Looking for Irritable Bowel Syndrome (IBS) friends!

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Replies

  • kacowgill99
    kacowgill99 Posts: 43 Member
    I'm shocked but relieved of how many people are in a similar boat as myself. I was diagnosed with Chron's Disease at 18. While I feel I have had very mild symptoms for the past 12 years, it kind of took cutting sugar & grains to get myself to realize that all the bloating and being uncomfortable after eating was not normal. This literally went on for years before about 3 months ago when I changed my diet. After a mild flare when I transitioned from junk food to real food, I have been symptom free ever since.
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    @kacowgill99 Crohn's sucks :( I am med dependant (Remicade and imuran). Sticking to a strict diet helps but I become deathly ill ( like close to perforating, severely anaemic, etc) without immunosuppressants :(
  • size102b
    size102b Posts: 1,370 Member
    21 years ibs d for me I hate it it's ruined my life
  • kacowgill99
    kacowgill99 Posts: 43 Member
    singingflutelady wrote: »
    @kacowgill99 Crohn's sucks :( I am med dependant (Remicade and imuran). Sticking to a strict diet helps but I become deathly ill ( like close to perforating, severely anaemic, etc) without immunosuppressants :(

    I can't say I've had it that bad. I feel for you and am lucky I've only seen mild symptoms thus far. I've dealt with the iron loss and also am prescribed Apriso for life. I wish you a healthier road ahead and will offer any support I can for you.
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    @kacowgill99 thanks. I ignored symptoms forever thinking it was just my IBS (even though I was bleeding, etc) so I was very, very ill when diagnosed. My GI is even thinking my IBS diagnosis might have been mild Crohn's the whole time (they didn't do a scope at the time of IBS diagnosis) but after 15 years without treatment it went out of control.
  • Sarc_Warrior
    Sarc_Warrior Posts: 430 Member
    I was diagnosed with an autoimmune disorder in January. I find everybody inspiring in this post and wish you the best.
  • arlzixxx
    arlzixxx Posts: 30 Member
    I also have IBS/Colitis feel free to add me ☺
  • janet6567
    janet6567 Posts: 129 Member
    Have had IBS-C as long as I can remember. Was told for years: more water, high fiber, more exercise. IF ONLY it were that easy. Was diagnosed 15 years ago as having IBS-C Have taken Zelnorm (worked but now off market) and am taking Amitiza. Works sometimes. This is a miserable disease!!
  • mhosner
    mhosner Posts: 264 Member
    I have IBS-C and for years I have suffered with bloating.. I look pregnant all the time and I hate it. I can go days and days.. sometimes up to 2 weeks without a bowel movement. Then I will eat something like movie popcorn and bam in the bathroom for hours crying. Even dieting is tricky. So many veggies say lead to bloating. I don't want to chance it. What are some snacks IBS-C peeps have found that don't upset tummy either direction?
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    kacowgill99 wrote: »
    I'm shocked but relieved of how many people are in a similar boat as myself. I was diagnosed with Chron's Disease at 18. While I feel I have had very mild symptoms for the past 12 years, it kind of took cutting sugar & grains to get myself to realize that all the bloating and being uncomfortable after eating was not normal. This literally went on for years before about 3 months ago when I changed my diet. After a mild flare when I transitioned from junk food to real food, I have been symptom free ever since.

    @kacowgill99 that is an awesome report. I was trying to chase away my 40 years of joint and muscle pain when on a hunch I left sugar and all forms of all grains cold turkey Oct 2014. 30 days in my pain was well manage. Six months in my 40 years of life defining IBS or whatever it was had fully resolved and still is resolved today.

    The pain manage let me start moving much better. Resolving the 40 years of IBS gave me a new lease on life along with many other health benefits. Afterwards I got upset it took me until age 63 to learn my health issues were diet related.

    Best of continued success and thanks for sharing.
  • cariduttry
    cariduttry Posts: 210 Member
    ibs-d plus gluten intolerance over here! on top of gluten, i do better with no dairy, celery, peppers, and possibly whatever wash is used on bagged lettuce. gotta love it! i sent you a FR.
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    @janet6567 I was surprised to learn the Amitiza in capsule form containing MCT's. I am eating about 5 tablespoons of coconut oil which is 62% MCT oil and many others on MFP drink MCT and/or coconut oil for the anti bacterial, viral, fungal properties and the ketone effect. Best of success in finding your resolution to getting free of health issues.
  • a_candler
    a_candler Posts: 209 Member
    I don't have it but my mom has for 30 years. But what she's realized is that she has a dairy sensitivity (as do I and my son's that's how we figured out her). She cut dairy and gluten and even though she has the occasional episode it's nothing like she has dealt with in the past. Her's can also be triggered by Stress.

    Coalz-my mom has been looking into leaky gut. Can you tell me what treatment worked for me? It would be great for her to know.
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    The one thing that sticks out in my in looking into ways to prevent or otherwise heart disease, cancer, diabetes, Alzheimer's, etc is we are all different from each other often and we can even be different than ourselves past, present and future.

    Food may be a killer but chronic stress is even more so. Fix yourselves as soon as possible because age makes recovery much slower but in my case is seems doable to so yet unknown level.
  • brb_2013
    brb_2013 Posts: 1,197 Member
    Numer1ca wrote: »
    That's my official diagnosis when I failed the celiac test. Mine is controlled with diet and trying to keep low stress. Of course, anxiety and OCD doesn't help with that. ;)

    I believe my IBS is also stress related. I'm trying to cut out many FODMAP foods for a while and see if I can get some relief.
  • cgvet37
    cgvet37 Posts: 1,189 Member
    I have had it for almost 20 years. It never bothered me when I lived in Hawaii while in the service though. Since I have lost weight, it has gotten better. I started taking a probiotic, and that seems to help as well. I could never narrow down anything that made it flare up.
  • wannabtight
    wannabtight Posts: 187 Member
    I have IBS, diagnosed after all of the other tests failed to show any problems. My diet is gluten free, I am unable to eat red meat, pork, corn, peas, soy, onions, milk, cream, sour cream, most cheese, insoluble fibre, strawberries, and the list goes on. It's hard to eat healthy when you can't eat anything. I eat a lot of chicken and rice and juice my greens.
  • GaleHawkins
    GaleHawkins Posts: 8,159 Member
    @wannabtight it is great you did find a way to eat with IBS.

    In trying to find a way of eating to cut my joint and muscle pain I finally left sugar and all forms of all grains Oct 2014. That addressed my pain well but 6 month on the WOE my 40 years of IBS had resolved. To stay in nutritional ketosis I do keep all carbs <50 grams daily but after my gut healed I did add back dairy products that are mainly cream based (what floats to the top in raw milk).

    I found out my level of 'bad' gut microbes were putting a whipping on my good ones. The bad ones must have faded when they had very few carbs to feed on. I love my new way of eating. My macro for the last 20 months has been 5% carbs, 15% protein and 80% fats. Being 65 and this WOE has resolved some many 40 year health problems I plan to keep this plan for life since I love what can now eat.

    Wish you the best.
  • coalz
    coalz Posts: 308 Member
    a_candler wrote: »
    I don't have it but my mom has for 30 years. But what she's realized is that she has a dairy sensitivity (as do I and my son's that's how we figured out her). She cut dairy and gluten and even though she has the occasional episode it's nothing like she has dealt with in the past. Her's can also be triggered by Stress.

    Coalz-my mom has been looking into leaky gut. Can you tell me what treatment worked for me? It would be great for her to know.

    It was a few years ago so I can't recall specifically. I think it was about a month long process for me. It entails a food elimination diet with two weeks of restricted foods & a series of supplements including a meal replacement shake taken twice daily. all which is meant to remove toxins and then help rebuild the lining to your intestinal track. It was a brand called metaGenix (I think) The mango flavor was actually really yummy. So the treatment overall including products purchased & DR visits is a bit pricey but the quality of life is priceless!
  • luv2bowl6
    luv2bowl6 Posts: 62 Member
    Ibs here feel free to add me
  • Mirasaki
    Mirasaki Posts: 27 Member
    I am IBS-C and all I can say is god bless all the IBS-D people, I don't know how you cope with it.
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