Diffuse systemic sclerosis

Rosyreyes1981
Rosyreyes1981 Posts: 1 Member
edited December 2024 in Introduce Yourself
Diagnosed dSSc a few months ago. Limited ability to exercise. Have a lot of muscle weakness and joint pain. Need to lose weight and improve nutrition. Any one know of this disease or similar? Any tips for losing weight with limited mobility? Already not eating much due to medications killing my appetite. Lost 4 kgs but stopped there. Help!

Replies

  • diddyk
    diddyk Posts: 269 Member
    Hey there! I was diagnosed with Eosinophilic Fasciitis in February of 2017. Is your dSSC mostly skin or other organs that are affected? I found it very difficult to do anything when I was at my worst, and I lost significant muscle mass. I started doing physio therapy, and that definitely helped me get moving more. After that I started walking, I found it hard to get out the door but once I was out it felt really good!
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