Hashimoto's? Anyone else share the disease with me?

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  • I was diagnosed in August. Add me, I need more motivation!
  • pen2u
    pen2u Posts: 224 Member
    I've been dealing with Hashi's for years. My HMO doctors look at my data but won't help me deal w/symptoms such as hair loss, low body temp, brain fog, etc. I now use the Wilson's Temperature Syndrome site for supplements but also take the levothyroid the endo prescribes. Exercise & limiting gluten + sugar helps me a lot. If I can afford it I will start going to a doctor who treats Wilson's TS & understands the connection between low body temp & Hashi's, fibro, CFIDS & arthritis.
  • lesle1
    lesle1 Posts: 354 Member
    I have had an underactive thyroid for 18 years. I take 150 mcg and every third day 175 mcg of synthroid. It didn't seem to be working but the more I exercised the better I felt. I haven't felt this good in years. I feel 20-30 years younger. I HAVE to get my exercise fix order to feel good. My kids no longer run or walk with me. They can't keep up :smile:
  • ahavoc
    ahavoc Posts: 464 Member
    IMPORTANT! Blood work may be inconclusive when it comes to Hashimoto's. That's why I was misdiagnosed for so many years. The blood work said I was ok. But I had small goiters, (lumps) in my thyroid and the one great doctor I went to did an FNA, Fine Needle Aspiration, where they stick very fine needles into your thyroid for cell samples. No anesthetic, but I lived! lol! Anyway, that's how I finally go diagnosed. So don't let them just take a blood sample. Insist on the better test!
  • I have it also. I am not on medication and I am wonder if there are other people who aren't on medication yet and are able to lose weight. I haven't lost anything since April :( Feel free to add me. Anyone. :smile:


    I have it as well and am not on medication because I have no insurance at this time and don't wish to saddled with a pre-existing condition. My mother and both sisters have it as well...
    I have lost 72 lbs but it has taken me almost 3 years. I go for months doing everything right and not losing. It totally stinks and gets very frustrating, but you just have to keep going. With Hashimoto's, if you stop tracking your food or exercising, you can gain 20 lbs at the drop of a hat.



    That is fantastic! What an inspiration!
  • Tara4boys
    Tara4boys Posts: 515 Member
    I've had Hasi's for 6+ years now - I was first diagnosed when I was pregnant with 3rd son. It's been pretty well controlled until the past 6 months. Dr. keeps having to bump up my meds. That reminds me - its time for another blood draw.
  • JinxRita
    JinxRita Posts: 191 Member
    I have Hashimoto's as well, and have been desperately seeking some weight loss role-models! Feel free to add me, anyone. I'd love some help!!
  • msiamjan
    msiamjan Posts: 326 Member
    Hashimoto's is quite common and the most common cause of hypothyroidism. I was diagnosed 24 years ago and have always struggled with my weight. I don't think it all is due to thyroid disease--but it sure doesn't help.
  • torsaer
    torsaer Posts: 211 Member
    Yes, I do, and take thyroxine. I find it extremely hard to lose weight and extremely easy to put it on! But exercise is CRUCIAL for me. I've recently taken up running again and love how it makes me feel ( afterwards, rather than at the time!!)
  • rukia30
    rukia30 Posts: 81 Member
    I have Hashimto's and type 1 diabetes. I got Hashimto's first and then antibody testing since Hashimto's is an autoimmune attack sometimes type 1 diabetes is found by that diagnoses since it is also an autoimmune attack. I would love to be anyone's friend. Feel free to add me.
  • CricketClover
    CricketClover Posts: 388 Member
    I too have Hashi's. I was diagnosed in March 2011. My heart rate got crazy high when exercising, like 200 bpm when just walking. I mentioned it to my doctor and she wanted to do a stress test. After the stress test she said there didn't appear to be any problems and said maybe I had an OVERactive thyroid and maybe that was what was causing the high heart rate. They did a blood test and found out it was Hashi's. My sister also has it and almost everyone in my family has a thyroid problem so it wasn't really a big surprise. I have two small nodules, my doctor said one has now shrunk so small that it can't even be measured.

    Also, I have started a gluten free diet as of this week. I have read that there are connections between gluten intolerance and Hashi's, and I have the stomach issues that come with the gluten intolerance. I am hoping that between the new diet and taking my synthroid every day I will start to have more energy :smile:

    Feel free to add me!
  • geezalawheez
    geezalawheez Posts: 22 Member
    Also, I have started a gluten free diet as of this week. I have read that there are connections between gluten intolerance and Hashi's, and I have the stomach issues that come with the gluten intolerance. I am hoping that between the new diet and taking my synthroid every day I will start to have more energy :smile:

    I also have Hashimoto's hypothyroidism. I was just switched from Levothyroxine to Armour and feel so much better. I cut out gluten a few weeks ago as well, and am finally starting to gradually lose weight after about a year of dieting, exercising, getting frustrated and giving up, and starting all over again. I also take D and B vitamins which greatly improved my mood and energy levels.
  • geezalawheez
    geezalawheez Posts: 22 Member
    I'd like to correspond with others on MFP who also have Hashimto's since success and trials are a bit different for us given our obstacles.

    Have you joined the "hypothyroidism and hyperthyroidism" group? There is a lot of trial and error involved in figuring out what works for you, but there are a lot of people in the group with great suggestions.
  • Kenzietea2
    Kenzietea2 Posts: 1,132 Member
    Hashimotos sucks, I am in the same boat :)
  • mumof5
    mumof5 Posts: 328 Member
    i had an underactive thyroid for the last 20 years or so caused by hashimotos. yes i get tired, exhausted, everything in my body and mind is slow but i dont allow myself any excuses. my mother uses it as her excuse and i refuse to be an old lady by the time i am 55!! it just means we have to work harder, watch our diet more, know what foods to avoid and what to eat. I have a long history in medicine as well and i can tell you a gp is not the best option to go to for tyroid disease, unless you can find one that is interested in the endocrine system! there are several tests they can do but they chose not to or dont know how to do them. good luck finding a great dr who understands YOU! feel free to add if you like :)
  • jflo2011
    jflo2011 Posts: 31 Member
    I have it. feel free to add me. :-)
  • I don't have Hashimotos but do have an underactive thyroid which certainly seems to be slowing me down as fra as weight loss goes, despite the thyroxine. Or maybe I'm just hoping thats why.....!
  • Yes, I do. Unfortunately, I'm only a teenager and have had hashimotos since I was seven. They couldn't figure out it was hashis until just last year. It has been a struggle for me because I can't eat all the crap other kids can and not see the effects like them and I'm terrified of needles so I put off blood tests for as long as possible. I am an athlete and watch what I eat very carefully but I can gain weight super easily. The good thing is that it makes me have to eat healthy foods just about all of the time so I'm treating my body much better than most teens!
  • 6 years dealting with Hashi's & fighting my weight every day! I finally found a nurse practioner who prescribed Armour Thyroid instead of Synthyroid (which didn't help me). I was able to lose almost 30 pounds last year using Weight Watchers but have since gained back about half of it. Today is day one starting back for me.. Armour Thyroid is a "natural" thryoid replacement instead of synthetic. I've only been on it for 3 weeks but have to say I'm starting to feel better again.. I have to say exercise is key for me.. I have to force myself onto the treadmill but if I don't I could sleep 12 hours a day & never have energy. Doctors are not that great about treating this disease.. TSH levels can look "in range" & yet you can feel like you're dying..

    Edit: There are some really GREAT facebook pages for Hashi's.... Thyroid Sexy is one (run by Gena Lee Nolan of Bay Watch fame)..she has the disease & is writing a book about it as well as trying to advocate more research. Another facebook group is Stop the thyroid madness... both are excellent sources of info as well as great ways to connect with others dealing with this disease.
  • hster3
    hster3 Posts: 11 Member
    I was diagnosed with Hashimoto's when I was 16, but didn't go on meds until 3 years ago. I have a terrible time losing weight, and am lucky if I can get a pound off in a month. It also seems that one slip up day leaves me feeling bloated and horrible. I am on levothyroxine and cytomel, but am considering switching to Armour because I do not feel any different.

    Question for all those suffering with Hashi's and have had success with weight loss: How have you figured your daily calories? Do you go by what MFP suggests, or do you subtract some due to a low BMR?

    Also, does anyone else suffer from adrenal fatigue in addition to thyroid problems?
  • amychantel
    amychantel Posts: 52 Member
    I do too! Please add me as a friend!
  • vomma2
    vomma2 Posts: 13
    I have Hashimoto's as well. I was diagnosed two years ago. I'm taking Levoxyl. The symptoms that I still continue to battle are: Exhaustion, Dry skin, and of course Weight! I just started using this site to help me on my path to good health/diet, and I'm looking for new friends to share stories and cheer each other on. Feel free to add me. Thanks
  • geezalawheez
    geezalawheez Posts: 22 Member
    I have Hashimoto's as well. I was diagnosed two years ago. I'm taking Levoxyl. The symptoms that I still continue to battle are: Exhaustion, Dry skin, and of course Weight! I just started using this site to help me on my path to good health/diet, and I'm looking for new friends to share stories and cheer each other on. Feel free to add me. Thanks
    If you are on medication and are feeling even a little better but are still having hypo symptoms, you might consider switching to a different medication. Synthetic thyroid relieved some of my fatigue, but I began to experience mood swings, irritability, brain fog, and depression. When I told my doctor and asked to be put on Armour he refused and instead suggested that maybe I was taking too much medication and advised me to take my full dose one day and half my dose the next day. On the half dose days I was utterly exhausted. After a few days of that nonsense I fired that doctor and found another one who would actually listen to me. She switched me to Armour as I requested and, after my latest labs came in, actually raised my dosage.

    I think it's easy to forget what "normal" feels like, so we accept any improvement as the best it's going to get. Diet and exercise definitely play a part in how you feel, but if you are still having symptoms then something needs to be adjusted. Good luck to all!
  • I have Hashimoto's!
  • I found out about a year ago that I have Hashimoto's! Anyone can feel free to add me. :)
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