Remicade users

@desiresdestiny I have been living with AS for over 40 years (after they found a name for my problems). The doctors wanted me to start on Enbrel Nov 2014 he said in Aug 2014. I was very weak and was concerned it would be too much in my case. On a fluke 30 days before I was to start Enbrel I cut out sugar and all forms of all grains. 15 days later my cravings just faded quickly. 30 days in my joint/muscle pain of 40 years dropped from a subjective 7-8 to 2-3 which is like NO PAIN and 19 months later my I am still Rx med free and not under a doctor's care. Well through the years I did earn an OD degree (SCO 1986) and I have been researching AS since 1976.

What works for me may not work for you we all know. What I do know is my health and health markers are better now at 65 than at 45 and I fully expect they will be better at 75 than today. Oh a big surprise for me was after 40 years of life defining IBS or what ever it was resolved and over a year later has not return. I could go on and on.

I expect you may find a way to eat that can help. Actually I did some mowing with a farm tractor late today, when into town with my son to eat and walked my 1/4 mile daily walk and typing this at midnight.

Thanks for sharing your story. There are more and more of us finding ways of eating letting us safely become Rx free in many cases especially some that are diabetic. Even when we can just reduce our needed Rx meds it can more quality to our lives.

@desiresdestiny I agree checking out kickas.org/ because the UK seems to have given AS more attention medically speaking.

kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=389345
Some comments but here is one you may relate to:
04/24/10 01:55 PM Re: klebsiella - lactose fermenting [Re: Tinkerbell]
finnari Offline
Veteran_AS_Kicker

Registered: 06/02/07
Posts: 514
Loc: phoenix
For whatever reason cuttin out white sugar has been a blessing for me. I already cut out starch and dairy. I feel almost as good the last week as I have with my enbrel working (when I was on it).


thedailyhealth.co.uk/low-starch-diet-ankylosing-spondylitis-00044/

The findings of Dr. Alan Ebringer, Prof of Immunology at King’s College London I think is key data and explains why my eating <50 grams of carbs daily may have fixed me. This link is a short read and could be helpful.

https://doctorakerkar.wordpress.com/2014/10/25/low-starch-diet-for-ankylosing-spondylitis/

In part reads:
"Dr. Alan’s research continued & he went on to show that there are similarities in structure of the HLA-B27 molecule & enzyme Pullulanase produced by the Klebsiella bacteria. There is also similarity between the enzyme & type I, III & IV collagens found in joints & other organs. This gave rise to the ‘Molecular mimicry theory’. The human immunity recognizes Klebsiella as foreign & attacks it. However, since HLA-B27 & collagens have similar structure, they get attacked to. This may be responsible for the inflammation in joints & other structures like the eyes in Ankylosing spondylitis.

One can infer from the proposed ‘molecular mimicry theory’ that by reducing the klebsiella bacteria in the gut, one can reduce the inflammation associated with Ankylosing spondylitis.

Various studies have shown that the gut bacteria including klebsiella grow on undigested starch in the gut. Hence a reduction in starch in the diet may help reduce the klebsiella bacteria in the gut. Klebsiella bacteria is well adapted to the human gut & produces the Pullulanase enzyme that can break down the starch, derive nutrition & thrive in the gut.

The rationale of the ‘low starch diet’ is to cut down on the starch, make life difficult for the klebsiella bacteria. This may indirectly help control the Ankylosing spondylitis.

This is the exact basis of the ‘low starch diet’ for Ankylosing Spondylitis."

I have been reading about Klebsiella bacteria from time to time since 1977 but tonight was the first time it clicked how I may keep our two HLA-B27 positive kids from developing AS and their possible children. Thanks for your post. Actually I did not want to have kids because of AS in my family and was in part why I was 46 when they were born.

I am going to stop with the above referrences.

Best of success with whatever plan you run with for your AS.