Is anyone else battling a chronic pain condition
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Ah, I'm sorry
Really so sorry you've had such a hard time of it. I'm inspired by your commitment, and I hope you find some ways around this pain, so that you can focus on what you need to do. I think the advice people have offered on coping is good. (I have moderate chronic joint and tendon pain - very different - but the spoons idea has helped me, too.) Best of luck to you 
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Thankyou, I've been in a very dark place for a long time with this, also my mum died in 2014 and her death hit me like a freight train. It's been so hard to pull myself out of the dark hole I'd gotten into but I feel I'm ready to lift my head and try to improve the quality of my life, I've tried almost everything regarding the pain, and even tho the simplest of things like walking down a flight of stairs has me wanting to curl up and cry, this time I'm hoping my head is getting strong enough to continue battling the pain and break through it.. Yes I've put on a ton of weight and yes being over weight makes the pain worse, but what the Drs forget is that daily tasks can reduce me to tears, never mind trying to excersise to help myself... Here's to another year and hopefully a better one. Much love to you for your support xx0
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I have really bad leg pain. It's fine throughout the day but starts up in early evening and gets worse as the night progresses. I have bad vericose veins but the doctor tells me that my pain is not consistent with the veins. I have been told it could be restless leg syndrome or nerve damage. In any case, by the time I get home from work, I am in pain.
I want to exercise (my husband has a whole gym in the basement) but by the time I put my daughter to bed, all I want to do is elevate my legs.0 -
I'm Betty,
I have lupus/vasculitis/Raynaud's/hashimotos/degenerative arthritis from high dose prednisone/clotting disorders/blood flow problems making exercise near impossibility...and other junk. Illness, Prednisone and being unable to move alot packed a mass amount of weight on thru about 9 years. I've fluctuated some the past year and actually lost some. I started 269...now about 239....I was down to 219 and picked back up with med changes. I started this this week and water weight is already going...nearly 8 total inches. I didn't think I could stick with it. Its working so I have to. Exercise is only 5-10 minute intervals but more than I normally would. Illness makes it harder to not just eat whatever... Conscious food choices are showing me how bad I was eating in addition to illness and meds. I weigh double twenty years ago....how have I let this get so outta hand? I have to take control of my eating habits and my whole life again.0 -
All you ladies are amazing. Very inspirational.
I'm sorry you so going through all those difficulties0 -
Yes. I have multiple conditions which cause severe chronic pain. Feel free to add me for support.0
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CurlyCockney wrote: »Yes, I have a neurological condition which causes pain and fatigue, as well as some jolly shenanigans with my bladder and bowel, memory, focus and ability to take in new information easily. I'm a wheelchair user so can't do much in the way of exercise, and my daily steps are negligible.
Hey, your condition sounds eerily familiar. You don't, by chance, have multiple sclerosis, do you? I do, and I just signed up for MyFitnessPal, because it links with my activity bracelet that I got for Christmas. Just wanted to touch base with you. I don't know how this works, yet. How to reply to individuals VS. the group.
To everyone who responded: Might I suggest water aerobics as a form of exercise?
I have been attending classes for about 3 years now, and have progressed from a "silver sneakers" class, designed for senior citizens and disabled people to a "regular" class and now to a "deep water" class. The really nice things about water aerobics are 1. you don't have to worry about falling, 2. you can perform maneuvers that you could NEVER do on dry land and 3. the water adds some resistance to your movements which is almost undetectable, but adds to the calories burned.
I recently went on vacation and missed a couple of weeks of exercise. When I came home, I had gained back 5 pounds of my agonizingly slow weight loss. A couple of weeks of exercising, and it had dropped off again!
also, to those of you with fibromyalgia--my daughter has it, and took up ballroom dancing for exercise. It has helped with her fibro pain quite a bit.
And, incidentally, the spoon theory works great for MS, too.0 -
metabolicwreck wrote: »
Hey, your condition sounds eerily familiar. You don't, by chance, have multiple sclerosis, do you? I do, and I just signed up for MyFitnessPal, because it links with my activity bracelet that I got for Christmas. Just wanted to touch base with you. I don't know how this works, yet. How to reply to individuals VS. the group.
To everyone who responded: Might I suggest water aerobics as a form of exercise?
I have been attending classes for about 3 years now, and have progressed from a "silver sneakers" class, designed for senior citizens and disabled people to a "regular" class and now to a "deep water" class. The really nice things about water aerobics are 1. you don't have to worry about falling, 2. you can perform maneuvers that you could NEVER do on dry land and 3. the water adds some resistance to your movements which is almost undetectable, but adds to the calories burned.
I recently went on vacation and missed a couple of weeks of exercise. When I came home, I had gained back 5 pounds of my agonizingly slow weight loss. A couple of weeks of exercising, and it had dropped off again!
also, to those of you with fibromyalgia--my daughter has it, and took up ballroom dancing for exercise. It has helped with her fibro pain quite a bit.
And, incidentally, the spoon theory works great for MS, too.
Hi! I have MS's lesser known evil twin, Transverse Myelitis. Symptoms are the same near enough, although TM isn't progressive.
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I'm managing chronic hand pain.0
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a_new_life_2016 wrote: »Thankyou, I've been in a very dark place for a long time with this, also my mum died in 2014 and her death hit me like a freight train. It's been so hard to pull myself out of the dark hole I'd gotten into but I feel I'm ready to lift my head and try to improve the quality of my life, I've tried almost everything regarding the pain, and even tho the simplest of things like walking down a flight of stairs has me wanting to curl up and cry, this time I'm hoping my head is getting strong enough to continue battling the pain and break through it.. Yes I've put on a ton of weight and yes being over weight makes the pain worse, but what the Drs forget is that daily tasks can reduce me to tears, never mind trying to excersise to help myself... Here's to another year and hopefully a better one. Much love to you for your support xx
Oh wow, that's so hard, to deal with that kind of loss and grief, with a baby too, and the pain... You really are strong for fighting for yourself to get help through all that, even when the doctors are unable to help. Glad to see you're ready to try to move forward to help yourself in the way available to you.
(Sorry to go back to that blog, but you're saying the nerve block did work, albeit temporarily? They can't argue it's psychological. I hope the hospital you're with now has some of those advanced techniques the author mentioned, like the pulsed radio frequency, or the implanted nerve stimulator, or the spinal block, or the cortisone shots to soften scarring... Agh sorry out of my depth here, just really wish that you could find some kind of relief.)0 -
Your very lovely I've had a lot of treatments I do believe something will come out of this year and a new hospital... I know what it's like to lose hope and this year I'm staying strong and keeping the faith that they can give me something ...0
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Something I have invested in lately is a "ninja" and a subscription to bountiful baskets. The juicing and fruit smoothie recipe's I find on "Pinterest" for inflammation and pain management have really helped. It increases my energy level too.0
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Yes I have had RSD since 1997 after a fall from the 2nd floor of our house.
3 years ago I developed Lupus, with vasculitis migraines, osteoporosis and fractured my back last year. I too am in constant pain....I'm writing this from bed after a terrible night and loads of pain meds are yet to kick in.
Anyone dealing with Chronic pain is a Hero. The toll is overwhelming and it can take you over if you are not careful. I admire everyone on here who has contributed and like others have said even without exercise weight loss is most definitely possible.
Op - use MFP as much as you can. Do as suggested an plug in your stats and take on a reasonable deficit and eating plan where small steps get you to the point that you are hoping for. I read that you feel you eat terribly....well maybe that is a place for you to start the process of looking after yourself as best you can. Swap in more water, learn how to prepare veggies and meat in appetizing, new ways.....something, anything to get you inspired and keep you committed.
Be patient and persistent. Don't lose the plot if you don't have a good day....it is all about the long haul (for everyone) but especially those with special needs.
Look at this (sorry for the cliche word) journey as Self-care not self-punishment.
Being overweight does not do chronic pain any favours.....I used to be 278 lbs and am now 110 lbs and have been successfully maintaining for 3 years despite all the changes and now no exercise and of course steroids et al.....I'm now 53 and started doing this in my late 40's so nothing is impossible.
Wishing you all the best.
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Thankyou what lovely kind words, I agree starting with the food is deffinatley my goal, I've been good so far this year lol, I know it's only just started, but it's not going to come off over night like we all wish huh... I'm sorry to hear your in bed in pain it is terrible living with constant pain isn't it. Much love and respect to you x0
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Hi there, i have complex regional pain syndrome in my ankle and leg. It has been a long and hard 3 years of rehabilitation. I have worked so hard and was even starting on some small bits of running and higher impact exercises. 2 weeks ago i had a fall and reaggravated my ankle injury. I am absolutely guttered and so fearful of going back to square one. Still working hard to stay positive and to beat this. Much love to you all, don't lose hope.0
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All of you are so incredible. Chronic pain is so hard to cope with, especially when it limits a person's ability to become healthier. I've had pain and chronic illness issues since I was in my teens (initially diagnosed with fibromyalgia and depression, then more recently hypothyroidism, CFS, and chronic anemia).
A few years back my doctor recommended I try a new medication therapy which resulted in severe flare ups and massive weight gain. While I have since then managed to find medications to manages my pain (and found a new doctor) the weight has been much harder to lose.
I managed to lose about 10lbs over the course of 2015, but my long term goal is get to a healthier weight and hopefully it will result in better pain management. Right now it's incredibly difficult for me to exercise without causing flare ups so my main goal is to try and eat better and maybe do some modified yoga and stretching when I can.
Feel free to add me -- I would love to have any support I can get!0 -
I too have chronic pain, GI issues, chronic fatigue and so many other problems. In the past year I've gone from relatively active to finding it hard to walk across the parking lot. And i'm pretty young still! I know how hard, frustrating, and harrowing it can be to have issues because you want so badly to be healthy and active.
Feel free to add me and we can go on this journey together.0 -
Last spring, right after I obtained a personal best on my 5K time, I developed bilateral calf pain. It was bad enough that I had to stop all activity, limiting myself to moving around my work and that's it. I went to so many doctors this summer, having different testing done, specialist consults, etc. and the end result was "sometimes people just have pain". None of the possible diagnosis' fit my symptoms-it wasn't chronic exertional compartment syndrome because my pain was at rest and didn't worsen with movement. It wasn't popliteal entrapment syndrome for the same reason, and scans were negative. Not rhabdo, not metabolic, not vascular. Not myofascial pain syndrome because it's limited to one part of my body. Physical therapy didn't help. Chiropractor didn't help.
Ultimately I decided to stop with the testing and referrals and learn how to live with it. Fortunately I was prescribed Cymbalta, which was helped tremendously with the pain. (meloxican and flexaril didn't even begin to help). Also I began swimming for fitness-I swam competatively in school, so I got back in the pool and was able to maintain my level of fitness. Now I'm back to running and high-impact, with the assistance of compression sleeves, but my calf pain is still there-some days worse than others. I notice it more when I stay away from the pool too long. Could you try some aquafit classes or swim some laps?0 -
Yes, I guess I am. I'm used to being in the gym 6 days a week, and have done so for the past 12 years.
But after I fell on the ice last January my back was never the same. I still took all my gym classes but could not keep increasing the weights like I had in the past. In October I saw a chiropractor who did absolutely zippo for me - OK, he told me jokes and charged me the co-pay - so I decided to pursue physical therapy instead, and that takes us to the middle of December.
Before work, I had my PT session, got my sheet with the exercises and stretches expected of me, then promptly fell and broke my ankle right after work. I've been sedentary every since - which has been 23 long days.
Besides my ankle and ligament issues - I'm in a cast and use a cane for those - but now I have this interesting lower back needling pain, now that the intense NYC cold has set in.
I think I can see the writing on the wall that Stacked, Whipped, MetCon3 and The Cut are no longer in my future, and that it'll be pilates, barre burn and maybe the Deep Extreme for a treat.
I'm not that happy about just fading away ......0 -
I have a form of myalgia. I just wrote a blog post about having to accept slowing down some days.
I don't like it. I was never very active to begin with and now trying to do so, I hit a wall sometimes. I don't like it
i find nutritious food helps, yoga, running, and just trying to move. the less i move the stiffer i get0
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