Anyone else lost weight on long term steroids?

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  • mindypearce
    mindypearce Posts: 2 Member
    I just posted on the "introduce yourself" forum...I was diagnosed last week with adrenail deficiency....afraid to become sick after speaking with my Endo nurse..and I have a surgery coming up in April that I wasn't worried about til now..it will be laparoscopic...I'm also afraid to eat bc of all the weight gain stories. My job requires me to be around kids all day and I read hydrocortisone weakens the immune system...great!! Am I going to ever be normal and not,have this on my mind day and night? I wanted to begin exercising..but afraid it will be too stressful on body....can you slowly get off steroid once I am leveled???
  • gleggio
    gleggio Posts: 10 Member
    mindypearce-You would have to speak with your endo to find if you can ever get off steroids based on your diagnosis. It took me a while to stabilize my mess when I was first diagnosed 26 years ago with Addison's Disease and Hypothyroidism. I will never be off corticosteroids. Now, I feel lucky that all I have to do is take my meds in the morning and I forget it otherwise. I may get a touch more tired at times (which could just be age ;) but most of the time I feel pretty normal.

    I was a teacher for all but 4 years of having Addison's and didn't feel it caused me to get sick any more-in fact for 5 years I didn't miss a day from illness. The only time I've become seriously ill is when I had the flu and went into Adrenal crisis (I was so out of it, I didn't take extra meds). I retired in June of 2016 with 30 years of teaching but am work camping as we travel in an RV.

    You do sound worried-it's more the unknowns, it seems. It is a shock to receive the diagnosis-I still remember. But I've lived with it for a long time. I take care of myself, eat pretty good- but enjoy life. I eat around 1200-1400 calories most days of filling but not high caloric foods and higher on days when I want to enjoy pasta and dessert. It's tough keeping the weight down with being female, past menopause and taking corticosteroids. If you have any questions, please feel free to message me.
  • lisakarenza
    lisakarenza Posts: 76 Member
    My 11 year old daughter takes steroids 4 x daily . I'm very wary of her weight as I'm overweight so making sure her diet is healthy and she exvercises . This thread has just made me realise it's probably the steroids & growth hormones she takes that aren't helping !! Not alot we can do though, she's not overweight now,we will just have to always keep an eye on it I suppose x
  • sonitabird
    sonitabird Posts: 1 Member
    Hi there, Most of the folks here seem to have Addisons. I have respiratory ulcers and chronic uncontrolled inflammation. The doctors can not figure out why so they just give me prednasone. FRUSTRATING!!
    I started the Keto diet to control the inflammation and loose weight from the prednasone. I am also a nutritionist, chef, and past personal trainer I might add, so I do understand food. I do NOT understand PREDNASONE!! (despite a ton of research)
    I have been taking Prednasone over the last two years and put on 30lbs total- I am 5'7.
    I started KETO/LCHF Jan 2 and before starting, my asthma- breathing was doing great, I was down to 5mg of prednasone. When I started KETO The weight started to fall off, Today- Jan 27th I am at 190- loosing 15lbs. total- so I am happy, but I seem to be stuck at 190lbs.
    I have had to increase my prednasone to control my breathing to 10mg (Jan 15th) and it is still not controlled. The scale stopped moving on Jan 15th!!! The day I had to increase my prednasone.

    I am doing intermittent fasting, I finish my dinner at 6pm and do not eat until 1 the next day. I do bullet proof coffee in the morning. My calories are total 1300 per day. I have kept my carbs below 20g, most days only consuming 15-17. I am not hungry, I am exercising daily. (barn chores, lifting 100lb bales of hay, mucking stalls, walking my dog 40 min.)
    I am BEYOND frustrated. I do feel the inflammation is /has gone down a bit as I am not as puffy when I get up in the morning, feet, hands, face.

    ANY HELP OR ANY INSIGHT AS TO WHAT IS HAPPENING WITH THE PREDNASONE WOULD BE WONDERFUL!!!
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