Chronic pain and weight loss?

I have Chiari Malformation.. I take medicine for it and have been advised by a neurologist to have surgery, however I don't have insurance. So for now I deal with it, I still work 84 hours a pay period and now I work out 3-4x a week (my PCP says it's okay). Some days my symptoms are worse then others and my head and body just kills me, but since changing my diet and working out I feel like it has helped me more mentally and even physically then anything else. I don't have anyone else with Chiari to talk too since it's not a common thing (even though Google says it is.) I also stay away from Chiari support groups because most of them say to not work or workout because it will only make you worse, but I'm sorry I can't stay in bed all day, bills don't get paid that way. If you need a friend who can kinda relate, your more then welcome to add me.

I also struggle with chronic pain and doctor visits just leave me irritated and disappointed. I made up my mind that until I lose the weight I've gained the last 3 years, I may never know if it's the weight ( I've been overweight since a child) or something deeper. Now that I have kinda forced my physician to focus only on weight loss, I feel better just knowing someone is counting on me to take accountability. Some days waking up and getting out of bed is such a struggle. Dealing with pain when all you want to do is take walk outside is depressing and people just don't understand how hard it is to do simple tasks. Sometimes my pain is so severe that my arm or leg turns numb and I can't do much with a numb limb for weeks. I know that I've gained weight because of the pain and how depressing it can be. Now I know I have to overcome this and it starts one day at a time, one meal at a time, one effort of physical activity at a time. I understand your post and I appreciate you opening this discussion.

Im sorry your going through this. My mother went through this too and was finally diagnosed with Bachets. Try doing thing that are easy on your joints. Swimming is a great option and is gentle on your body. The ymca even has a heated pool and Jacuzzi that will help ease some of your pain. Be patient with your self and keep postive. You can do this and you are stronger then what attacks you.

I have Haemochromatosis. Common symptoms include: feeling very tired all the time and joint pain.

Migraines, PCOS, and Muscular Dystrophy so I 500% get you. I've figured out that if I feel good then I use that time to work out. Whether it be the morning before my body gets worn out or at night if just sitting down for a while and relaxing after work helps me get that energy back. I take lots of advil and have learned that drinking water helps sometimes for me personally.

It took me about twelve years to get a diagnosis and a kinda sorta treatment plan since there isn't really any true cure for any of my current issues. I get shots in my joints about every six months that help for a little while.

I've figured out that its okay to feel like complete crap while working out and wanting to die while on the elliptical or rowing machine. I still get through the workout but stop if I feel my legs giving out and move to another type of cardio or just do weight training that day where I am sitting down. It takes a lot of experimentation to figure out what won't wear you out or what you can do just to do something on the complete crap days.