Anyone here with Crohns/Ileostomy?

farrandeel
farrandeel Posts: 5 Member
edited December 2024 in Introduce Yourself
Hi all. After a break of a few years I finally came back to the app. Just wondering if anyone on here has an ileostomy and if so any tips to help the app work best.
Thanks.

Replies

  • singingflutelady
    singingflutelady Posts: 8,736 Member
    Crohn's yes ileostomy not yet
  • farrandeel
    farrandeel Posts: 5 Member
    Hopefully never! How is your health? Just looking for any tips. I find if Crohns is bad I tend to stick with carbs like toast and crackers which don't help the waistline
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    I'm doing ok at the moment. Not great but not bad. I'm on Remicade and imuran so I'm getting neverending infections. I have fistulas so I will probably get a temp ileostomy in the not so distant future (been on Remicade for a year and 6 months and it hasn't closed them yet). My food intake is opposite of what most people consider healthy. I can't do most fruits and veggies, fiber, whole grains, nuts, seeds, legumes and spices as they all are triggers for me.
  • farrandeel
    farrandeel Posts: 5 Member
    I was on Remicade a few years back but it stopped working unfortunately. Fistulas are awful aren't they. I had to have a hysterectomy last year due to some going from bowel to womb. I find losing weight very hard with an Ileostomy because, like you, I can't have most fruit, veg, nuts etc. I use the nutribullet alright but it's hard to just have that as a meal. I love food too much lol!! Having a bad week with joint pain so all I want to do is comfort eat.
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