Weight restored from anorexia but still need so many calories to feel well.

Bella77007
Bella77007 Posts: 78 Member
edited November 2024 in Motivation and Support
I was diagnosed with anorexia last October, initially I was in denial about the serious state of my health but by December my BMI was a grim 15.8, I was so unwell and told that if I did not accept help I would be dead in 6 months.

I did accept help and it was like a light switched on in my head that I was determined not to let it kill me, I live in the UK, I could not afford private health care so it was all done via the NHS, they wanted me to go in as a day patient but because I was so commited to working with them it was eventually agreed that I would be treated in outpatient, they would work to get me weight restored and then follow it up with therapy, I am still waiting for the therapy due to long waiting lists but I am completely restored now.

I have even overshot my pre anorexic weight by about 7-8 pounds and although I don't like it I do accept that it is healthy and that I should not be looking to lose weight at this point in my life, my BMI is 20.5, I can just about accept that.

So here is my problem, I was given a meal plan of 1600 calories to recover on, it was never really enough and I started to binge, my treatment team ignored my concerns, I had gained less than 3 pounds on the 1600 over a 2 month period of time but was never told to increase it and then hunger hit and it hit very hard, of course I did then gain weight but I never felt it was a healthy way of doing it.

It might be a good time to explain that the NHS is horribly underfunded and as soon as you hit a healthy BMI the support does tend to fade away, at BMI 19 I was discharged from the dieticians and nurses and told to carry on trying to stick to 1600 calories and wait for the psychotherapy, they said to go to 1800 if I needed to but I don't even feel well on that.

I try extremely hard to stick with 1600-1800 but I always feel really hungry, extremely weak and frequently on the verge of fainting, so when that happens I panic and eat until I feel better which is often 3000-4000 calories per day and then I feel disgusting and restrict for a couple of days, go back to 1600-1800, still feel dreadful and so it goes on like a constant cycle.

I was really pleased that I had stuck to 1800 for a few days despite feeling unwell but today I had breakfast at 8am, went out and by 10.30am I was feeling dizzy, lightheaded and on the verge of fainting so there I am sat in the middle of a huge shopping centre crying and wondering what on earth I am doing wrong here.

I have eaten about 4000 calories today,maybe more and it honestly took that much to stop feeling so unwell.

Of course I am really worried that I will gain too much weight with all of this going on and I am trying to find some balance, I will say that in the past 3 weeks despite eating at the 3-4k calorie range I have started to maintain rather than gain but eventually I fear it will catch up with me and I am scared that if I gain too much I will slip back into my restrictive behaviour and relapse, I probably only maintained because I had 2 days of restricting each week because it was scaring me that I had been eating so much overall.

I just do not understand why I need to eat so much to feel okay, I eat good foods, plenty of protein, complex carbs and calcium but I still feel weak and awful unless I am putting away at least 3k daily.

I am only 5 ft 1, I am 108 pounds, 40 years old, I am at most lightly active because I have zero energy most of the time and I would expect my needs to be far lower than 3000 for a woman of that size and activity level.

My body is a complete mess too, I have a lot of tummy fat which I know is common after restoring weight but I have visible ribs and a collar bone that is way too prominent, if you looked at my stomach you would think 'healthy but needs a good tone up and maybe lose a few pounds' but if you looked at my upper body you would think I was pretty emaciated.

I am just absolutely lost, gaining weight with anorexia is hard enough but now I am at that healthy weight I just want to concentrate on accepting myself, feeling healthy and maintaining it, I cannot carry on with the days of non stop eating but I can't cope with how I feel physically when I try to get some balance and eat my meal plan allowance, surely I should not feel like passing out if I am eating 1800?

Has anyone else restored and found that they need a very high intake to feel well?

Am I missing something here? I don't understand it and because my BMI is healthy I am not eligable for anymore help from the treatment team, being discharged means you are on your own and this 1600-1800 range they gave me is really not cutting it with my body for some reason.



Replies

  • leahisnotmyname
    leahisnotmyname Posts: 20 Member
    Hi. I'm a recovering anorexic as well. I don't know that I can offer much advice because my recovery was an extremely slow process, starting at only a couple hundred calories and moving it up a couple hundred more every few weeks. I'm in the US, and I did this privately with my therapist- not at an ED clinic as it sounds like you did. But I just wanted to reach out and let you know I am here to talk or listen if you ever need to. Feel free to add me, if you'd like
  • lrob98
    lrob98 Posts: 27 Member
    Hello, I don't have any experience with anorexia...and I'm not a doctor. But I was wondering if your blood sugar/glycemic levels have been checked/monitored? Your symptoms sound a lot like hypoglycemia/low blood sugar.
    Wishing you the best & good luck!
  • HeliumIsNoble
    HeliumIsNoble Posts: 1,213 Member
    edited May 2017
    I was once told that people recovering from the effects of anorexia/prolonged starvation need to gain weight up to the top of the healthy BMI range (so 24-25), for full physical recovery, and that simply reaching the bottom of the healthy bmi range is not enough. Could you ask your GP about that?

    If you can't, have you already heard of B-EAT? It's an eating disorder charity (UK) and I hear very good things about them. https://www.b-eat.co.uk/

    The hunger you're feeling is a documented effect in people who have been malnourished. It is not just you. I would guess (I am not a doctor!) that the reason why people recovering from anorexia feel such strong hunger is because they have these greater nutritional needs.

    If it wouldn't be triggering for you, you could read about the Minnesota Starvation Project, which was a study into the physical effects of starvation, both during and afterwards. Some men volunteered to live on restricted rations for three months during the latter phase of the Second World War, so that scientists could develop programs for rehabilitating the victims of famine in wartime/post-war Europe.
  • ceramiclover
    ceramiclover Posts: 1 Member
    Why not see your GP? Maybe symptoms are nothing to do with your anorexia and there's another reason for how you feel.
    Are you exercising too much?
    Are you getting enough fluids?
    I think you've done amazingly with your recovery so far so don't be stressed it'll make you feel worse!
    For your size you should be maintaining your wt on suggested calories - so maybe try a gentle increase and try to avoid too much see sawing up and down as that might add to symptoms.
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