Any chronic pain fighters out there?

I used to run. I now have arthritis in my knees and hips. Still walking but probably won't be a runner anymore.

I was diagnosed with fibromyalgia approx. 6 years ago. I fight mental fog on a daily basis and I ache and hurt like I have the flu on most days. I have flares around my joints because of inflamed connective tissue. I am very sensitive to medicines and am unable to take the prescribed medicines used for fibromyalgia. I manage my pain with ibuprofen and tylenol when needed. I have learned that exercise helps, especially with the "fibro fog", but I have to be careful to not overdo it. Exercising too vigorously can cause days of extreme pain and tiredness. I have about 70 lbs that I would like to lose.

blackburn23 wrote: »

I was diagnosed with fibromyalgia approx. 6 years ago. I fight mental fog on a daily basis and I ache and hurt like I have the flu on most days. I have flares around my joints because of inflamed connective tissue. I am very sensitive to medicines and am unable to take the prescribed medicines used for fibromyalgia. I manage my pain with ibuprofen and tylenol when needed. I have learned that exercise helps, especially with the "fibro fog", but I have to be careful to not overdo it. Exercising too vigorously can cause days of extreme pain and tiredness. I have about 70 lbs that I would like to lose.

I was diagnosed with fibro four years ago when the pain had become unbearable. The doctor put me on meds that made me feel like a zombie, the next set of meds made me feel like I was in hyperdrive and my heart would beat out of my chest, and the third med my insurance wouldn't approve so I went back to the first at a lower dosage. I decided to try other ways to alleviate my pain without the mind numbing meds, they made the fibro fog worse and they had to go. I lost weight (70 pounds) over the last two years, started running in the last year (really helps with the fog), and regularly go to a chiropractor and massage therapist. The massages have been the biggest help because they are able to work some of the trigger spots loose and a lot of the pain dissipates and I feel like I can function again. Also, being able to get quality sleep is a huge benefit. The flares get worse when I am stressed or running on a few hours of sleep a night.

I have found all of this out through trial and error to see what works best for me. You may find that some of these work well for you and others not so much. I think the biggest thing is to listen to your body, get adequate rest, and don't push too hard when you are having a really off day.

Feel free to add me if you like. Good luck on your journey and finding relief from the chronic pain.

I have scoliosis, kyphosis, lordosis, harrington rods, decrepitis knee joints, and chronic pain and fatigue. Every year or two I will have a flare up ( bulging disc, stress fracture ) and have to be put back on prednisone rounds and major pain meds that I have to take with food. I continously fluctuate 40lbs. The older I get the harder it is to lose the prednisone weight. This time I am struggling and want to lose the weight to avoid/postpone another impending surgery.

I have scoliosis caused by a short leg. I've learned to do what I can rather than being limited by what I can't. I'm limited to very low impact exercises but I've learned to work with that, working on resistance and endurance rather than speed or intensity.

Never compare yourself to others when it comes to fitness. Everyone has different abilities and potential. Only compare yourself to yourself, or in other words work on a better "you". Feel free to add me.

adhoopi wrote: »

I have scoliosis, kyphosis, lordosis, harrington rods, decrepitis knee joints, and chronic pain and fatigue. Every year or two I will have a flare up ( bulging disc, stress fracture ) and have to be put back on prednisone rounds and major pain meds that I have to take with food. I continously fluctuate 40lbs. The older I get the harder it is to lose the prednisone weight. This time I am struggling and want to lose the weight to avoid/postpone another impending surgery.

Have you tried swimming or water jogging? There is no impact and you can get a surprisingly good workout in the water. I lost my first 20 pounds by eating better and doing water exercises.

I have thoracic outlet syndrome that comes and goes. When it comes, the symptoms range from neck, shoulder, and arm (all the way down to fingers) pain to the same areas just becoming painfully numb. Usually, it is just painful. At times, my hand is just not very dextrous (I can't pick things up very well, for example).

Also, I've never gotten a diagnosis (I gave up years ago) on this, but I've always had back pain since I was a teenager. At that time, every dr. I ever saw just checked if I had scoliosis (I didn't), and just concluded that it must just be all in my head. It doesn't really affect movement like the thoracic outlet syndrome sometimes does, but it is an annoyance.

Finally, this isn't as much of a pain issue anymore, but I've dislocated and separated both of my shoulders a whole lot of times. On the left side, after 12 dislocations and 1 separation, I had an open bankart surgery to repair it. That was 5 years ago and I have not dislocated it since. It just pops every once in awhile, and it can be painful from over-use.

Ankylosing spondylitis, chronic fatigue, fibromyalgia, IBS, dry eye, multiple car accidents with injuries, multiple joint surgeries, drug sensitivities, pain, fibro fog, and have completely lost the ability to multitask. I gained almost 100 lbs on prednisone. Withdrawal from prednisone was very difficult, and still after more than 6 years, I wish I could go back on it.

With all that, I've come to realize that I still have to take responsibility for my own life. I still need to eat right and exercise to the best of my ability. I can't do what healthy people do, but I can to do what I can do. The hard part for me is actually doing what I can do, and not using the above conditions as excuses. And balancing that with knowing when to stop. When I'm having a good day, I tend to overdo it and regret it the next day. But, believe it or not, my memory is so shot that sometimes on a good day I forget that I have bad days.

Was diagnosed with fibro last december. I used to enjoy my long walks and was on my way to a great weight loss. Now I cant walk 20 minutes without needing a sleep or being in pain. My weight has gone up again. I have days were I feel very weak that even standing up can be too much.

@Foggiblu Yoga makes me functional some days. I liked it so much I teach aerial yoga now. I find it easier on my joints. restorative and yin yoga are great to get joints to release and gives you time and space to get centered.
I learned to acknowledge my pain but not let it define me.

I have Behcets and myalgia. I live with random pains, achy joints, sun burned feeling skin, migraines, sore throats, etc plus the fog and the fatigue. I started with aerial yoga, then i started long walks with the dog, and then i did the c25k and then the b25k and now I'm working on a half marathon. the key has always to go slowly. build up slowly. my body likes to inflame-so i am prone to tendinitis and other -itises.

The way I look at it, I can hurt or I can hurt and be healthy. I also tell myself I feel pain but that my body exaggerates it so I can go a little further.

I've lost weight when i was on lyrica, losing weight on gabepentin and colchicine and pantoprazole and lamotrigine

Hi I just joined FitnessPal. I was diagnosed with Fibromyalgia in June 2015 after years of pain. I basically ignored myself since I was dealing with an autistic child. In my quest to get healthy I was also diagnosed with adenomyosis and had a hysterectomy in February 2015. I was already overweight and have added an additional 20-lbs since my surgery. I'm looking for supportive people. I want to win my battle with my eating problems and would also like to help encourage others hoping it will also motivate me. Exercise is not happening yet. I'm lucky to make it through the day but I'm hoping that if I lose some weight it will relieve some of my pain and tiredness. Please feel free to friend me and we'll encourage each other. Thank you for listening. Stormy

Obnoxa wrote: »

AS, RA and osteo here. Coming off all the meds now due to weight loss and movent (yay!) Although I refused biologics because of the lymphoma/cancer suspicions so I ate a lot of pain killers, anti inflammatory and stuff to protect me from those.
Last bone density showed some form of arthritis in 83% of my joints so yeah, I get it.
Unfortunately
Not sure what you're doing but for AS I've found stationary bike/elliptical has been the best combined with resistance bands where I can control what moving and how much. I get SI joint pain on the bike if I get cocky about duration but other than that, been working quite well.

I am on Remicade and it is a life saver. The cancer risks are very very small. All of the cancer cases have been teenage boys and usually with those also on imuran (which I also take)

AS, RA and o

singingflutelady wrote: »

I am on Remicade and it is a life saver. The cancer risks are very very small. All of the cancer cases have been teenage boys and usually with those also on imuran (which I also take)

I wont lie, I fully admit I'm a bit of a stress monkey when it comes to meds; I'm the chick who shoots down even some advil post surgery.
I'm not an anti-pharma soap boxer but I am slightly paranoid, and it just takes one seed of doubt to make me freak myself out

desiresdestiny wrote: »

I've been doing a lot of walking videos lately. I also love the elliptical.

Awesome! Walking is always a go to for me as well!