Desperate.....need help

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So I am looking to the experts....you. OK I am 36, quite heavily disabled with psoriatic arthritis and quite immobile. I have reached desperation over my weight. I need to do something drastic and quickly. I am on the NHS waiting list for a gastric bypass but it's a 2 year wait. I have been doing slimming world for the last 3 years and it has been a huge fail. I have looked into the Cambridge diet but as a mum and wife I just can't take that amount of money out of the pot for me. I currently hate food. Would gladly never eat again so motivation isn't a problem. I take amitytripline and methotrexate which both cause problems with weight loss. I have decided that I am cutting the amitytripline down as much as possible as of today so hopefully might start losing again. I have checked with my docs before anyone tells me to. So I am 5ft 2inches and 21 stone. Might help you understand that I am desperate. Am I said my mobility is limited but in the process of trying to find a disabled access pool so can go swimming. Mfp is putting my calories as 1470. Realistically do I need to drop that? I am asking you.....the experts who live and breath this. Also looking for some friends to help keep me going. Thanks in advance for any input xx

Replies

  • T0M_K
    T0M_K Posts: 7,526 Member
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    i would suggest checking other places on the internet for calculating your BMR. look up scoobysworkshop.com/calorie-calculator/

    are you not under any doctor care that can tailor a plan for you? if you are on a wait list, i would think you have some medical support that can aid you. you MUST track everything you eat. weigh your food. stay within a medically advised calorie limit. if you are heavily disabled, i would think you could have a doctor create a diet/calorie limit for you. you sound desperate. seek help that you can actually see and talk to and dont do this alone.
  • CattOfTheGarage
    CattOfTheGarage Posts: 2,750 Member
    edited July 2016
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    Hang in there. I agree that a medically prescribed calorie limit is better than mfp's standard allowances in your case - once you have a calorie limit from your doctor or dietitian you can enter that into mfp manually.

    I also agree you should be aiming for a slower weight loss, possibly as slow as half a pound a week, because with your limited mobility you will not be able to take much exercise, so a fast rate of loss will leave you with an unsustainably low calorie limit which will cause you to quit.

    I understand your desperation and your feeling that you "would gladly never eat again" but don't let this lead you to set unmanageable goals. You may feel like you never want to eat again, but your body disagrees, and if you try and fight it head on by starving yourself, you will lose that fight. Slow and steady wins the race, as well as using all the tools at your disposal, and good medical advice is your most valuable tool.

    Unfortunately, general practitioners are often not very knowledgeable about nutrition and weight loss, and the same is true of specialist consultants. Try and get a referral to a dietitian, they really know their stuff and will be able to advise you on a good calorie goal and tips on how to achieve it in your specific situation.

    What is your experience of trying to lose weight in the past? That would be helpful to know, because there are a huge number of things to learn which can make the difference between weight loss being gruelling and impossible, or a completely achievable goal.

    Read, read, read the archives here, they are positively dripping with good advice and valuable experience. And seek out myfitnesspal friends who have similar challenges to you in regards to mobility and medical issues, there are bound to be plenty on here and having some people who can join you on your journey could be a huge help to you.

    You can do this.
  • Andreadodsworth1805
    Andreadodsworth1805 Posts: 11 Member
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    Thank you so much for your answers. Some really great advise to get me going. I am 5ft 2 and did select 2lbs a week but I think at this stage I need to be grateful for a loss instead of desperate to see big numbers. I hsve some slimming world for a long time which is a healthy eating plan but it is free foods instead of weighing and measuring and I just simply have lost nothing over the last year. I am a bit of a control freak so think psychologically doing it this way will help me as I have the control here with the weighing and measuring and counting. I think I need science at this point to help me get some faith in myself again. I really don't want the gastric bypass. I want to do this myself. So of I need to plod along at half a pound a week then that is what I have to do. Thank you so much for taking the time. All your replies have been amazing x
  • CattOfTheGarage
    CattOfTheGarage Posts: 2,750 Member
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    I think at this stage I need to be grateful for a loss instead of desperate to see big numbers.

    Bingo. Weight loss is a long game. Too many people drop out altogether through trying to do it too fast. And if you like science, calorie counting is the method for you.

  • capaul42
    capaul42 Posts: 1,390 Member
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    Best of luck with your journey! (As I have no advice other than what's already been said)
  • dlkfox
    dlkfox Posts: 463 Member
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    You can do it! Lots of great advice on this thread.
  • grenachegirl
    grenachegirl Posts: 19 Member
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    Hi
    Firstly I'm not an expert, far from it, but I've struggled with my weight from my teens, I'm 43 now. I too have mobility issues, a type of arthritis called ankylosing spondylitis and fibromyalgia so I know what it's like to be in a lot of pain, I've also lost 3 inches in height due to the spinal issues so I'm also 5ft 2. I'm currently on anti-tnf treatment which I inject fortnightly, without it my life would be seriously curtailed. But it's still incredibly painful to walk or stand for any length of time, I started walking at Xmas, small distances + at a very slow pace. I've worked on increasing the distance + pace and I'm now enjoying it, but it wasn't easy.
    I've also dabbled with slimming world with mixed results, but I find the precise nature of counting every calorie much easier.
    Please don't be disheartened, plodding along is good, at first I lurked on these forums taking in all the advice + tips I could get, within weeks I was getting results which kept me motivated.
    We can do this, even with these horrendous mobility issues!!! And just know - you are not alone.
    C xx
  • meritage4
    meritage4 Posts: 1,441 Member
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    there are many chair exercises.
  • kommodevaran
    kommodevaran Posts: 17,890 Member
    edited July 2016
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    I think your eating habits and your relationship with food should be your number one priority, it would help you to work on that first. Move now if you can do it without hurting yourself, but you need to focus on one area at a time; you can get the traction from exercise when those things are more settled. You have to eat and you'll be eating several times a day for the rest of your life, so you better make that enjoyable. At 21 stone and sedentary, your TDEE is possibly around 2500, and 1470 calories per day would amount to a weekly loss of 2 pounds on average. At this stage, it's important to get some weight off you, so I'd say go for it. Just be sure you are eating properly - you have to be strict at such a low intake, so no luxuries, but no starvation either - a wide variety of fruit and vegetables, lean protein and dairy, some fats, and some whole grains. Pick foods you like, or at least, don't try to force down foods you hate. Anything you can do with real food and an intact stomach, will be better for you than shakes and surgery. Please be kind to yourself.
  • Gena575
    Gena575 Posts: 224 Member
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    For movement, just try to get in 10-20 extra steps a day for a week. Then up it. No need to be out jogging or jumping rope! This link, while geared to the older set, has some good low-no impact moves that maybe you can do 1 or 2 of a day. Something is better than nothing! http://www.grandparents.com/health-and-wellbeing/exercise-and-de-stress/chair-exercises

    And as to food, give yourself a good allowance...set mfp to 1lb a week and focus on that for a bit or while you wait for a dietician appointment. Eat foods you like and try to pick some that have good protein and fats simply because they help most folks stave off hunger longer. Weigh and measure, log even if it's ugly and celebrate even the tiniest victories. Oh, and drink plenty of water! No need for some randomly chosen gallon or 8 cups. Drink until your urine is sort of pale. Water helps lubricate all your parts...and more water means moving more to pee! Win win! Lol!

  • VintageFeline
    VintageFeline Posts: 6,771 Member
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    I just want to make a quick point about your medications, they are not causing any issues with your attempts to lose weight other than potentially appetite increase and that would only apply to the amitriptilyne. So as long as you get your calorie intake accurate your medications will have no impact on your loss. If they are working for you and effective, no need to come off just for weight loss purposes. I think the "free" foods of Slimming World have tripped you up and have caused you to eat more than you realise.

    However, due to the potential appetite increase, if you find after a few weeks aiming for 2lbs loss you are still hungry despite making dietary tweaks then you have room to up your intake a little. It will slow the losses but make it more sustainable.

    And keep coming back here for support.
  • MaybeLed
    MaybeLed Posts: 250 Member
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    Every journey starts with a step, or whatever quote you like.

    As like me you have the joy of the NHS, go back to your GP. There are plenty of schemes available that promote a healthy lifestyle.

    Including (but not limited to) free help/weigh-in groups, referrals to dieticians, (in the UK dieticians are the only ones with proper qualifications and a protected job title) free gym membership and referrals to specialist councillors.

    as @godlikepoetyes says, get support around you from people here. but get your information from MFP with a touch of cynicism.

    http://www.nhs.uk/livewell/loseweight/Pages/Loseweighthome.aspx

    The NHS is a wonderful resource.
  • Andreadodsworth1805
    Andreadodsworth1805 Posts: 11 Member
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    Sorry only just seen these replies thank you. I can't do chair exercises due to surgery in both shoulders, elbows and wrists. My body is an utter nightmare. I do a little walking with crutches. I did 4 weeks of 1470 calories and put on 2lbs and I did not cheat or not be accurate. Two different doctors have told me amitytripline is a problem and no one can find another reason for nothing working. I spent two weeks in hospital recieving a nasal tube feed and should have lost considerable weight. I lost half a pound. My doctors have referred me for a gastric bypass as they genuinely can't suggest anything else. But the waiting list is 2 years and I am pretty desperate. I know the only exercise I can do is swimming but my local disabled access pool is currently closed. Feeling a little hopeless. Please don't think I haven't tried because this has been going on over a year.
  • girlwithcurls2
    girlwithcurls2 Posts: 2,262 Member
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    Keep calorie counting, and when you can get into a pool, even pool walking or jogging will help. In the meantime, if you were reading what you wrote from a friend's perspective, would you be so hard on that person? Be your own best friend :heart: You are worth it. You have every right to a happy life. Think of weight loss as a plan for the rest of your life. You don't need to see big numbers drop or make this happen fast. Get up each day and make good decisions. You can do this.
  • luveydov
    luveydov Posts: 36 Member
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    I am in a situation very close to yours. I have RA and fibromyalgia (and likely chronic fatigue.) I have been trying to get to a "normal" weight ever since my first diagnosis many years ago. I don't know if it is the medications I have taken over the years or the diseases themselves, but my energy expenditure is incredibly low. Of course some of it is low activity, but I have had periods of really good cardio and weight lifting with no weight loss. I have done MFP using 1,500 calories and gotten nowhere. Going lower just wasn't doable for me.

    I am on a medically supervised diet now and have finally started losing weight somewhat steadily. It is a very low calorie low carbohydrate diet, using high protein packets of food provided by my doctor's office. My understanding of the science is that the low carbohydrate makes the low calorie possible because it reduces appetite. The high protein helps to maintain muscle mass. Fat consumption seems to be moderate, usually working out to what MFP recommends.

    So, the packets of food are quite expensive, but I've found that there is an extensive internet presence of groups that use less expensive alternatives available through mail order. Google "Ideal Protein Alternative" to find what I am talking about.

    You can also find the Ideal Protein protocols online. Print this out and take it to your doctors and see what they have to say about it.

    Also, regarding your other med. My GC recently prescribed a low dose of generic prozac which had the surprising affect of reducing my binge type eating and eating when bored, sad, anxious, etc.

    Good luck to you.
  • geneticsteacher
    geneticsteacher Posts: 623 Member
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    I am on a low dose of Amitriptyline (migraine prevention). It has not prevented me from losing weight.

    Weigh and log everything! Ask your doctor for a suggested calorie goal. I started at 1200 calories (I am old and female) here and really didn't have a problem with it. ANY movement will be beneficial. Post-surgery I started with simple chair yoga. Good luck!
  • e9196tep
    e9196tep Posts: 57 Member
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    I've been on methotrexate 2 weeks and I'm having a hard time getting my calories over 1000 due to nausea. Taking other DMARDS for RA as well as prednisone. The fatigue is intense so exercise is always an afterthought. Just log everything! It's a long term effort. It took me 2 years to lose 40lbs. Slow, slow,slow. But the persistence pays off eventually. Just keep at it. ❤️