Psoriasis & A Healhtier Lifestyle

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  • Jenn152
    Jenn152 Posts: 373 Member
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    That is good to know. I am crossing my fingers the PA stays away for as long as possible (or forever really), but I love to hear people's stories about how it affects them. Thank you for sharing!
  • mrsmellymac
    mrsmellymac Posts: 236 Member
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    Do we have a group started on here yet? We should!
  • Jennifernellwebb
    Jennifernellwebb Posts: 209 Member
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    I have scalp psoriasis and gutate psoriasis. I was diagnosed last year. I was 42 ( just 3 months before my 43rd birthday) with my first outbreak and I could not understand what was going on with me. I was freaking out! I had these sores all over my head and scratches from where I just dug and dug at my scalp until I was raw. My doctor didn't know what it was so he sent me to a dermatologist. The dermatologist took one look and said "psoriasis!" Of course I said, "no it isn't!" Reluctantly, I used the scalp oil prescribed to me every night and I used it for weeks! Just as soon as I THOUGHT that I was coming to terms with that, I broke out with these spots all over my body. The dermatologist told me that it was a second type of psoriasis that I had. I was prescribed an ointment that I had to put on my body and sleep in it. It is a really difficult thing to deal with, especially when you work and have to put your hair up. I caught people looking at me and it was really hard. I quit my job in April of last year and never wanted to leave the house. I was taking pills to control it, but were very dangerous for long term effects. I eventually weened myself off of them and braced myself for the worst. So far, I have not broke out on my body again ( knock on wood ) but my scalp, it lets me know that my psoriasis is still a factor. I may have had to treat my scalp 3 times in the last 6 months, opposed to treating it every night just a year ago. More of a KEEPING IT IN CHECK type thing than actually needing to treat my scalp. I feel the knots on my scalp but it doesn't flake like it use to. I get knots behind my ears and I do have issues inside of my ears. My face, I use a Garnier for moisture because between my eyebrows, I seem to have a noticeable red patch that flares up when I stress out. I also use Aveeno for my skin if it gets a little dry. I have not been to my dermatologist in maybe 9 months and I was stressing over my scalp oil..... but I found a $3 bottle of Tea Tree Oil at Wal~Mart that is WONDERFUL!!!! It seems to do for me what my prescribed scalp oil did. Like I said, I haven't had to "treat" my scalp , but I like using it occasionally to moisturize my scalp. I bought the shower caps and it is just nice to have in the house. With all that being said.......... to the heath part.
    I started losing weight in July of last year. I quit smoking in December of 2010 ( one of the many reasons..... smoking brings on psoriasis!!! ) Trust me, giving up smoking after 25 years far outweighed a breakout in psoriasis!! So, I researched vitamins and things to do differently to prevent a breakout like fish oil that some of you mentioned and keeping your stress level in check. Things like that. Where I am going with this is I started losing weight in July and looking back , that was when my issues with my psoriasis got better. I was 7 months smoke free, working out and eating right along with my vitamins. Don't get me wrong, I have the knots on my head that remind me that it is there but I always did wonder if I had taken just the right amount of that real bad medicine to slow it down or if it was my vitamins or simply my change in my diet over the past 6 1/2 months. One thing I do know.... it can show up at any time so I just can never relax and take it for granted that it slowed down like it has. I hope this helps some of you or all of you...
  • bakingmadness
    bakingmadness Posts: 70 Member
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    I was diagnosed with Psoriasis at age 12 (1993). 3 weeks after my 13th birthday I started having severe joint problems and was shortly after that diagnosed with Psoriatic Arthritis (1994 / 8th grade). It attacked my scalp, behind my ears, my forehead, eyebrows, legs, stomach, butt and genital region. :cry: The arthritis attacked my right knee, both ankles and feet and my spine.

    I went through various creams, oils, even a styling foam for the psoriasis on my scalp. The oil was the worst to try and wash out and it smelled awful. I can still remember rolling over in my sleep and adjusting the shower cap on my head and catching a whiff of the oil on my scalp. :grumble: It took at least 3 shampoos and 1 conditioner to get out in the morning before school. I have found that Elocon Cream (http://en.wikipedia.org/wiki/Mometasone_furoate) works the best on the spots I got on my body. I discovered a shampoo that is over the counter that works really well - Neutrogena T/Gel Shampoo. ( http://en.wikipedia.org/wiki/T/Gel ) It's in the medicated shampoo section near the lice control and such.

    I've battled with the arthritis and the psoriasis for years. Over time with the various and multiple medications I went through I gained a lot of weight. In March 2007 (age 25.5) I weighed 270 pounds. Due to the advanced nature and deterioration of my joints from the arthritis my doctor recommended gastric bypass surgery to alleviate weight on my joints so I didn't end up in a wheel chair by the age of 30. Below is me the day of my surgery: 3-26-07 @ 263 lbs.

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    Below is me 3-26-11 (4 years later) @ 175 lbs.

    205502_1958084235296_1338462619_32280848_1335172_n.jpg

    Within 2 weeks of the gastric bypass surgery... the psoriasis was GONE and pretty much stayed gone for 4 years. I had a few minor flare ups where I would treat the spot(s) for a day or two and they'd be gone for months. I had a major psoriasis flare up in May 2011 (took a month and lots of rx steroids to clear up) that also caused a severe arthritis flare that I am still battling to get under control. The arthritis flare hit joints this time that it's never affected before and scared the crap out of me. It hit my hands. They swelled up like balloons and itched and hurt so bad I eventually had to take time off work to see if they would heal (since the multiple added medications weren't cutting it- and made me gain a lot of weight back) and hopefully not suffer any permanent joint damage.

    If any of you have questions about psoriasis or psoriatic arthritis, or medications, or even personal questions, feel free to ask me and I will do my best to help you out. :smile:
  • SparksFly460
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    YAY! So glad to find this thread. I've been struggling with scalp psoriasis for years. Minor outbreaks on arms, huge ones on my scalp to the point I lost 50% of the hair on my head. Not thinning but thick, 4-5 inch diameter patches. I wore head wraps for an entire year :ohwell:

    Anyways, as you all know it gets better and it gets worse....a new funky thing? MY EARS....psoriasis....in....my...ears... SMH

    So yes, cleanER eating has helped TONS. I avoid ketchup (for some reason, ketchup absolutely triggers outbreaks for me) and a few other trigger foods that I cant quite pinpoint. Highly processed crap will do it too.

    I also have SLE on top of psoriasis, which at first the arthritis was associated with the psoriasis but then re-diagnosed...funny thing....both psoriasis outbreaks and SLE outbreaks tend to go hand in hand!

    Yes t-Gel is AWESOME. Although it no longer works as well for me as it use to years ago. I avoid as many hair products as I can due to chemical & high alcohol content which is horrible for the scabbies. BUT any deep conditioning treatment mast, or cholesterol hair masks are great....I also try not to wash my hair more than every 5 days. I'll push it to a week and even dry-shampoo (yes its got a ton of alcohol) but if you do a conditioning mask right before the next wash....no problem!
  • bakingmadness
    bakingmadness Posts: 70 Member
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    Yes t-Gel is AWESOME. Although it no longer works as well for me as it use to years ago. I avoid as many hair products as I can due to chemical & high alcohol content which is horrible for the scabbies. BUT any deep conditioning treatment mast, or cholesterol hair masks are great....I also try not to wash my hair more than every 5 days. I'll push it to a week and even dry-shampoo (yes its got a ton of alcohol) but if you do a conditioning mask right before the next wash....no problem!

    Another shampoo I use that helps me is Joico: Boijoba (now called Daily Care Treatment Shampoo for a healthy scalp, formerly Biojoba, uses the same formula). It's kinda pricey but Ulta will run it for Buy 1 get one or for the huge bottles at 50% off. :) I also try not to wash my hair more than 4-5 times a week. Have gone 5-6 days (arthritis flared in hands so it was difficult to do anything more than a PTA bath ::EEW::) as well and then when I wash after that long I wash twice in a row and then condition for a good 5-10 minutes. My flare up in May last year was bad enough that I was pulling chunks of hair out of my scalp. -.- I have a large patch at my hairline/bangs area that is growing back in... it's kinda funny looking but it's life.

    Anyone here is more than welcome to send me a friend request. :flowerforyou:
  • w8sarge
    w8sarge Posts: 3,760 Member
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    I was diagnosed with Psoriasis when in my twenties (though when I was a teen a doctor had told me it could be syphilis!). I had a bad flare up that covered much of my body, and that was at the same time I was having terrible headaches. So definitely stress was a factor. The coal tar baths, shampoo, creams, sunbathing helped and so did less stress. I then improved so that only my hands and elbows were involved.

    Some years later I started taking fish oil and that really made a difference. Now I am fifty and notice only the rare patch on my palms.

    I hope for everyone here relief from whichever form of Psoriasis you have.
  • Nitachi
    Nitachi Posts: 142
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    The majority of skin problems are diet related, know of a few people that even managed to clear up their keratosis pilaris by eating a healthier diet and losing weight.

    I also know that if you have dandruff that you are lacking EFA's.
  • angeldelight13
    angeldelight13 Posts: 177 Member
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    hey, Iv also got Psoriasis, i was diagnosed in about 1995 at around the age of 10. Since then i dont think iv ever been without a flair up on my scalp and in the last year its constantly been in my ear cannal :noway: I will get it in other places when highly stressed and thats usually my knees, elbows and face. Iv never really had any help or support from my G.P also untill this post i didnt realise it had improved with a better diet, but iv been extreemly stressed out and iv had no real "body" outbreak, result!!

    My scalp is irritated by shampoo's, some more than others, but after years of trial and error iv found that the body shop, ginger shampoo will clear it up almost comletely. Iv often wonder what Ginger its self would do to the Psoriasis.
  • TouchAsMarshmellows
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    My husband was diagnosed with psoriasis as a skin condition in 2003. But 2008 he had developed PSA. PSA has destroyed him, he is very much disabled, needed a hip replacement in 2019. All his joints are twisted and inflamed, his fingers and toes look broken. This year he got on enbrel finally after treating some pretty existing conditions that would not allow him to be on enbrel. The enbrel cleared his skin quickly, his pain lessened. It’s a fortune though, it’s basically another rent payment. Five months into treatment, other new environmental changes and one Covid vaccine, he developed blood clots in his leg and lungs. He became anemic, developed a stomach ulcer and almost died. His hemoglobin dropped to 4.3. He needed a blood transfusion multiple times. We don’t know exactly what caused this to happens because there are so many variables. He is off the enbrel for now, he stopped working which could have been a reason due to lead exposure, he is on blood thinners now and many other things, vitamins and supplements. The pain had come back with a vengeance and he is always fatigued. He is 45 years old. I guess what I’m saying is, don’t think this won’t happen to you, do all you possibly can to stay healthy and note what flares up your psoriasis because you can’t see what it’s doing inside you until it’s done. Take action and be aware and seek medical help the moment something doesn’t feel right, don’t wait.