Thyroid disorders!
Mysche
Posts: 10 Member
Anyone with hypothyroidism? Any tips or advice on this frustrating weight loss journey
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Replies
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My advice is, simply, make sure the medication you're taking for it is the right one for you, stick to your calorie goal, and exercise. If the medication works as it's supposed to, you shouldn't have any problems losing weight. I have hypothyroidism and PCOS and for a long time I didn't even want to try losing weight because, according to everyone else, it would be close to impossible. However, once I got proper medication I felt worked for me I started losing weight, and 13 months later I'm 43 kg lighter.
It is possible, but you need to make sure you're on the right meds.6 -
like @helena99716 said - as long as your disorder is properly controlled through medication, there is no reason why you can't lose weight - but it may take time to get your correct dosage dialed in (there is a range of normal and finding your optimal range can be challenging if you don't have a doctor that listens to you).
There is no peer-reviewed scientific evidence that supports special diets for thyroid disorders - some people report that they feel better on low carb...personally, i do high carb and have no issues.6 -
Make sure you see an endocrinologist and that your levels/meds are where they should be. It took me a little while to get the momentum going but finally I am seeing good .5-1lb a week results. Keep with it, log everything, and exercise even if it's just walking. Also I do not restrict certain food groups, CICO.2
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Yes I 've been on Levotyroxine for last 3 years. I would say weight loss has slowed down but not impossible,when I honestly log everything and workout I lose weight.
I say workout you don't have to, but it helps me create deficit and counteract hunger pangs I get from other meds I take.
I can't function on low carb, I have tried and it makes me very sluggish and ravenous I eat high carb and as long as I'm not overeating it works for me.
I also tend to have a "whoosh" every few weeks instead of loss every week so I keep record of it on Libra weight trend app.
Good luck you can do it!5 -
as others have said, no, its not impossible at all for hypothyroid patients to lose weight. I know because I've dropped 94 lbs so far - and this was after my former endocrinologist told me I would never lose the weight!
My advice is to keep up with the latest research on thyroid disorders, because endo's are notorious for being slow to change their policies and being way behind the research. That former endocrinologist is a prime example; when I was diagnosed with thyroid cancer, he automatically had me take the radioactive iodine, but I've since found that's not always necessary anymore.
And the case is even worse when your hypothyroidism is being managed by a PCP. PCP's are even worse for not keeping up with the latest information - they just go with what they were taught in medical school, and are often way out of date, especially on what is considered "normal" thyroid range - even online medical references are slow to update!
There have been several recommendations for what the normal range should be, and current standards are saying TSH should be between 0.5 and 4.5/5.0. However, there are some doctors and labs who have not updated their policies to this newer range. Also, even if your TSH falls within the upper end of normal, you may still have thyroid disorders - I know from personal experience that the TSH, despite many doctors using it as the end all be all for thyroid function - will not always indicate thyroid problems. You might want to request a full battery of thyroid testing, including T4 levels and even T3 if you can get it (T3 isn't a standard test and in many cases, doctor's don't consider it valid, but there are some folks who have found that supplementing with T3 really helped)
So read up on the condition, and finally, definitely speak up on how you are feeling. If your current medication isn't helping your symptoms, tell your doctor and insist on trying something else - either change the dosage or even try a different kind of medication. I found that the generic didn't work for me at all and I had better results with the name brand (not to mention having a severe allergic reaction to a brand of generic that Walgreens was using.....) Despite what insurances say, not all generics work as well as the name brands, and some generics have different fillers in them that can give you trouble.
In some cases, I know folks who felt better using the natural desiccated thyroid, but that is still very controversial and many doctors will not prescribe it. But if the generic and name brand medication isn't working for you, it may be something to consider.
And finally, realize that correcting thyroid dysfunction takes time - this is why the doctor will not do bloodwork after a medication change for at least 6 weeks. So you need to give yourself time at the current medication level to see if you start feeling better.
In any case, best of luck to you!5 -
Hey there- I have been dealing with Hashimoto's for 20 years. It's a struggle for sure. The best thing I did was get on an Adrenal Health supplement. It has helped with my brain fog and fatigue - both things that kept me from living healthy. It was a game changer...good luck to you!7
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@debraormond could you tell me a little more about this supplement? I've been struggling with brain fog for years now and every doctor i speak to just brushes it off, I'd very much like it gone!2
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@helena99716 Careful with supplements. Some contain iodine which can be harmful in high amounts. Brain fog could be 100 different things. Do you take a multivitmain that contains Vitamin D? Even low B-12 levels can cause problems? Are you a vegetarian? Do you eat foods that contain magnesium such as beans or milk?
Supplements are also not regulated or tested so ypu have no idea really what's in them.4 -
@helena99716 Careful with supplements. Some contain iodine which can be harmful in high amounts. Brain fog could be 100 different things. Do you take a multivitmain that contains Vitamin D? Even low B-12 levels can cause problems? Are you a vegetarian? Do you eat foods that contain magnesium such as beans or milk?
I don't take any vitamins, only meds and a "supplement" (not sure what else to call it) for my heart as it tends to skip often. And I am not vegeterian, but I do have about 2 dl of milk every day. I have had depression through my teens and I honestly think that's what's causing my brain fog, so I was hoping to try this supplement or something similar in hopes of it helping.0 -
Great advice thankyou so much! Have had heaps of tests done reverse t3 was extremely high! Had low Vit D, iron, take vit B, magnesium and turmeric. Have improved heaps over the last year. I am on natural dessicated thyroid extract. Has helped me so much. It's a daily struggle as I bloat from day to day! And any weight loss is incredible slow. Thanks so much for your awesome advice x0
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I'm on synthroid. Had my thyroid removed many years ago. The only way I lose weight is by meticulously watching what I eat and working out frequently. One or the other has never worked for me. I've eliminated most gluten from my diet and I am considering gluten free. I have had the best results of my life this way. I know nothing about any evidence that backs this up but it's working for me right now. I've never felt better. I see my endo next week and I'm anxious to see what my labs are.2
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Bloat from day to day? Ask a new question to get help on this. Many people here have IBS, crohn's, lactose intolerance, or even an allergy to soy. Some people even say pro-biotic foods help. Get help with this! Open your diary. I get bad bloating just by eating high fiber foods. @Mysche
Bloating is quite common with hypothyroid patients. Low thyroid function can contribute to low digestive enzymes in the stomach. This makes some or all foods harder/slower to digest and contributes to bloating on top of the slow bowel movement and constipation many patients suffer. These issues were my first symptoms 14 years ago and thankfully have resolved now that my numbers are in a good range for me while on dessicated thyroid.
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Anyone with hypothyroidism? Any tips or advice on this frustrating weight loss journey
I started Jan 2017 riding to the end of a level 15km trail. Now 10 months later i have lost 3 stone and did a 40km endurance hill ride
(Check out my cycling activity on Garmin Connect. #beatyesterday
https://connect.garmin.com/modern/activity/2326317819?share_unique_id=3 )
The last 3 to 4 pounds to reach my target is tough and slow.
I am over 50 and feel like 30. I'M NOT TIRED. My blood tests are the same level. I now play tennis, swim KM at my holiday home , and have more energy to enjoy life.
Cycling is great for hypothyroidism because you work getting up the hill and rest going down.
Keep at it and you will get there.
Suz
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I was diagnosed years ago and now I'm on 100 mcg of levothyroxine. I think it's very important to get your TSH levels that is right for you, despite what the "normal" range is. I lost 55 watching my calories and keeping under my range - over the course of a year and a half. For me gaining weight over the years had much more to do with bad eating habits and inactivity, but I'm sure my thyroid had a bit to do with it as well (I didn't really starting putting on a lot of weight until I was on my meds). Sometimes I would hit a plateau and I had to try different things to break it- such as changing up exercise, adding intervals and really tightening up my logging by avoiding a bite of this and a taste of that (as that can really add on calories). Being a small frame I like to keep my TSH closer to a 1-2 range and I have more energy in that range. Keep talking to your doctor if you don't feel like you have the energy you need (or switch doctors). But really, being accurate with your calories is most important, especially the closer you get to your goal. My most difficult thing is probably getting an accurate reading of my exercise calories. I try to eat back only half when I was losing (and when I was on my last 5 pounds I stopped eating any back to lose that). I've tried the HRM with little luck of them working correctly, so I do the best I can with what the machines give and what MFP estimates. Right now I'm trying to lose a few again as it's easy to gain back 5-10 pounds. I try to maintain in a range of 5 pounds, but the holidays tend to bring a lot of temptations. But again, it was more about bad eating habits creeping back and having more unhealthy eating days than healthy eating days. Maintaining is much harder than losing, because you have to find that "sweet spot" where you are not eating too little and keep losing, and not eating too much and start gaining.2
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Hashimotos fella here. My endo told me to try IF and so far I love it. With having an autoimmune disease losing weight is almost impossible without 1000% willpower, diet and exercise (for me at least). I hate that I can gain 5 pounds just by looking at a piece of cake3
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Hashimotos here too. If I eat at a deficit I lose weight, though perhaps more slowly than my peers.
It's no different than anyone else you have to burn more than you consume. Yeah we don't burn as efficiently as others but we still burn calories. I used to use it as an excuse but honestly just because it takes me longer to hit my goal shouldn't stop me from moving toward my goal.3 -
I have hashimotos. Thyroid meds are very sensitive. I would urge great caution using "thyroid supplements". Doctors are pretty easy going about using a generic med. Atorvastatin vs Lipitor. However, thyroid medication is really important to be consistent. Take it as directed the same time every day. Don't ever think "thyroid meds are crap, I can't tell a difference" and stop taking your medication. Thyroid medication, according to leading Endocronologists, should be brand only as the +/-15% of brand equivalent required of generics can make a really big difference. Pharmacists love for you to fill generic meds, they make a lot more money on generics than brand medication. Levothroid, Synthroid, Armour Thyroid (that one doesn't come in generic and won't ever so it's a no brainer).
Coumadin is a blood thinner that also needs to be carefully monitored, but many folks don't. Warfarin is generic and super cheap. but... that + or - thing is critical with blood thinning agents. Also... because it's my two cents and you don't have to read this... Supplements are not FDA regulated and if there are "clinical studies" that's a big SO WHAT. Observational data isn't the same as double blind placebo controlled. Drug companies are big business... Do they suck? sometimes. However, big bad Pharma is always looking for more money. They jump through huge hurdles which is very expensive and time consuming. Most of the time they get it right. Most of the time. The FDA is always watching over them. Supplements? Nope. Supplements are drugs. They are substances you take to achieve a result. Nobody watching over them... or you. I would exercise caution and always talk with a well trained certified medical health practitioner. It's your life. Your one and only life. Make it the best.
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I have hashimotos. Thyroid meds are very sensitive. I would urge great caution using "thyroid supplements". Doctors are pretty easy going about using a generic med. Atorvastatin vs Lipitor. However, thyroid medication is really important to be consistent. Take it as directed the same time every day. Don't ever think "thyroid meds are crap, I can't tell a difference" and stop taking your medication. Thyroid medication, according to leading Endocronologists, should be brand only as the +/-15% of brand equivalent required of generics can make a really big difference. Pharmacists love for you to fill generic meds, they make a lot more money on generics than brand medication. Levothroid, Synthroid, Armour Thyroid (that one doesn't come in generic and won't ever so it's a no brainer).
Coumadin is a blood thinner that also needs to be carefully monitored, but many folks don't. Warfarin is generic and super cheap. but... that + or - thing is critical with blood thinning agents. Also... because it's my two cents and you don't have to read this... Supplements are not FDA regulated and if there are "clinical studies" that's a big SO WHAT. Observational data isn't the same as double blind placebo controlled. Drug companies are big business... Do they suck? sometimes. However, big bad Pharma is always looking for more money. They jump through huge hurdles which is very expensive and time consuming. Most of the time they get it right. Most of the time. The FDA is always watching over them. Supplements? Nope. Supplements are drugs. They are substances you take to achieve a result. Nobody watching over them... or you. I would exercise caution and always talk with a well trained certified medical health practitioner. It's your life. Your one and only life. Make it the best.
unless you are me, then its generic all the way - i had a horrible experience with synthroid and my levels got all jacked up - I had been stabled on generic (had been on it for 2yrs), my insurance/doctor changed, they would only prescribe synthroid and horrible horrible experience; back on levo now and its like night/day difference0 -
Your thyroid impacts your Resting Energy Expenditure (REE) by ~5% - that's going from a fully treated patient to no hormone supplementation. What hypothyroid can impact is your appetite triggers so you may eat and never feel full, so that you end up eating volumes more that you believe you are. The other great impact is water weight. Anytime your hormones are imbalanced you cells take on additional water as a defense mechanism which results in a quick weight gain and "bloated" feeling.
I had a total thyroidectomy in 2000 and believed much of the weight gaining BS common in the medical community. I put on ~70 lbs over the next 14 years. About this time my wife was using MFP to lose the baby weight from our third child and I tried it out. I lost 60 lbs the first year. I researched the work of Jeffrey S. Brown, who revolutionized the treatment of hypothyroid athletes.
As for branded vs. generic go with generic if you can simply due to price. There is no functional difference between products as generic must meet the same testing that the brand established. With the increased regulatory demand most of the active pharmaceutical ingredients (API) are the same. There may be differences in the inactive ingredients, so keep accurate logs and contact the respective pharmacovigilance department if you experience an adverse event.0
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