Ulcerative Colitis

guppygirl322
guppygirl322 Posts: 408 Member
edited September 28 in Motivation and Support
Does anyone out there have this, or any other I.B.D.? How do you deal with it? How do you keep from feeling blah? Any support would be GREAT, thanks. :)

Replies

  • skinnyme125
    skinnyme125 Posts: 396 Member
    I did't get any responces either when I posted pretty much the same thing. But there are others out there. I have one or two other freinds wtih it so I will look to see which ones have it and recomend them to you.
  • guppygirl322
    guppygirl322 Posts: 408 Member
    THANK YOU! :love:
  • becka63
    becka63 Posts: 712 Member
    Hi, I'm a friend of skinnyme and I have Crohn's. Feel free to add me.

    Hope you're feeling well atm
  • runlorirun
    runlorirun Posts: 389
    I have IBD and gastritis. It's not something I would wish on my worst enemy. I kept a food log for a long time until I could see a pattern in flair ups and what I had eaten. Now I just avoid certain things. As for the blah's, I have found being more active helps, even when you don't feel like it.

    I know what you mean about wanting support. Most people cant understand what an IBD or Crohn's is like. Luckily my hubby is supportive with the flair ups but other family members just don't understand. My cousin once told me that 'Everyone gets gas like pain, suck it up!" Really, trade ya spots and you can suck it up...lol

    Feel free to add me as a friend.
  • vibegirl
    vibegirl Posts: 69 Member
    Hi...I used to have severe IBS (tests said borderline colitis??) and some anxiety went along with it! I'd say it had the best of me for 7 hrs...anyway I am now a natural health practitioner because of it, lol....anyway it took a lot of research back then, before I got truly educated, but hey, I got better and know it's do-able. Lots of natural information out there that most don't realize...but it can be life changing!
  • dls06
    dls06 Posts: 6,774 Member
    My son has crohn's. He is on immuno suppressants. I am sorry anyone has to deal with this. I will keep you in my prayers
  • becka63
    becka63 Posts: 712 Member
    Does anyone out there have this, or any other I.B.D.? How do you deal with it? How do you keep from feeling blah? Any support would be GREAT, thanks. :)

    I thought I'd add onto this.

    I'm on medication, which includes immuno-suppressants. I have found the last 6 months to be some of the best since being diagnosed, and I am fairly certain that including exercise helps a lot. That said, when you're feeling blah, exercise is often the last thing you want to (or physically) can do.

    I try to eat healthily, I've just discovered an intolerance to nuts, which has got me down, but at least I'm feeling better for cutting them from my diet.

    For me, the main thing I try to do is to keep my immune system in tiptop condition, through the ways mentioned. I find the meds help the crohn's but it's when external things mess up that it all goes pear-shaped... ie catching a cold, feeling run down etc.

    I hope that helps your question, as I said before, feel free to add me if you would like support :happy:
  • Softly_Sedated
    Softly_Sedated Posts: 11
    Hi, I just found this thread. I just posted this on another thread about UC:

    Hi, I am a twenty-eight year old woman and was diagnosed with UC at twenty-six after having symptoms/beimg ill without treatment or diagnosis for about eight months. I've only been hospitalized once, luckily, which was actually a blessing because it led to being diagnosed in three days instead of waiting three to six months to see a specialist (I am in Canada, so it would be free, but I would have to wait). I have flare-ups with small amounts of stress, unfortunately, and have experienced the misery of having to take prednisone a few times. I currently take 3200 mg of Asacol (mesalamine) a day. Generally, I am pretty healthy, UC -wise. I don't workout when I have a flare-up. I feel awful and just want to not move.

    Unfortunately for me, there doesn't seem to be foods that trigger me in a concrete way - I have kept food logs before MFP, and I could have something one day and it doesn't bother me, but if I have the exact same meal a week or a month later - even a day later - it does.

    My husband is extremely supportive, as is my immediate family. Most people don't want to know about UC once you tell them it is a form of IBD!
  • beth535
    beth535 Posts: 31 Member
    Hi everyone.
    Just saw the post. I was diagnosed with Crohn's in 1995 when I was 40 and told I'd had it for 15-20 years. I'm one of the very fortunate ones in that my flare-ups are infrequent but generally result in hospitalization. I've also been hospitalized for bleeding a few times, which was quite serious one of those times. It took a long time to get on the right regime of medications. I've taken Asacol for years. I was on 6-MP (immuno-supressant) for nearly 10 years but it caused liver problems. I didn't take any immuno-suppresants for a few years. Then I had a serious flare. For the past year I've been on Humira, which has made a big difference.

    So much of how we feel is about our attitude. Because of chronic, organic depression I've been on anti-depressants for a long time, which certainly helps. When the blahs turn into the serious blues that won't go away, it's time to get professional help. Cognitive behavioral therapy is a great help because it teaches you how to change your "brain talk" so that it's more positive and supports good emotional health. Unlike psychotherapy of years ago, CBT can take as little as a few weeks or months to make a major difference.

    I have a tremendous respect for those IBD patients who have to deal with their symptoms and care daily to maintain remission. I'm fortunate that I can eat mostly what I want until I experience some inflammation. Then I change my eating for a while. For me, the Crohn's is pretty-much related to stress, so exercise and relaxation are key.

    Feel free to friend me.
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