Are you a Ostomate

Navydaddjtc
Navydaddjtc Posts: 4,166 Member
edited November 2024 in Motivation and Support
Good Morning
My name is Greg and I am a Ostomate. I have a non reversal Ileostomy for the last 2 years due to a severe infection cause by Diverticulitis. My entire guts were removed with the exception of the leum or the lower section of the small intestine. Please join me http://www.myfitnesspal.com/profile/Navydaddjtc with my quest to eat the right foods and do the right exercises for us Ostomates. I am also on fitbit https://www.fitbit.com/user/3MFWZ8. Please join me in creating a better life with an ostomy.

Replies

  • singingflutelady
    singingflutelady Posts: 8,736 Member
    Hi. I'm not yet but I'm waiting for a total colectomy with permanent ileostomy and 3-6 months later proctectomy/Barbie butt. I have fistulizing crohn's disease and I have 3 horrible unrepairable fistulas which is why they are doing it.
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    If you only have your ileum do you have short bowel syndrome?
  • Navydaddjtc
    Navydaddjtc Posts: 4,166 Member
    No on the short bowel syndrome. A portion of my bowels were left that were not infected by the infection. I do not have a barbie Butt. I still have mucus discharge every so often and have to irrigate it to clean out the discharge so it will not chafe my cheeks on the inside.
  • singingflutelady
    singingflutelady Posts: 8,736 Member
    Ok cool. My fistulas originate in my rectum plus I have Crohn's there so I definitely don't want to keep it. Crohn's being autoimmune has a high likelihood of attacking a different section of your GI system after you remove the diseased part so I'm hoping it doesn't attack my small intestine a.
  • ditditdee
    ditditdee Posts: 38 Member
    I am an ostomate for the last 2 years. I have a permanent sigmoid colostomy due to a birth defect.
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