Gluten Free with Hypothyroidism

Has anyone gone gluten free with hypothyroidism? If this is something you have tried has it helped? Or was it a waste of time? I am not looking at this as a weight loss thing but an all over better for your health thing.
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Replies

  • TavistockToad
    TavistockToad Posts: 35,719 Member
    i have never heard of the 2 things being linked?
  • nhmom80
    nhmom80 Posts: 11 Member
    If you do a quick google search a lot will come up. Of course it is different for everyone so I just wanted to see what other have experienced.
    i have never heard of the 2 things being linked?

  • Kathryn247
    Kathryn247 Posts: 570 Member
    None of the articles that came up are by reputable sources.
    Just because you have hypothyroidism doesn't mean you have celiac disease/gluten sensitivity. If you're concerned about gluten, try not eating it and see if you feel better, and/or get tested for celiac disease.
  • CricketClover
    CricketClover Posts: 388 Member
    It is more specifically Hashimoto's thyroiditis being linked with gluten intolerance, not necessarily general hypothyroidism.

    That being said, I having a lot of issues and my endo tested me for Celiac using the blood test only method and it was negative but she told me to try to do an elimination diet anyway to see if my issues cleared up. I tried it for a little while and some of my issues seemed to get better but it wasn't enough of a positive for me to continue to do it for the rest of all time. Also, I think it would have been interesting to have a before and after antibodies test but we didn't do that.
  • nickssweetheart
    nickssweetheart Posts: 874 Member
    If you want to try it, go right ahead. Leaves more gluten for me (I have hypothyroidism and eat quite a bit of wheat and have never noticed a problem.)
  • CMNVA
    CMNVA Posts: 733 Member
    The only reason that hypothyroidism (specifically Hashimoto's) and gluten are linked is because Celiac Disease and Hashimoto's are both auto-immune disorders. But not necessarily for the same reason (i.e., gluten does not trigger Hashimoto's but does trigger Celiac).
  • Hamsibian
    Hamsibian Posts: 1,388 Member
    It doesn't hurt to go gluten free, but my advice would be to replace the gluten with more whole foods - vegetables, fruits, beans, rice, etc - and less of the "gluten free" substitutes. Unless they're from a decent bakery/restaurant, they don't taste good at all, and are sometimes less nutritious than their gluten counterparts.
  • nvmomketo
    nvmomketo Posts: 12,019 Member
    There is a strong link between hashimotos and celiac disease. If you have one problem, you are much more likely to have the other problem than the healthy population. For example, when I discovered that I had celiac disease, I had my doctor test me for hypothyroidism too. I had it too.

    I know of a few people who found that going GF helped slow their autoimmune attack on their thyroid. Their TPO antibodies dropped once they were GF even though they did not test positive as a celiac. Going grain free helped them feel better overall.

    My TPO antibodies were not affected by going GF, but they were about normal when my hypothyroidism was diagnosed. I did not notice any real improvement just from going GF, but I started thyroid mess at the same time that I went GF so I can't tell much there.

    If you do suspect gluten sensitivity, get tested for celiac before going GF. You must be sick in order to be diagnosed.

    Good luck.
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
    edited April 2018
    I don't know that there's a strong link between hashi's and celiac so much as it's that a whacked out immune system tends to cause a lot of problems and that a person with one autoimmune disease is more likely to be prone to another.

    A lot of autoimmune issues are genetic, and whether or not the gene is expressed can be affected by many factors. Your system being stressed by one disease can switch on the expression of another disease.

    Saying all that, if you JUST have Hashimoto's, going gluten free in an attempt to do something to help it is questionable, imo. Hashi's is an erratic disease, it doesn't have a linear path. Any claims made about the affects of eliminating gluten and its effect on the disease's progression are likely correlative and not causative due to the fluctuating nature of Hashimoto's progression.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    i don't know if I would say a strong link between hypothyroidism and celiac disease (personally when I think strong link, i'm thinking 20-30% of diagnosis, not less than 10%) - it seems to not have been fully explored - I found this study that referenced a linkage:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2111403/

    this table from that study looked at a variety of populations:

    Prevalence of celiac disease (CD) in autoimmune thyroid disorders.


    Author (year of publication) Population screened Prevalence of CD

    Collin et al (1994) 83 autoimmune thyroid disease 4.8%
    Sategna-Guidetti et al (1998) 152 autoimmune thyroid disease 3.3%
    Cuoco et al (1999) 22 Hashimoto’s disease/23 Graves’ disease 4.3%
    Valentino et al (1999) 150 autoimmune thyroid disease 3.3%
    Berti et al (2000) 172 autoimmune thyroid disease 3.5%
    Volta et al (2001) 220 autoimmune thyroid disease 3.2%
    Larizza et al (2001) 90 Pediatric autoimmune thyroid disease 7.8%
    Meloni et al (2001) 297 autoimmune thyroid disease 4.4%
    Mainardi et al (2002) 100 autoimmune thyroid disease 2%
    Ch’ng et al (2005) 115 Graves’ disease 4.5%
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    this study hypothesized a potential link between gluten-free treatment and hypothyroidism - https://www.ncbi.nlm.nih.gov/pubmed/28030626

    The prevalence of thyroid disease is likely increased among individuals with celiac disease (CD). In addition, exposure to gluten-free treatment may be associated with a risk of thyroid disease, but this association remains controversial.
  • jeannemarie333
    jeannemarie333 Posts: 214 Member
    Hi,

    I have Hashimotos and did a bit of research with gluten after I felt like I was getting a stomach ache after too much gluten and it turns out you are right there is a connection, but it's with inflammation and overall automimmune disorders, so here is an article. I believe I have a gluten sensitivity that can interfere with my automimmune (Hashimotos) disorder causing inflammation and stress on my body, so I stopped 2 years ago and feel good; i.e. my tummy doesn't hurt and my system is easier to regulate, less feeling bloated and sick. Please friend me if you would like, also here is an article on inflammation:
    https://www.amymyersmd.com/2018/04/3-reasons-give-up-gluten-autoimmune-disease/

    Thanks pal!!
    Jeannemarie
  • mobarger
    mobarger Posts: 2 Member
    yes. I have Hashi's. Cut out gluten almost 3 years ago now. I dropped 25 pounds in about 3 months and felt so much better! I started to get my energy back finally. I've tried reintroducing gluten back to my diet a couple times since then and really see the difference (and it's bad).
    I say give it a shot! It's all a chemistry experiment anyway. Find out what works for you. Give it a month and re-evaluate.
  • mph323
    mph323 Posts: 3,565 Member
    I was diagnosed with hypothyroid (not hashimoto) long before my celiac diagnosis. I really haven't noticed any difference before and after.
  • Fitnessmom82
    Fitnessmom82 Posts: 376 Member
    nhmom80 wrote: »
    Has anyone gone gluten free with hypothyroidism? If this is something you have tried has it helped? Or was it a waste of time? I am not looking at this as a weight loss thing but an all over better for your health thing.

    I have reduced the amount of gluten in my diet. Can't commit to gluten free. It has helped a lot. I asked my endocrinologist about it and she said there are some newer studies that point to gluten free being beneficial but, it's all pretty new. She told me to keep at it because my numbers have never been better. I wouldn't be confident enough to say that doing this is definitely why I am doing better, but it's worth a shot!
  • stevephi01
    stevephi01 Posts: 240 Member
    edited April 2018
    nhmom80 wrote: »
    .... an all over better for your health thing.

    If you aren't feeling really bad, I wouldn't cut gluten - but that's just me. I've not tried cutting gluten completely, got close to it when I felt really bad the past couple of months. I'm back eating it again and feeling OK.
    I've read quite a bit on gluten feeding the antibodies, but decided unless I knew I had the condition for that to happen I'd walk away. Glad I did as that led me to find the more plausible reasons why I was feeling so rotten.

    Just as the advice given for those wishing to lose weight, my advice would be to investigate that you are eating balanced meals - checking the fat/carb/protein, yes, but also take a detailed look at the vitamins and minerals. We tend to be more susceptible when these are a bit low. I had glossed over the last bit, as it turned out to my detriment. It may be of help to you and give a bit of oomph to your day.
    This is purely my own experience and possibly bad advice for anyone else.

    If you are concerned, possibly best to see a Dr or endo, if you can, about it - best know the daemon you are fighting.

    Some good info @Fuzzypeg
  • 2aycocks
    2aycocks Posts: 415 Member
    If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
    edited May 2018
    2aycocks wrote: »
    If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.

    What kind of doctor gave that advice?

    Gluten is only inflammatory for people with celiac disease, and even then it doesn't always cause joint problems. My celiac went undiagnosed until it went critical because doctors wouldn't test me for it -- they didn't think I had it because I didn't have joint pain. I got to the point of malabsorption because of that blunder. BTW, I was already on thyroid medicine for Hashimoto's at that time.
  • SCoil123
    SCoil123 Posts: 2,110 Member
    edited May 2018
    I am gluten free and diagnosed with its hashimotos. I was tested for celiac as well but don’t have it. They did find that I have a wheat germ allergy though. Since going gluten-free my joint pain and some digestive issues have improved. Removing the wheat, for me, stopped the strange rashes I kept getting as well

    Gluten free and dairy free diet were recommended to me when diagnosed with hashis

    Edited to add - going gluten free was not for weight loss for me. I gained my weight eating gluten free. Many gluten free substitutes are actually higher in calories
  • staraly
    staraly Posts: 54 Member
    There is a growing body of research on autoimmunity other than Celiac Disease and the effects of gluten. So far, it's pointing to a strong connection, but more research needs to be done on what happens in every single one of the many autoimmune diseases when we exclude gluten, as well as for other immunity diseases, to determine what role diet would play in treatment plans and determine better diagnostic methods.
    I have hypothyroidism, histamine intolerance and Systemic Nickel Allergy along with other allergies. I don't have Celiac Disease (tested every which way including genetic and I can't have it) yet the improvements in my health with going gluten free are nothing short of miraculous.
    Gluten is a histamine releaser; that much is known. And high histamine plays havoc with our neurotransmitters and hormones. That is also known.

  • xFreudianSlip
    xFreudianSlip Posts: 45 Member
    I'm hypo, no thyroid and hashimotos, only went gluten free because of celiac.
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    Wheat is unusual because it has three parental strands in its dna. This gives rise to many more proteins than are found in all other living things. Gluten is only one of those potentially problematic proteins. It was the first to be identified as setting up health problems in the way of celiac, there are probably hundreds more proteins in wheat which also cause health issues.

    I'm interested in what staraly had to say because wheat as a histamine liberator had not passed by in my reading, yet, I've found pages now I have looked. As I said earlier I'm both histamine and salicylate intolerant, none complimentary bedfellows, hashi as a side salad. Low histamine is not low salicylate and vice versa. When I originally reduced my salicylate intake which also coincidentally impacted my histamine load, I had great relief from my tinnitus but gradually it came back, probably because my inner ears are too damaged.

    Salicylate is the way many/most plants, including fruits and veg protect themselves from moulds and mildews. Histamine is more an issue of a state of decomposition, for some even fresh cut meat is toxic, cold cuts are off the menu for more. It can be contamination of prep surfaces and more, cross use of knives etc. Both encompass reactions to everyday household chemicals! Histamine intolerance is closely tied to Mast Cell Activation, our bodies can make more mast cells in the hope of reducing the histamine load but when they break down they amplify the problems. Though improving one's production of the dominant DAO enzyme with b6 and vit C, can be helpful. According to Dr Sarah Myhill, UK, the stated dietary requirements of 30mg or there about's is enough to avoid scurvy the ancient sailors curse, but it is way too low for our human needs because we can't make our own, the ability was lost in evolution. Linus Pauling says we need much, much more.

    Every time one reduces the breadth of one's diet the nutritional deficiencies increase. The modern western diet already depleted in so many essential vitamins and minerals, when one adds calorie restriction to the mix the depletions are amplified which can/will impact the mitochondria, Krebs cycle etc., depleting energy levels particularly in Me and Chronic fatigue Syndrome BUT energy depletion is a strong symptom in ALL autoimmune issues, which don't forget, hunt in packs, have one you will probably develop another.

    Now if I were to eliminate dairy, which I facilitated with digestive enzymes, dairy is hyper allergenic because of the casein (protein) and lactose (sugar), its also considered to be High oestrogen which is also bad for thyroid along with eggs also high oestrogen, so best eliminated, along with avoiding cruciferous veg and soy as advised by thyroid health specialists. Now wheat and other grains, I would probably be left eating simple lettuce leaves, possibly garden peas. Better still why don't we just stop eating and take all our nutrition through supplements.

    Lets get real, lets not panic, lets concentrate on what works for each of us as individuals. There are 300 if not more symptoms of autoimmune disorders why should we expect everyone's experience to be the same. Just because western medicine likes putting chemical plasters over each and every problem avoiding the underlying probably mitochondrial causes and rectifying those. Our bodies are interrelated systems not isolated functions they should be complimentary and not expected to operate in isolation.

    Just for the record, the knowledge of Histamine intolerance and Salicylate intolerance have not made it to my Dorset medical practice nor the local Endocrinology department, to them its beyond what they are expected to know. What is worse they think they know better than the Regional Immunology Service. When replicated nationally such damnable ignorance it causing damage to many. They do not advocate using digestive microbes when on antibiotics, nor do they suggest eliminations for autoimmunity.

    Please do not add to the harm your body is already under by adding unnecessary eliminations, just because....... you are told, its good, try it if it does nothing go back to normal.
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    I've been doing more research since my earlier post. Reference Histamine Intolerance. I hope this may be of interest to Staraly

    Whole wheat does not liberate histamine, only the glutein, so if a whole grain product is used one should not have a histamine issue.

    Avoidance of histamine has been my first choice for self preservation. Products like DAOsin are recomended to reduce histamine levels, as are products containing quercitine. I've been suplimenting heavily with magnesium, because magnesium defficiency can be a precourser. I've come across something which may be effective, clays, which are said to work with histamine, as I assume activated charcoal does with flatulance. The clays have very fine pockets to absorpb and bind the excess histamine. I'd previously come across Bentonite Clay and now Zeolite, both it seems can be taken internally. I'm still chewing this one over, may be too radical for me. Much as I like the idea of reducing my histamine levels, I'm still going to give these products more consideration.
  • deannalfisher
    deannalfisher Posts: 5,600 Member
    staraly wrote: »
    There is a growing body of research on autoimmunity other than Celiac Disease and the effects of gluten. So far, it's pointing to a strong connection, but more research needs to be done on what happens in every single one of the many autoimmune diseases when we exclude gluten, as well as for other immunity diseases, to determine what role diet would play in treatment plans and determine better diagnostic methods.
    I have hypothyroidism, histamine intolerance and Systemic Nickel Allergy along with other allergies. I don't have Celiac Disease (tested every which way including genetic and I can't have it) yet the improvements in my health with going gluten free are nothing short of miraculous.
    Gluten is a histamine releaser; that much is known. And high histamine plays havoc with our neurotransmitters and hormones. That is also known.

    the current body of research (I posted a summary on the first page) is no where close to providing a strong connection - the research is giving only up to 7% commonality between celiac and hypo in the study groups
  • collectingblues
    collectingblues Posts: 2,541 Member
    edited May 2018
    2aycocks wrote: »
    If you have Hashimotos Thyroiditis, then you would be advised to go gluten free. Gluten aggravates that condition, including causing inflammation in your joints. This info is per doctor's advice.

    Not necessarily. Maybe your doctor says that, but it's not universal. And it's especially not universal if you don't have any indicators for eliminating gluten, such as having celiac.