Any one with Gastroparesis out there?

I am sorry your mum has been diagnosed with this, do you know what kind of medication they have put her on? I found that a lot of the anti-acid or anti sickness pills only aggravated my stomach further. I would suggest your mum makes a food diary and eats small amounts of different food groups to determine what is safe for her to eat. I have found that I can eat Warburton’s bread fine but Hovis and Kingsmill makes me very ill, so I guess it is up to each person’s body. If she has trouble at night with nausea suggest to her lying on her left side with a pillow underneath her so she is slightly raised. I went weeks being ill through the night before I caught on to that one, it may not help if she has acid reflux in the morning but at least it stops you being so nauseous you cannot sleep. Thoughts are with her and I hope she learns to cope well with it, in many people it is a very manageable illness.

I hope surgery goes well for you and I am sorry you have been having a rough deal with the illness. If you ever need someone to talk to my mail is always open.
I was on Metoclopramide and then they moved me onto Domperidone, and I felt worse than ever, so I stopped taking them, silly I know but if you can't keep the pill down bit of a pescription waste. I have been through 4 different anti-acid pills to help with the reflux and none of them helped much either. They put me on anti-anxiety pills as my doctor told me the more I worry that I am going to be ill the more I will be ill. They helped to some extent but I still struggle to keep food down. I have been trying to average 1200 a day in calories, but I can just about keep food down for 30 mins on a good day so who knows what I am actually taking in. I find that some weeks it flairs more than others, this week I haven't been able to keep down so much as a glass of water, but last week I managed 3 meals a day for 3 days in a row

My GP doesn't seem to be interested in my gastroparesis, he thought I was making it up at first because I was gaining weight *rolls eyes* He sent me to a dietician who just told me to avoid juice and maybe if I exercised and ate less I wouldn't feel as sick...thanks for that one lol. I really do have to force myself to eat sometimes as I get so fed up with being ill, but I end up making myself ill sometimes especially if I am going out for the night because I would rather be hunger and not feel sick than keep my food and feel like crap the whole night. It is a bit of a social life downer as I can't go out and eat with friends and half a small glass of wine is enough to set me off. I really appreciate you telling me your story, I do not know anyone else with this and it is nice to have someone to share with, most of my friends don't realise how upsetting it is, they just see it as me being boring for not wanting to drink :S

I hear you there, I am a uni student so I often have a lot of downtime, enough to go to the gym an hour 4 times a week, swimming twice a week, zumba once and I walk everywhere. When I first started feeling sick and putting on weight my parents just said it was too much drinking (I don't often drink) and that I was making it up. They couldn't understand why I was telling them I was always ill but I was gaining. Even now with a diagnosis they think it is made up, it doesn't help that my sister is pregnant and has Hyperemesis gravidarum, so she is ill at every meal same as me, only difference is she has lost 4 stone so that is more cause to say I am telling fibs. I am going back to the doctors soon to ask if there is anything else I can do to try and lose weight, if she says exercise again I will throw my gym log book at her lol. It seems extreme but I wanted to know if there was a surgery that could be done to help me. My other sister has Cystic Fibrosis and had a terrible reflux, she had her stomach twisted and has been fine with eating ever since. Seems drastic but I am getting sick of being sick.