At a loss

gypsyrose85 · June 2017

tcunbeliever wrote: »

bellydance - no impact, fun, and still exercise

However many of the movements encourage flexibility and that is a no no for EDS-ht

capaul42 · June 2017

Check hotels in your area as well. A lot have pools that open to publicly for small fees

purplepadres · June 2017

Perhaps consult with a physical therapist?

firef1y72 · June 2017

Sorry but what connective tissue disorder do you have? I have EDS type III (hypermobility) and doing no exercise actually made me more at risk of dislocations and other injuries as well as increasing pain levels. By strength training I've strengthened the muscles around the joints making them far more stable and less painful.
Yes we have to be careful when stretching and work with a physical therapist (I also have a personal trainer that understands the condition), but the idea of no exercise that stresses the joints is just crazy.

Let's get this in perspective before I started exercising and strengthening my body I would sublex at least once a month (generally my ankle), couldn't get in and out of the bath on my own or even up off the floor. By making small improvements that add up to big improvements, I can now run a half marathon (not fast or pretty but I can do it), squat with my bodyweight on my back, deadlift 97.5kg, take part in high impact classes such as Insanity and do countless every day activities that I couldn't before. My ankle has only sublexed once in a year and I was only off my feet for a couple of days instead of the weeks I used to be. Yes I am still in pain, it's part of life for us bendies, but I've reduced my painkillers be about three quarters and it doesn't stop me doing anything.

The point is that as out joints are unable to stabilise themselves we need to strengthen the muscles around them to do the work. But we also need to keep those muscles fairly flexible, they tend to be tight because they have been trying to stabilise the joints so we need to use careful stretching.

Oh and unfortunately the pain may get worse before it gets better, I had a few months of very severe shoulder pain when I started, because I was forcing those muscles and joints to do things they weren't used to (something many don't realise is that due to injury and fear of pain we often have a smaller range of motion despite the hypermobility). But now the only pain in my shoulders is DOMS after a good workout.

DancingMoosie · June 2017

^^^this is exactly what I was thinking, but didn't say because I am not really familiar with that disorder.

peleroja · June 2017

Honestly, while I am sympathetic to your medical issues, I have to say that if you want to find a reason not to exercise, you will. And if you really want to find something that works for you, you will as well.

There have been a lot of great suggestions here (like the Leslie Sansone walking videos, low-impact stuff like Pilates, recumbent bikes, ellipticals, bodyweight programs, etc) that I am almost positive you could find a way to adapt to your needs with the help of your doctors and/or physical therapist or similar. But you have to want to, know what I mean?

firef1y72 · June 2017

gypsyrose85 wrote: »

tcunbeliever wrote: »

bellydance - no impact, fun, and still exercise

However many of the movements encourage flexibility and that is a no no for EDS-ht

I really think you need to see an expert in hypermobility, a physical therapist at the very least. It seems as if you've been given some very poor advice and are using your condition as an excuse for doing nothing. I was doing hill sprints today, does that sound like doing nothing to stress the joints? Of course it doesn't, but it was protecting them far more than sitting on my bum doing nothing. Embrace your flexibility, I can squat lower than 99.999% of people I know thanks to my hypermobility. But I had to work on rebuilding that range of motion.

stanmann571 · June 2017

firef1y72 wrote: »

gypsyrose85 wrote: »

tcunbeliever wrote: »

bellydance - no impact, fun, and still exercise

However many of the movements encourage flexibility and that is a no no for EDS-ht

I really think you need to see an expert in hypermobility, a physical therapist at the very least. It seems as if you've been given some very poor advice and are using your condition as an excuse for doing nothing. I was doing hill sprints today, does that sound like doing nothing to stress the joints? Of course it doesn't, but it was protecting them far more than sitting on my bum doing nothing. Embrace your flexibility, I can squat lower than 99.999% of people I know thanks to my hypermobility. But I had to work on rebuilding that range of motion.

The real question is, what do you want to do.

Some doctors, even specialists aren't prepared to deal with someone who is otherwise young and healthy and willing to get more healthy and strong.

Since this is a new diagnosis, I understand your willingness to listen to your doctor, but a PT or a support group is probably a good idea.

At a loss

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