New to the crew

Hey all. My name is Lyssah. I’m 37, married and a mama to 4 kiddos, the youngest of which has been in the NICU since birth (August 2021). Because of the issues with my last pregnancy and then being in the high stress uncertain world of the NICU and basically living in the car running between home and the hospital, I’ve gained around 50 lbs in the last year and a half. We are hoping our little girl will be home before Christmas and I know if I don’t get my health in order before she comes home there is no way I am going to prioritize it once I have a medically complex kiddo 24/7.

The last year of my life has litterally been survival and reactionary and im done with it. Not going to lie, finding the energy to start is not easy, but necessary. Hoping to find some solid community and encouragement seeing others succeed and press on in their own fight.

Anyway-that is the short story :)
Lyssah
HW: 274
CW: 274
LW: 194
GW: 160

Replies

  • JBanx256
    JBanx256 Posts: 1,479 Member
    I cannot imagine the stress of having a kid in NICU, especially for that long. It sounds like you've got a rough road ahead too. Just wanting to send good vibes your way!
  • Sinisterbarbie1
    Sinisterbarbie1 Posts: 711 Member
    Hi Lyssah -
    First, BIG HUGS to you and your entire family. I have no way of comprehending what you are going through, but stress like that, lack of sleep and irregular schedules definitely make it challenging to keep to a healthy lifestyle. Rather than try to muster some huge burst of energy or set major goals that are hard to see the endpoints of, I would suggest doing little things, and trying to make them semi-rewarding.
    Start with just keeping track of what you are eating and any extra exercise (it could be a walk around the hospital corridors to stretch your legs a few times) to see where you are starting. Then find one or two things that look easy to replace with a food that fits your health goals better and make the swaps. And add a bit here and there as you feel able. Stick with eating stuff that you actually eat and can find in the hospital, on the way home etc. Not some crazy diet food meals or food you would not ordinarily eat or don’t see yourself eating long term.
    The other thing that really helps me in keeping to my goals - whether those are being more present for my family, or sticking with health goals- is to find some small things that make me feel good about myself and do them regularly (every day if possible). Set a favorite playlist on your phone to listen to on the way to the hospital or on the way home, see if you can find 5 min to sit in the hospital garden or chapel quietly and think/meditate/ just be, use your favorite cup for coffee or tea in the morning. Keep nice smelling lotion in the car to put on when you leave the hospital to get the smells of the hospital out of your mind and try to relax you more for dealing with home. Don’t add stuff to your already busy list if this makes it seem crazier, but if there is anything small like this that isn’t hard to do that can help you clear some mind space to give yourself energy to face whatever is next on your list when you get in the door in a planned way, rather than just reacting, that might help.
    I do find this to be a good forum to post to even to just air my own thoughts for myself and remind myself what I should be doing. I care for three elderly relatives and am also a grad school professor who is supposed to teach, mentor and publish coherent thoughts in my field of study. Lately that has been pretty challenging!
  • MamaWearsManyHats
    MamaWearsManyHats Posts: 4 Member
    I know this is a long time coming, but thank you both for your encouragement. Just a few days after this, our sweet baby passed away unexpectedly in the hospital. I’d honestly forgotten I’d posted this until today, as I’ve been getting myself back on track after the loss and grieving and one more kid. But I did want to thank you for the encouragement and kind words and thoughtful answers.

    On a lighter not, I am happy to say I am down to 243-so slow progress, but forward motion is what I’m looking for. Have a great day.