Anyone with lupus out there?!?!

Chanellie
Chanellie Posts: 23
edited September 25 in Motivation and Support
Hey guys. I have SLE lupus and I'm trying to lose weight that my medication packed on. Is there anyone else out there with similar issues? If so, add me so we can get through this together!!! :wink:

Replies

  • cowlover22
    cowlover22 Posts: 309 Member
    Hi I have lupus to. I have been on prednisone for over 20 years, but luckily at a low dose. Right now I dont have trouble with losing I need to gain, but I used to be over 200 pounds. Cant really give you any suggestions since now I am anorexic..then bulimic, but if you are able to exercise at all(I know it is hard with lupus..just had a bad flair) that will help. Also watch how much salt you are using. A lot of the meds make you retain water and that is hard on your kidneys. Basically eat healthy and avoid fatty foods and foods high in sugar that should help some, but any other ideas I dont much know. It is hard enough having the illness but then you have to deal with the side effects of the meds to. Good luck:wink:
  • ciderroo
    ciderroo Posts: 3
    I was diagnosed with SLE Lupus and Fibromyalgia about a year ago. I am currently on two different medications as well as prednisone. It is really frustrating because since the diagnosis I have gained about 25#. Exercising is difficult because increasing two quickly or doing even a little more than what my body is used to can set off a flare up that can last for days or weeks. I have to be very careful of not over doing it or I set myself back. All I really want to is try to get into this and start pushing myself to exercise to lose some of the weight and instead have to work more slowly at it. So I feel for you.
  • onlysony72
    onlysony72 Posts: 6 Member
    I have just been diagnosed with lupus. I have been having symptoms for a couple of years but couldn't pin point what was wrong with me (never thought lupus). Then I got Raynaud's in my fingers and took pictures of it to show my doctor. He sent me for a million blood tests and low and behold...LUPUS! I have my 1st specialist appointment on March 8. We'll see what she has to say to me.
    In the meantime I'm at my highest weight EVER and need to lose. I need to take better care of myself and keep the weight off my joints.
  • RumOne
    RumOne Posts: 266 Member
    I have SLE and Fibromyalgia. I was on Prednisone for 6 months and although I feel better now, I have a ton of weight to pull off.
  • overachieving
    overachieving Posts: 20
    I've had SLE since childhood, been on prednisone for 13 years :( and I've struggled with my weight ever since. I'm trying to get into a healthy lifestyle before starting grad school, and looking for new friends on MFP! I'm adding you :)
  • EPhinn
    EPhinn Posts: 119 Member
    Just letting you know that I just created a group on here called "Living and Losing with Lupus". Please join so we can get a support system going!


    Thanks!!
  • cowlover22
    cowlover22 Posts: 309 Member
    Just letting you know that I just created a group on here called "Living and Losing with Lupus". Please join so we can get a support system going!


    Thanks!!
    Think this is a great idea because nobody understands more than somebody who is going through it
This discussion has been closed.

Categories