Has anyone heard of PTLS (Post Tubal Ligation Syndrome)?

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reneepugh
reneepugh Posts: 522 Member
in Motivation and Support
Since my daughter was born 2 years ago, I have had an array of symptoms including exhaustion, mood swings, weight gain, breast tenderness, painful menstruation and cramps, anxiety, night sweats and headaches (I never had any of these prior). My doc said it might be PTLS. Apparantly some tubal ligations can cut the blood flow off to the ovaries and cause early menopause. I am only 35! I went through several tests after my doc sent me to the hospital thinking I had a brain aneurism or a blood clot in my brain because of a chronic headache and bloodshot eye only for them to tell me it might be due to PTLS. I am now taking anxiety meds, calcium and a low dose aspirin (for my clotting disorder which gets worse as my body ages) in order to combat the symptoms of menopause. Has anyone else had a tubal and now having problems because of it?
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  • reneepugh
    reneepugh Posts: 522 Member
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    I really hope there is someone else that is having post tubal ligation problems! Anyone???
  • Ashley1972mcc
    Ashley1972mcc Posts: 8
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    I've had several of those symptoms since my tubal ligation (not all, thankfully) and my doctor mentioned the same might be possible. Since my symptoms aren't horrible or much in the way of life altering - just a severe annoyance, really - I'm just keeping notes of my symptoms over the next few months and trying some natural remedies to alleviate some of them. What does your doctor propose to do? Anything?
  • ccb1030
    ccb1030 Posts: 84 Member
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    I've heard of it, but never known anyone to have it. I work with a bunch of OBGYNs and they say a lot of the "symptoms" after a tubal are more of a result of not taking hormonal birth control anymore. Lots of people who were previously on birth control pills/patches/rings etc stop taking all of that once the tubes are tied, so now you have contraception, but not all the hormones to keep things balanced out.
  • Ashley1972mcc
    Ashley1972mcc Posts: 8
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    In my case, I wasn't on any hormonal birth control and hadn't been for over 4 years. (They REALLY mess with me)
  • carebear7951
    carebear7951 Posts: 404 Member
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    Yes!!!!!! It is real. My mom ended up with all kinds of problems due to her tubal ligation. I had one scheduled last thanksgiving (2010) but I canceled it because I just couldn't handle the thought of being forever changed. i'm okay with not having more babies (I have 4) but that is some scary stuff. I hope you can find a way to get this under control. I'm so sorry no one warned you about it before you had it done. :(:(:( Thankfully everyone warned me from the lady scheduling my tubal (who'd had one and now suffers) to friends, etc! I only have heard like 1-2 positive tubal ligation stories. You are not crazy and even when the ob/gyns won't cop to it, it's REAL. Hang in there, keep working with your dr who does acknowledge it.
  • petreebird
    petreebird Posts: 344 Member
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    A friend of mine had/has it!! Yes it is real!! I'm sorry that I can't give you any further info on it, but yes I do know someone who has had the same problem and symptoms.
  • SONIA820
    SONIA820 Posts: 208 Member
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    I have a friend who has talked about all the things you mentioned, I might have to mention this to her....she just had to have an ablation and there is a plan for a partial hysterectomy to combat the abnormal things going on with her....
  • p1xelate
    p1xelate Posts: 141 Member
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    My girlfriend started menopause after hers and she was in her early-mid twenties. They did a tubal so young because she had so many health problems during both of her pregnancies and they weren't sure she could make it if she tried again. I know she had a rough time with it for quite awhile.
  • JollyJane13
    JollyJane13 Posts: 62 Member
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    I had my tubal ligation almost 9 years ago when my twins were born. Now I am not sure how yours was preformed, but mine was done after the c section. I have had less cramps, less PMS like symptoms, and am so regular you can set your calendar to my menstrual cycle. I am sorry you are having these issues, as it is something you can't just switch back and mine has been such a success. I hope the best for you.
  • catintheshell
    catintheshell Posts: 51
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    i've not had any problems with mine (aside from getting pregnant). i also heard it was mainly a result of coming off hormonal birth control.
  • Ladyhawk71
    Ladyhawk71 Posts: 18 Member
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    I'm confused have you had your tubes tied or no?? ( these symptoms sound as though your body did it's own tube tying).
  • dragonsheart84
    dragonsheart84 Posts: 75
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    I had to have a total vaginal hysterectomy at the age of 24. They left my ovaries in but I have many of the same symptoms and I am just contributing it to that. Just because you still have your ovaries does not mean they will still work the same way. I have seen in the last few months more gray hairs than I have in the last 4 years since I had it done. I will be 28 in April and am pretty sure I am in menopause. I get hot and cold (hot flashes), headaches and such. I refuse to do hormonal therapy because that will just mess with me more.
  • Roni_M
    Roni_M Posts: 717 Member
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    I had mine done a little over 18 years ago after the birth of my second child. I was 20 at the time but have a bleeding disorder so the specialist didn't think I should have any more kids due to complications (which was fine by me since birth control was not working out so well for me...failed birth control pills at 16, followed by a failed IUD at 20). Luckily haven't had any problems with it.
  • beckym71
    beckym71 Posts: 3,511
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    I'm so sorry that you are having so many complications :frown:

    For me, after 4 babies in 4 years, the 4th @ age 21, with failed birth control and only 1 ovary and ovarian cysts on the remaining ovary so I SHOULD have had fertility problems, it was a life saver. I've never had any issues related to it, in the nearly 19 years since.

    I hope you are able to find relief soon! :flowerforyou:
  • godblessourhome
    godblessourhome Posts: 3,892 Member
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    it is a real condition. i went through menopause (primary ovarian failure) at the age of 27 because of pcos and did a lot of research on hormones and early causes of menopause.

    many women have had success getting rid of the menopause by having their tubes untied.
    http://www.tubal-reversal.net/blog/2011/tubal-ligation-reversal/ptls-pain-ptls-treatment.html
    http://www.tubal-reversal.net/blog/2011/dr-berger/tubal-ligation-symptoms-cure.html
    (there are more; this is just one person's story. google 'tubal reversal changes ptls symptoms' for additional info.)

    hope that helps.
  • PinkEarthMama
    PinkEarthMama Posts: 987 Member
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    I'm pretty sure I have this too...
  • garlic7girl
    garlic7girl Posts: 2,236 Member
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    I will ask our OB/GYN at work!
  • Scorpioangel
    Scorpioangel Posts: 951 Member
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    Yes I have unfortunately :(
  • pfarley68
    pfarley68 Posts: 83 Member
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    Yes, I have heard of it and I am a victim of this also. After my last child in May of 2006, I had a tubal ligation and my health started deteriorating afterwards. It was so bad that I had a tubal reversal in January just to have hope of feeling better. It has been a nightmare and I am struggling to get my health back.
  • mztashondat
    mztashondat Posts: 2 Member
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    Wow I never heard of this before. I have my tubal in Feb of this year and have had no troubles that I am aware of or noticing. I hope nothing starts. I hated being on BC because I was having the headaches and craps and all that jazz...I def think the hormones were the cause of my issues.

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