only 40%. Normal is 95-100%. So his brain didn't get a lot of O2 and I was told it was so bad by the neurologist that she expected to see a child in a wheel chair that couldn't walk, talk, or eat that was when he was 7. He is now 19 and talks better than he ever used to and can sing the words to all of Katy Perry and Taylor Swift's songs. He still is very small and his brain isn't sending signals for growth or puberty, but he is an amazing young man who has beat the odds time and time again!
  • lisah180
    lisah180 Posts: 69 Member
    I've sent invites to everyone who has asked (hopefully I'm doing this right!) I'm assuming it just goes in your messages..anyways be in the lookout!
  • believeinme0430
    believeinme0430 Posts: 270 Member
    I would love to join also. My 7yr old daughter was just diagnosed with ADHD combined, sensory issues, learning disabilities and is going for a hearning test the end of this month to see if she needs a hearning aid. I would love support from other parents who understand what you are going through.
  • CarrieJ73
    CarrieJ73 Posts: 2 Member
    I have a 21 yr old son with classic autism and a 7 yr old daughter with classic autism, ocd, intellectual disability and sensory disorder. Would love to join your group!
  • arkowalyshyn
    arkowalyshyn Posts: 132 Member
    I still haven't found the group! Do you guys mind if I post a rather lengthy post regarding a situation we've recently had?
  • lisah180
    lisah180 Posts: 69 Member
    Ugh sorry! I don't know why all my invites etc aren't working!! If someone wants to create a group (who knows how to.feel free) but please go ahead!!
  • lisah180
    lisah180 Posts: 69 Member
    Some people have joined the group!! Can one of you let people know where the invite came to?? Thanks!!

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