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Exercising while doing chemotherapy

CoachFrenchie
CoachFrenchie Posts: 135 Member
Hello everyone!
I was wondering if anyone has been through this? I find myself with so little energy that making it through my workouts is more and more difficult. I lift at around 50% of my weights right now. Fatigue and nausea are probably my biggest problems. Any ideas? Beside rest. I get bored😁🤗 tricks I should try?
Thank you
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Replies

  • CoachFrenchie
    CoachFrenchie Posts: 135 Member
    I have naturally consulted with them before. I am looking for ideas on how to fight symptoms , specially nausea. I am free to workout and train for my next comp .
  • aokoye
    aokoye Posts: 3,495 Member
    Have you asked them about how to combat the symptoms you're having when you exercise? If so, my other suggestion would be to look blogs written people doing similar things. I know that I, very randomly, found the blog of a masters rower who rowed through her cancer treatment. I don't remember if she had chemotherapy, radiation, or both. Either way, given how easy it was for me to find that (it wasn't what I was looking for), I'm sure there are resources and blogs out there.
  • pinuplove
    pinuplove Posts: 12,871 Member
    No advice (Ann covered it all beautifully and with first-hand experience to boot). But wanted to wish you the best. Are there any less active hobbies you'd be interested in learning (knitting, crochet, calligraphy, drawing, etc)? Just something to occupy your time. Or else a pile of good books.
  • charitymck
    charitymck Posts: 1 Member
    I am a cancer survivor and did exercise for the first couple rounds but was to sick to continue. I just want to wish you the best of luck and hang in there and beat that cancer! Do what you can! Even if it’s a quarter of what you use to do!
  • CoachFrenchie
    CoachFrenchie Posts: 135 Member
    Thanks to all. My team's goal, as mine, is to push within limits while staying on treatments. I appreciate every single idea as they keep me investigating more and more. To be in charge is very important to me.
  • initiation0
    initiation0 Posts: 22 Member
    Cancer survivor..... The first week I was down.........I slept.........Second week I felt better........I then walked.. Talk with your oncologist see what he/she has to say. well wishes.
  • shaf238
    shaf238 Posts: 4,022 Member
    Wishing you all the strength in your recovery.
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Move with caution. I went through surgery followed by chemo followed up with radiation and tried to keep up my normal throughout and this worked against me in the long run.

    With the chemo I didn't want to eat. Looking back I should have been forcing every conceivable calorie down my throat. I should have gone into maintenance mode with my workouts and just stuck to a slow jog/swim pace instead of pushing myself.

    Give your body time to heal and take it easy. Speak with your physician and possibly bring in a sports medicine specialist to set you up with a sustainable routine that will not hinder your treatment.

    Prayers up!
  • The_Aly_Wei
    The_Aly_Wei Posts: 844 Member
    Ann covered it well.

    I personally started back into it slowly- usually walks. Then i began jogs. Then i began trail runs. I would keep active and do some farm chores when able...which was more often than not. I regret not doing more to maintain my previous condition, honestly. Do what you can. Push yourself when you feel you can. Simple as that.

    I wish you strength and health :*
  • wmd1979
    wmd1979 Posts: 469 Member
    I was able to exercise through my first three rounds, but after that I just found that I didn't have the strength any longer. Chemo definitely does a number on your body and it makes recovery near impossible. My best advice would be to make sure your body is properly fueled during this time and be kind to yourself. I felt guilty about not working out, but your body truly does just need to rest during this time. I came back even stronger once it was all said and done, and it was much more satisfying once I got to that point.
  • tbright1965
    tbright1965 Posts: 852 Member
    edited December 2018
    It was exercise just to take the stairs when I was doing chemo.

    This is a question for your medical staff, not a web forum.

    I can tell you this, if you just spent the week doing inpatient chemo (bleomycin, etoposide, and cisplatin) it's probably not a good idea to try to use your helium balloons to change your voice for a new answering machine (am I giving away my age) message?

    That was my treatment. Five days in patient for that cocktail during the week and then bleomycin the following two Wednesday's and then back to inpatient for another week. A total of 18 weeks in 1994.

    I almost passed out after I took a breath of the helium.

    I can't imagine doing any sort of meaningful exercise given I was so close to passing out after the chemo savaged my blood counts to the point where one breath of helium brought me close to passing out.

    I literally experienced my vision closing down to a small "tunnel" and I had to drop to my knees and put my head down to keep from totally passing out.

    I can't imagine any sort of exercise would have been recommended for me.

    So please, don't ask us, ask your treatment team for advice.
  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    edited December 2018
    Oops, duplicate post: My browser said first post attempt failed. It lied. :flowerforyou:
    Just to fill in readers who may not be aware:

    Moderate exercise is now being recommended during chemotherapy for some types of cancer, most notably breast and colon cancer, including for people new to regular exercise. (Italics important. OP has made quite clear that's she's been in consultation with her treatment team about this issue, as a sensible person should.)

    These are patient/public resources from very mainstream expert bodies (but the research is there to back them up).

    https://www.asco.org/about-asco/press-center/news-releases/exercising-during-chemotherapy-breast-or-colon-cancer-has-long
    https://www.nccn.org/patients/resources/life_with_cancer/exercise.aspx

    OP has clearly started from a different place than the people for whom those patient guides were written. She has been working out, and apparently hard, for a long time.

    Obviously, it makes a difference what type of chemo is being used (I know that a lot of people think "chemo" is kind of all one thing, but no). Obviously, different people will have different reactions to the same chemo, because the stuff is such an extreme challenge to the body.

    No one should do any of this without close consultation with his/her treatment team . . . something OP made clear in her 2nd post on this thread that she has done, and she repeated this again with more emphasis later.

    She asked for help with managing side effects, especially fatigue and nausea, during her treatments.

    Do any of those who've commented about how they were unable to exercise during treatment, or who have been through treatment but didn't exercise for other reasons, have any advice for her about tips for managing nausea or fatigue (we've mentioned rest, as she did in her OP)? You may have such tips, even if you personally didn't or couldn't exercise.

    These issues - coping with side effects in a practical sense - are legit topics for peer support. My RL support group offers much more nuanced, detailed advice on these topics than anything my treatment team provided (and my team provided good info). (Clearly anything radical, like supplements, would need to be checked with that treatment team. OP seems pretty sensible.)
  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    Just to fill in readers who may not be aware:

    Moderate exercise is now being recommended during chemotherapy for some types of cancer, most notably breast and colon cancer, including for people new to regular exercise. (Italics important. OP has made quite clear that's she's been in consultation with her treatment team about this issue, as a sensible person should.)

    These are patient/public resources from very mainstream expert bodies (but the research is there to back them up).

    https://www.asco.org/about-asco/press-center/news-releases/exercising-during-chemotherapy-breast-or-colon-cancer-has-long
    https://www.nccn.org/patients/resources/life_with_cancer/exercise.aspx

    OP has clearly started from a different place than the people for whom those patient guides were written. She has been working out, and apparently hard, for a long time.

    Obviously, it makes a difference what type of chemo is being used (I know that a lot of people think "chemo" is kind of all one thing, but no). Obviously, different people will have different reactions to the same chemo, because the stuff is such an extreme challenge to the body.

    No one should do any of this without close consultation with his/her treatment team . . . something OP made clear in her 2nd post on this thread that she has done, and she repeated this again with more emphasis later.

    She asked for help with managing side effects, especially fatigue and nausea, during her treatments.

    Do any of those who've commented about how they were unable to exercise during treatment, or who have been through treatment but didn't exercise for other reasons, have any advice for her about tips for managing nausea or fatigue (we've mentioned rest, as she did in her OP)? You may have such tips, even if you personally didn't or couldn't exercise.

    These issues - coping with side effects in a practical sense - are legit topics for peer support. My RL support group offers much more nuanced, detailed advice on these topics than anything my treatment team provided (and my team provided good info). (Clearly anything radical, like supplements, would need to be checked with that treatment team. OP seems pretty sensible.)
  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    Spartan546, I'm sorry, I kind of waltzed by the boredom issue you mentioned. I was thinking that that might mean you were bored with reduced workouts, but it may be more than that . . . and even if it was just about workouts, I should've picked up on that.

    Do you currently do any mild but physically beneficial activities, like stretching/yoga? This might be a good time to expand a bit in that kind of lower-energy but still beneficial area.

    I would've had trouble learning something like Tai Chi during treatment, as cognitive compromises loomed very large among my side effects, but things like yoga or regular stretches (where I could review instructions for an asana or stretch right before doing it ;) ) were manageable. If you're not having the chemobrain nonsense as much (or know a form already), Tai Chi could be a candidate.

    I liked @pinuplove's idea about new or revived hobbies, too. I'd add that some of my friends, during treatment, got a good bit out of general experiential journaling, art journaling, or gratitude journaling, and they recommend it in support group to those starting treatment.

    I don't know what you're finding, but one thing I experienced as treatment went on was that the physical depletion inherently increased the challenge of maintaining a positive mood.

    I went in really big for watching comedy movies, especially the screwball comedies of the 1930s-40s (which I love - things like "Bringing Up Baby" and the Thin Man series).

    It's something I usually feel dismissively about, but I also used guided meditation/visualization audios during treatment, and feel like I got something out of that. It actually helped manage some side effects (like the anticipatory nausea I experienced before chemo round 2, after round 1 was kinda rocky). There are a bunch of these around, including many aimed at cancer patients. Maybe kinda cheesy, but I was desperate, and I have to admit got some help there.

    I'm also a fan of benefits of simple meditation (like http://www.relaxationresponse.org/steps/ ). It's not something I make room for in my daily healthy life (even though I know it would be beneficial ;) ), but since I was physically less energetic during chemo, it was something that fit in well, and was good for me. Restful sleep was a challenge for me during treatment and beyond, and meditation offset that problem a bit.

    If you can afford it, and your treatment team approves, another thing that was a huge help to me during treatment was a regular professional massage from a good massage therapist (with therapeutic credentials, not just relaxation massage). My treatment team had some guidance on certain things being off limits at certain times (had to do laying-on-back only for a long time until my mastectomy scars were fully stable; no massage on even faintly pink areas during radiation; that sort of thing). I'm not going to claim any great medical magic from it, but it felt good, and the therapeutic credentials are mostly about the idea that those folks are best at finding/improving areas where we personally hold tension.

    Just a few random thoughts on the boredom front.

    Again, best wishes: Every day is one day closer to completing treatment, and emerging more motivated and stronger as a whole person than ever.
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Thanks @AnnPT77 - meant to add that and lost it in multitasking.

    Exercise was one of the best therapies for me and I found myself lost in the work instead of focusing on the pain and/or nausea. Just don't push it too hard.

    There are several sources for hyperpalatable foods on various cancer sites, but in general think of any calorie bomb foods. My go to was KFC mashed potatoes and gravy - it's a combination of high sugar/salt and carbs:

    https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer/art-20047536

    I drank gallons of mint tea and had black licorice and hard rock candy mints on hand at all times.

    "Jello-juice" - jello before it hardens is another good one. Syrupy thick and easy to keep down. Mix with a protein supplement to make it more worthwhile. I find this one great for all patients experiencing nausea.
  • dnunny70
    dnunny70 Posts: 411 Member
    I am trying to exercise. I was so fatigued on my first chemo drug. I counted it a good day to just be able to go from my bed to the couch and then back upstairs to bed.

    The lack of movement and the steroids have caused me to gain weight! Oncologist isn’t concerned! Ahhh!!

    I am onto my next chemo drug and I seem to have more energy, but still tired. Going to the gym this week.

    My goal when I go is to just move. Due to surgery, I have limited range of motion in my right arm—this I don’t lift a lot of weights.

  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    dnunny70 wrote: »
    I am trying to exercise. I was so fatigued on my first chemo drug. I counted it a good day to just be able to go from my bed to the couch and then back upstairs to bed.

    The lack of movement and the steroids have caused me to gain weight! Oncologist isn’t concerned! Ahhh!!

    I am onto my next chemo drug and I seem to have more energy, but still tired. Going to the gym this week.

    My goal when I go is to just move. Due to surgery, I have limited range of motion in my right arm—this I don’t lift a lot of weights.

    Yeah: Oncologists don't usually want us to lose weight during chemo. There'll be time for that after, truly.

    You mention surgery & arm: Was this breast cancer & lymph nodes, by any chance? If so, there's physical therapy for that - if your oncologist hasn't offered, maybe ask. There are also specifically designed exercise programs; Lebed method is one example, and Healthy Steps one implementation of the method (http://www.gohealthysteps.com/). There's also a book, and Dana Farber Cancer Center has some videos (https://www.dana-farber.org/health-library/videos/lebed-method--simple-exercises-for-cancer-patients/).

    (I'm an 18+ year survivor of stage III breast cancer, and the full menu of treatment for it.)

    Best wishes!
  • tbright1965
    tbright1965 Posts: 852 Member
    edited January 2019
    Man, you were lucky (if there is such a thing on Chemo) as I couldn't stand to eat much of anything.

    The chemo gave me a hyper sensitive sense of smell, combine that with the constant metallic taste in my mouth after Cisplatin, and I was on a steady diet of starlight mints and Coke or Mt Dew for about a week after my in patient chemo.

    Then, all I could stand to eat was chili with about a 1/2 bottle of hot sauce so I could taste something other than metal in my mouth.

    Lather, Rinse, Repeat on a three week cycle.

    It's a great weight loss regimen, but I'd not even recommend it to my ex-wife.
    CSARdiver wrote: »
    Thanks @AnnPT77 - meant to add that and lost it in multitasking.

    Exercise was one of the best therapies for me and I found myself lost in the work instead of focusing on the pain and/or nausea. Just don't push it too hard.

    There are several sources for hyperpalatable foods on various cancer sites, but in general think of any calorie bomb foods. My go to was KFC mashed potatoes and gravy - it's a combination of high sugar/salt and carbs:

    https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer/art-20047536

    I drank gallons of mint tea and had black licorice and hard rock candy mints on hand at all times.

    "Jello-juice" - jello before it hardens is another good one. Syrupy thick and easy to keep down. Mix with a protein supplement to make it more worthwhile. I find this one great for all patients experiencing nausea.

  • mbaker566
    mbaker566 Posts: 11,233 Member
    it won't help completely but if you can do it, ginger can help. ginger tea, gum, strips, NA beer, ale.

    otherwise, zentrip helped a lot with nausea too
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    lorrpb wrote: »

    When I was first diagnosed I conducted a bit of research and discovered a statistical anomaly concerning elite level athletes, scientists, business professionals, etc. Essentially that an unusual number of people at the top of their field faced incredible challenges and overcame these. I would imagine this diagnosis made them realize that life is short and time is not to be wasted.
  • AliNouveau
    AliNouveau Posts: 36,287 Member
    Wow you guys are warriors.

    I am not a survivor. I helped my dad through his treatments. I spent countless hours sitting at the hospital with him waiting for and getting his treatments and therefore hearing everything that was suggested.

    Light exercise was suggested. Walking in particular. But listen to your body. My brother would take my dad to the gym for light treadmill workouts and it did wonders for his mental wellbeing just getting out in the world doing normal things.

    As for nausea, I gave him lots of peppermint tea. I think we tried dandelion tea but he didn't like that at all. Luckily my dad didn't have a ton of nausea. Oh although he'd get a drip of anti nausea meds when getting his chemo so maybe that's why.

    Good luck, keep fighting. It's an evil disease.
  • YvetteK2015
    YvetteK2015 Posts: 654 Member
    I know all chemo protocols are different, and anyone who can do any physical activity through theirs, I commend you. I had to wear a bag for 96 hours of straight chemotherapy, so there was not an ounce of energy left in me by the time it was done. Walking from the bedroom to the bathroom left me breathless.

    As for nausea, zofran is usually the drip they give you while you are being administered chemo, but there is also another med that is great for nausea that I took like candy which was thorazine. With the thorazine, I rarely if ever felt nauseous the entire 5 months of treatment.
  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    spartan546 wrote: »
    I want to thank you all for advices and tips. I am currently having chemotherapy and Immunotherapy...doing extremely well. My strength is back, training is back on track, still teaching full time, and the nauseas , well, let's just say I keep a garbage can close to my lifting platform. But it doesn't stop me; slows me down, that's all.
    Much love. See you next comp.

    Thank you for taking the time to get back to us: I've been wondering how you were doing. I'm sorry you haven't completely conquered the nausea (or at least come closer than you have so far ;) ), but happy you're finding it possible to continue working out. Cheering you on from a distance, now & future!
  • AnnPT77
    AnnPT77 Posts: 34,225 Member
    spartan546 wrote: »
    I want to thank you all for advices and tips. I am currently having chemotherapy and Immunotherapy...doing extremely well. My strength is back, training is back on track, still teaching full time, and the nauseas , well, let's just say I keep a garbage can close to my lifting platform. But it doesn't stop me; slows me down, that's all.
    Much love. See you next comp.

    Thank you for taking the time to get back to us: I've been wondering how you were doing. I'm sorry you haven't completely conquered the nausea (or at least come closer than you have so far ;) ), but happy you're finding it possible to continue working out. Cheering you on from a distance, now & future!
  • fishgutzy
    fishgutzy Posts: 2,807 Member
    My father's "workout" when he was on chemo consisted of going to the tennis club and reading a book or the news paper. He didn't have the energy to do more than that. He never got back to playing tennis though. It was found too late.