PCOS: New to Me
nothereanymore
Posts: 17
I am 26 years old and my husband and I have been trying to have kids for 5 years now. When we first started trying to get pregnant I wasn't really over weight and it was more of a we'll see if it happens. I wasn't really overweight when we started maybe 10-15 pounds but I was try to get in better shape for pregnancy. I went off birth control I didn't get my period for 3 months, and then 5 months and then almost a year and my doctor said that it could take up to a year to get the birth control out of my system and my cycle could be messed up for the first 12 to 16 months. After a year and a half the doctor found that I had slightly high cholesterol and told me I was way to young for that and sent me to a nutritionist, and a few months later I had my cholesterol under control and he say my cycle MAY return to normal in a few months and that I was a young woman and that my cycle could be off for a few more years and I thought that was just crazy it should be regular by the time you are 23. I waited 6 months and then went to see a different doctor he had some ideas for blood work and the iodine fallopian tube test but he was always gone with climbing mountains and riding his bike cross continent, so I would make and appointment and then they would cancel it and it went on like that for months, it was just another waiting game for me. Finally a female doctor came into our area so I switch doctors again and the first appointment I told her my issues with my previous doctors and my cycle and cholesterol and she looked at me and told me that she didn't want to waste any more of my time and sent me to see a specialist.
My specialist did all the blood test and physical tests the my second doctor was planning on doing and discovered that I had a blocked fallopian tube and wanted to do exploratory surgery, after my surgery my doctor left me a note saying the he found so endometriosis that he got rid of and that my tubes were both open. 2 months later when I went for my post-op appointment he, then told me that he drilled holes in my ovaries and when I asked him why he told me I had Polycystic Ovary Syndrome and to come back in six months and then if I still wasn't pregnant then we would try some fertility medication, and sent me on my way. I couldn't help wondering why he didn't write that down on the note he left me after my surgery so that could come up with some questions to ask him at my post-op surgery.
After doing a bunch of research on line I found the the first treatment for PCOS was diet and exercise and when we first started trying to get pregnant I was trying to lose weight but it was really hard I would do good for a few months and then all the weight plus some and I always blamed it on my bad spine, when I knew I was going for surgery I had already started a diet again and lost about 14 pounds but then we went to Mexico for 2 weeks and gained almost all of it back even though I was watching what I ate while there, but that was also before I even new that I had PCOS and I really don't know why my doctor never mentioned that before. From my research I also discovered that ovary drilling is one of the last things a doctor considers after diet, exercise, and fertility treatments, has anyone else been through this?
I am feeling really out of control about this and that my doctor is choosing my options for me without even consulting me. I decide to see my regular female doctor to discuss maybe seeing a dietitian, a nutritionist, or a naturopath since I found out that that women with PCOS have a really hard time losing weight and my even need a insulin resistance diet to help lose the extra pounds along with cardio and light weight training.
I am just hoping to hear how some women's other stories about discovering that they have PCOS, especially since I never even heard about it before and that it is the leading syndrome for sub-fertility/infertility!
My specialist did all the blood test and physical tests the my second doctor was planning on doing and discovered that I had a blocked fallopian tube and wanted to do exploratory surgery, after my surgery my doctor left me a note saying the he found so endometriosis that he got rid of and that my tubes were both open. 2 months later when I went for my post-op appointment he, then told me that he drilled holes in my ovaries and when I asked him why he told me I had Polycystic Ovary Syndrome and to come back in six months and then if I still wasn't pregnant then we would try some fertility medication, and sent me on my way. I couldn't help wondering why he didn't write that down on the note he left me after my surgery so that could come up with some questions to ask him at my post-op surgery.
After doing a bunch of research on line I found the the first treatment for PCOS was diet and exercise and when we first started trying to get pregnant I was trying to lose weight but it was really hard I would do good for a few months and then all the weight plus some and I always blamed it on my bad spine, when I knew I was going for surgery I had already started a diet again and lost about 14 pounds but then we went to Mexico for 2 weeks and gained almost all of it back even though I was watching what I ate while there, but that was also before I even new that I had PCOS and I really don't know why my doctor never mentioned that before. From my research I also discovered that ovary drilling is one of the last things a doctor considers after diet, exercise, and fertility treatments, has anyone else been through this?
I am feeling really out of control about this and that my doctor is choosing my options for me without even consulting me. I decide to see my regular female doctor to discuss maybe seeing a dietitian, a nutritionist, or a naturopath since I found out that that women with PCOS have a really hard time losing weight and my even need a insulin resistance diet to help lose the extra pounds along with cardio and light weight training.
I am just hoping to hear how some women's other stories about discovering that they have PCOS, especially since I never even heard about it before and that it is the leading syndrome for sub-fertility/infertility!
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I had a doctor tell me I had PCOS without even doing any testing and when I have regular cycles and when I was able to get pregnant but miscarried. Even though I was having regular cycles he put me on fertility pills and was having me monitor my temperatures. My basal body temperatures were all over the place and that is why he told me I had PCOS. My new doctor did a blood test during a certain time of the month and realize that I actual ovulate and doesn't believe I have PCOS so it is all confusing to me. I have been trying to diet and exercise but I am on steroids for my asthma and have steroid induced diabetes which has made it difficult. They actually believe I may have had two miscarriages but one was so early they aren't sure if it was an actual one or not and the other one was when I was less than 4 weeks. It has been really hard for us. We have been trying to get pregnant for a long time. I will be 35 in July so it is really frustrating. I haven't been able to really afford all of the other testing like the falopian tube tests and all of that because insurance doesn't pay for it and they can be extremely expensive tests so right now we are just trying to still get pregnant and I guess if it happens it happens beings how they found out I do ovulate and my cycles are regular. I do develop cysts pretty regular on my ovaries that have ruptured and have been pretty painful so that has been a barrier as well. I currently have a cyst now but it is extremely small and they say it isn't anything to worry about at this time. I wish I could be more help but I know there is a lot of information out there if you google it because I started looking for information when I was looking for it but then realized that they were diagnosing me before they did any tests.0
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I understand how you feel since I am going through it myself. We have been married since 5 years. But only started trying for a baby for the past 2 years. Before that I knew I had PCOD & the doctors (i had seen many) would prescribe me metformin. Also my prolactin was a little high for which I had to take medicines. Have you tested your thyroid hormones & prolactin? That would also cause infertility & PCOD apart from insulin resistance. I have known many friends who had PCOD but conceived successfully. The only thing is that it will take a little longer time than the ladies without PCOD. All these ladies had their weight under control. So I guess it would help losing weight, exercising & eating a good healthy diet. You should avoid all junk foods, sweets, sugar, white carbs etc. Try to avoid foods with preservatives & have more of natural foods that is made from home. Take more of healthy protein & fiber rich foods because it will keep you full and help control insulin. & Exercise.. exercise.. exercise.. lots of it...
Ladies with PCOD put on wight real fast & it's very tough to get rid of it. But it will help us a lot.
I had done ovarian drilling on consulting a doctor (hoping it doesn't have any side effects). She said I had large cysts on it. After that she put me on some hormone tablets, got my prolactin fixed.. & in april I conceived. But there was no growth & they had to remove it. She has asked to take a 6 month break.. During this time, I have decided to struggle & lose my excess weight. I have to somehow. I cannot risk another pregnancy going wrong.
I have heard that doing yoga will help normalize our hormones & lose weight.
Hope this helped. Do add me.
EDIT: I just read one of your replies regarding a lady curing herself of PCOS by going on a raw food diet. The raw food diet might have helped her with her insulin & weight which in turn cured her PCOS. As per my experience, it might be possible. I am 'mostly' a vegetarian. Few years back I had lost around 11 kgs (24 lbs) in 3-4 months by eating only protein (egg white, chicken, legumes... mostly steamed), salads with lots of olives (used olive oil & lemon juice as dressing), stir fried (with very little olive oil) vegetables & fruits. I exercised a lot.. 3 hours in the health club & 1 hour walk at the beach. I struggled a LOT. But it was worth it. The doctor scanned my ovaries & we both were stunned to see that the polycysts have just disappeared!! The doctor said it probably would have been the diet & exercise. It also helped regularize my cycles & my prolactin was normal! The only medicine I took during this time is metformin. But sadly I gained the weight back in a year when I started my old eating habits (emotional eater.. I eat a lot of junk food when I have problems). My cycles became irregular & I had to take tablets for prolactin... YUP!! PCOS was BACK!!0 -
Hi,
I have pcos, and because insulin resistance is a component of that for me I cannot lose weight unless I go low carb. It's hard. I also have secondary infertility due to pcos-6 m/cs since 2002. I have heard from many many pcos ladies of success with pregnancy after losing 40+ lbs and using metformin to ovulate and maintain a pregnancy.
Don't give up-difficulty losing weight is typical for pcos. It's not you, it's your hormones:)
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When I go to see my regular doctor I will asks her to check my thyroid hormones & prolactin levels.
Thanks for letting me know, I can only read up on so much but there really isn't much about what to ask your doctor to check on mostly just the same thing over and over like try and stay away from white carbs and dairy, and more on "importance of" diet and exercise but other that the lady on YouTube who has "claimed" to have cured her PCOS mostly it is just descriptions of what PCOS, symptoms and what other conditions it can cause.
If anyone knows of any other question I should ask my doctor and/or "food" specialist please let me know.
Thanks again!0 -
Hi, i am also a PCOS sufferer and i was diagnosed at the age of 20!
i had all the symptoms inc excess hair growth, pimple like goose flesh skin on my arms and hormones all over the place! the cysts on my ovaries were scary as there are so many!
i was told about metformin and my doctor would only give it to me if i was trying for a baby, so i told him i was so i could get them.
yeah they worked but the downside to them was i ended up with IBS which is now something i also have to control via diet
felt lost for a while as i also have been diagnosed with arthristis! yes i am like an old lady at 23
all my issues are to be controlled by diet ;(
if i was to put all my food groups that i should watch to control my symptoms i would only be able to have water!
so i have taken myself off of all tablets and given calorie control and balanced meals ago with a nice bit of exercise everyday if my bones will let me. this seems to have worked.
i know i will never be super slim but what can come off will come off.
i have regular yearly scans and check ups and i have one healthy child so i count myself lucky.
PCO is very common and alot of people will get told they have the syndrome instead of just the cysts so please if u have been told you have PCOS please research into the symptoms as most women have a cyst or a few.
ive read so much on this and all decent sites and doctors do say there is a difference.0
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