Endometriosis Diet... Does Anyone Follow This?

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I need help and ideas please. I just had my surgery and am still in some pain. Hopefully I'm still healing but the doctor didn't get all of it either.
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  • ♥_Ellybean_♥
    ♥_Ellybean_♥ Posts: 1,646 Member
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    what did you have surgery for? and what did they do?
  • meli_medina
    meli_medina Posts: 594 Member
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    I did it... it helped with the pain management issues I had for a while, but it was hard to stick to and so I started adding things back slowly (after about 3 years of following the diet religiously) to see what of those things were pain triggers.

    I didn't go on it all at once, either. I started with removing one thing from my diet at a time (dairy was the most difficult) and learning how to cook in new ways. Luckily, I haven't had to live that way forever. My endometriosis went from stage 4 to stage 0 in that time, and I've been able to stay at stage 0 with reintroducing all of those foods.

    Good luck!
  • teranlovesgary
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    I had a.laprascopy to remove the endometriosis and also found out I have polycystic ovaries.

    I just don't know what to eat besides veggies and beans.
  • meli_medina
    meli_medina Posts: 594 Member
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    Quinoa, rice, fish. You can have berries and nuts, also.

    There's a cookbook out there, too, but I never bought it. I got a lot of great vegan recipes, without soy, off of the web. If there was an ingredient on the "no no" list, I found a decent substitution. I learned how to take black beans and make a decent burger. I also learned how to make something similar to tuna salad with soy-free veganaise and chick peas and make my own wheat-free breads. It wasn't a cheap way to live, for sure, but It helped when I thought nothing would.

    One thing, though. If you really like dairy, and try to switch to rice cheese, it isn't eve a near decent substitution. I was never really able to find one that I could stomach, so for a while I didn't have cheese. That was one of the last things I took out and one of the first things I added back when I decided to reintroduce foods back into my diet. I am a cheese lover, which is why it was so hard for me!
  • teranlovesgary
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    Thank you! I'm not a cheese eater really but I do love low.sugar yogurt and ff cottage cheese. No more though :-(
  • monylove311
    monylove311 Posts: 251 Member
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    There's a diet for this? Why didn't my doctor tell me? Damn doctors!
  • Helloitsdan
    Helloitsdan Posts: 5,565 Member
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    Lupron Depro?
  • MelMoly
    MelMoly Posts: 1,303 Member
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    ooo there is a diet to help?
  • MelMoly
    MelMoly Posts: 1,303 Member
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    I had a.laprascopy to remove the endometriosis and also found out I have polycystic ovaries.

    I just don't know what to eat besides veggies and beans.

    i have to have this done in a few weeks :( im scared
  • meli_medina
    meli_medina Posts: 594 Member
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    Lupron Depro?

    Depo Lupron is a decent way to reduce endometrial tissue, but the only way to know for sure whether it works is to have another laparoscopy. But by removing all of the excess hormones that you ingest on a daily basis, it can also help shrink the endometrial tissue as well. :)

    And the link that you gave above is correct, that is the exact diet I was following and the cookbook I did not buy! LOL!
  • CAN_DO
    CAN_DO Posts: 37 Member
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    I have this i have had two laraposcopys now i am trying to maintain my pain but its so difficult as i have to sometimes do seperate dinners please help em and be my friend x
  • teranlovesgary
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    Good luck with your surgery!

    I'm going to follow the diet as much as I can. Coffee (caffeine) I notice causes.almost instant cramps.and achyness so that'll be the first to go! :'(
  • teranlovesgary
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    Oh and I refuse to go on any BC to control it. They are way too scary. I have polycystic ovarian.syndrome as well so I am taking a ridiculous amount of vitamins and supplements to help control both. I've lost over 130lbs without the help of doctors and meds. I actually regulated my period which is extremely difficult with.pcos. I hope to do the same with my endo and my whacky hormones.
  • teranlovesgary
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    Oh and that website above is the best. Everyone with endo should read thru it.
  • moujie
    moujie Posts: 229
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    Endo is a PITA! I have suffered for 12+ years. I did bc continuously for several years, I had 2 surgeries to remove large endometriomas, one where they also removed one of my ovaries which was completely pulverized. Then I had laparoscopy to remove all of the endometriosis tissue. Then this past summer I finally consented and had a total hysterectomy. My advice to anyone who is currently suffering is this: do whatever you can to help alleviate your pain because if you are like me and suffering from daily pain 24/7 that is no way to live. Try the diet. If it works for you then GREAT! it did not work for me. But it's always prudent to try things like that before going to the surgical route if possible.

    I was an extreme case but I have found that there are many women in this boat. Many women find relief after pregnancy...in my case I couldn't get pregnant probably because of the endo (no sympathy please, we adopted and I have the worlds best baby and no regrets). after years of insisting I would not give up "my parts" I came to the conclusion that I had no other choice. I found a really really good doctor (on my own through an internet search) and he did the laparascopy to remove the endo tissue & implants which gave me relief for awhile but it all came back. So far the total hysto has been a god-send! I worried over possible side effects but I'm doing great and not a hot flash in sight. whoo hoo.

    But I can't stress enough how having the right doc makes all the difference. First you want one that understands this isn't all in your head and that the pain is far beyond a painful period. Then they have to have the most current techniques if you're going to go the surgical route. My surgeon used a blue light in the laparoscopy which helped him find all the endometrial implants. Often when endo starts it is not even visible to the eye under typical laparoscopy -- with this blue light the surgeon was able to see implants because he could see the little network of blood vessels that the endo implant creates to "feed" on. Because even a total hysterectomy is worthless if they leave any endo behind (the endo because it is endometrial tissue can actually supply itself with the estrogen it needs to grow). And you also want a doc that listens to what you want - doesn't push depo on you if that's not what you want to do, etc. Having the right doc can make all the difference. I'm more than happy to recommend mine if anyone is in the Maryland area and looking.

    Wishing you all pain free days!!
  • meli_medina
    meli_medina Posts: 594 Member
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    But I can't stress enough how having the right doc makes all the difference. First you want one that understands this isn't all in your head and that the pain is far beyond a painful period. Then they have to have the most current techniques if you're going to go the surgical route. My surgeon used a blue light in the laparoscopy which helped him find all the endometrial implants. Often when endo starts it is not even visible to the eye under typical laparoscopy -- with this blue light the surgeon was able to see implants because he could see the little network of blood vessels that the endo implant creates to "feed" on. Because even a total hysterectomy is worthless if they leave any endo behind (the endo because it is endometrial tissue can actually supply itself with the estrogen it needs to grow). And you also want a doc that listens to what you want - doesn't push depo on you if that's not what you want to do, etc. Having the right doc can make all the difference. I'm more than happy to recommend mine if anyone is in the Maryland area and looking.

    This is so true. I went through several GYNs who were not specialists and thus wanted to treat the problem with more drugs. I have a history of bad, bad health problems with any kind of BC (migraines, excessive weight gain *as in, 50+ pounds in 3 months with a normal diet*, and other woman-type problems), so didn't want that option if I could help it. I also left my family doctor because he tried to treat my pain with antidepressants (while I was still looking for a specialist). I, too, have an awesome doctor in the southwest Michigan area. She's tough to get into (it can sometimes take MONTHS unless you have an urgent or emergent need), but she was willing to be open minded, and treat it under my terms, AND also referred me to a GREAT family doctor, to boot. :)
  • sweetheart_wi
    sweetheart_wi Posts: 15 Member
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    I was dignosed with this early in 2011, had tha laproscopy done, and now told "its back..
    I had no idea that there was a diet for this they just want me to get a hystrorectomy..

    I find this very interesting... any more information would be great !!
  • teranlovesgary
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    I don't know why the doctors don't mention the diet. So many foods cause.your.estrogen.levels.to become whacky.and other.things cause inflammation. Check out the site above. I'm also taking every vitamin that.they have listed as well.
  • Helloitsdan
    Helloitsdan Posts: 5,565 Member
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    My wife has had 3 procedures. The doc said her insides were like gorilla glue! Shes been on BC nonstop but now that we are much healthier we are going to see the doc about coming off of it.