Rheumatoid Arthritis

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Hi

I am not sure where this post belongs. Here will do.

I have been diagnosed with rheumatoid arthritis and am in a pretty bad place right now with hands that hurt even just typing, one knee that is 3 times its usual size and feet that are painful to walk on. I have a specialists appointment next week and will hopefully get some good drugs to help.

Is there anyone else with this condition who can share their experience? I know I will get back to some form of exercise, but I am a runner (3 marathons under the belt and an average of 60+ kilometres per week), personal trainer and all out gym junkie. I don't expect to get back to all of this but I don't want to be skinny fat either.

The other thing I have read is that a gluten free diet may help. Any thoughts on this?

Any help would be greatly appreciated.

Donna
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Replies

  • donnam40
    donnam40 Posts: 246 Member
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    Anyone?
  • ashka86
    ashka86 Posts: 7 Member
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    Hey!
    I don't have rheumatoid arthritis but I have something similar.

    I've suffered from knee pain since I was 12 years old. I'm 25 now and decided enough was enough. I have worked out and felt nothing but pain for years I finally decided it was time to see my doctor.

    When an MRI was done it turns out I suffer from Chondromalacia Patella. It's a fancy way of saying I have arthritis in my knees.
    My DR is short told me, "How do you cure arthritis? You don't."

    I was very discouraged to learn that not only there was nothing anyone could do, but that I would have to live with this forever.
    I could have been upset and just pouted but instead I started researching this is the best advice I can give.

    After reading and reflecting I realized a few things.

    1) Now I knew what was going on, I could realize the level of pain I was going to have to live with and work through.
    2) There were things I was capable of that could help and at least dissipate some of my pain.
    3) There are different exercises I'm going to need to learn in order to stay healthy.

    I don't how different this is from yours but I'm finding things that help me and understand what is going on.
    I started drinking a glucosamine supplement that feels like it’s helping but it's not a cure all.
    I started taking it easier on myself, not being so upset and not focusing solely on the pain.
    It helps to learn more and what you can do to help and live with this.
    I'm not sure if that helps but that's the best advice I can give.
    Also I learned through the ergonomics at my work that the simple things you do every day can have an adverse effect on your body. Simple things like where your keyboard is placed, chair settings, etc.
  • Tondra2
    Tondra2 Posts: 21 Member
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    I know somewhat what ur going through. I was diagnosed with a non discriptive connective tissue disorder back in dec. My dr couldn't help me find a solution to the pain or fatigue. I did my own research. I found out animal products can increase pain. I gave up animal products march 20. I occasionally have cheese for pizza and started juicing. The juicing helped with the fatigue. I also stopped eating a lot of processed foods. I feel a lot better. Pain is lessening. I was able to walk-run a mile for the first time in 5 months with out a ton of pain. If you want support you can add me as a friend. I'm knew to this and get depressed that I cant do my walking races right know. My goal is to get myself better to do a 10 miler in sept. no one understands the pain you go through. I'm here to be supportive if you want it.
  • itsafrappe
    itsafrappe Posts: 162 Member
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    to be honest i wonder if you have more going on than rheumatoid arthritis. i am 32 now and was diagnosed with ankylosing spondalyits when i was 16. It is a rare form of ra that affects the spine as well as the typical joints. in all those years i never had too much issue with foot pain until just recently. also with ra you typically see lateral swelling. in other words i would think both knees would be swollen. im no expert but hopefully you find out more when you see your specialist. i dont know how much help i can be as im new to the who myfitnesspal thing and have just recently become more health conscious. i have lost some weight and that alone has helped take pressure off of my joints. you sound like you are physically fit, and im assuming have a decent diet. food can play a big role with inflamation. certain acids in things like tomatoes can cause inflamation as well as cows milk. also consuming too much red meat is not good aside from the obvious reasons. i recently visited "the runners retreat" here where i live. it is a specialty shoe store that helps find the perfect shoe for specific foot problems. since i bought my pair of running shoes i have noticed a signifcant difference. i also wear compression socks from time to time to help improve my circulation in my legs and that has also helped with the foot pain. arthritis is no fun but there are things you can do to make it more tolerable. my doc prescribed me enbrel. its a wonder drug as far as im concerned. id love to hear how your visit goes and see how you are feeling. feel free to add me if you would like to share. from one arthritis sufferer to another you need support
  • donnam40
    donnam40 Posts: 246 Member
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    Thank you all for your replies. Nice to know I am not alone here. All of you have some sound advice to offer.

    I have wondered if there is something else - RA is your immune system attacking the joints, and I also have Hashimoto's disease where the immune system kills the thyroid. I saw the sports physician today and he has said the two are definitely connected. When I see the rheumatologist next week I will be asking a lot of questions. The sports physician gave me hope that I will be able to run again once this us under control. Great news!

    Tomorrow I am going to start a diet based on some research - I am cutting out gluten, alcohol and reducing sugar (hidden as I am not one to add it). I'll start tracking what I eat again and use the comments to keep track of how I feel. It will be interesting to see.

    Friend requests on their way!
  • Jgen62
    Jgen62 Posts: 66
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    I have Rhem arthritis and my knees have been swollen in the past as well as my ankles, hands. I take plaquenil. It helps me stay out of a flare ups which is what seems like you are having. The Dr. will probably put you on prednisone, short term for the inflammation, while trying to find the best medicine that you will tolerate. If you are in a lot of pain you can have your knee drained and given a cortisone shot. The prednisone will also help with your painful hands and there are not many side effects if you are on it short term. Sorry to hear you are not feeling well. Hope you get some good news at the Drs. They have come out with some really functional drugs recently. ~J
  • donnam40
    donnam40 Posts: 246 Member
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    Thanks. Sorry to hear about your struggle. I am hoping the meds will help slow it down. My knee has been drained twice in 4 weeks. The corisone lasted only 10 days. But when the fluid is mainly gone, it certainly feels a bit better.

    Best of luck to you.

    Donna
  • HopeFaithLove71
    HopeFaithLove71 Posts: 22 Member
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    I have RA as well, it's complete heck! It is a really bad place when your immune system is attacking itself. The gluten free has helped me.
  • melisha922
    melisha922 Posts: 19 Member
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    Late to the game but I have RA and was diagnosed about two years ago (although I've been living with pain for years). And yeah, it SUCKS!!! I too was an athlete (swimmer, basketball, etc) but eventually the pain made it impossible to continue. Anyhow, what I can tell you is that it REALLY helps to find a great rheumatologist who can walk you through the many different medications. When you find the right balance of meds, you'll start being able to do stuff again and the swelling will go down. Sure, there will always be bad days, but hopefully those will be fewer. I'd also look into exercise that had less impact on the joints than running. Changes in diet can help but that is very dependent on you as a person. You could try eliminating food groups (like nightshade veggies) for a few weeks and see if that helps. The biggest diet thing that can help is cutting out processed food. Additionally, leafy greens , regular doses of fish oil, and increasing fruits and vegetables in your diet have been shown to decrease inflammation. Make sure you're getting regular blood tests to make sure you're not deficient in any other vitamins (I have to regularly take D vitamins bc the RA causes a deficiency for me).
  • vbennett7
    vbennett7 Posts: 99 Member
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    Hi. I don't have RA, but I have Osteoarthritis in my hands and hip( I am only 45). My friend termed it "you have your grandma's hands! ( Thanks!)
    Anyway, I have read that eating walnuts, almonds or pecans can help. I don't know if it helps a lot or if it helps RA. Just a bit of info for you.
  • saxmaniac
    saxmaniac Posts: 1,133 Member
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    I have it, but am lucky that it's fairly mild, and under decent control. My right hand swelled up a few years ago and I couldn't even make a fist. A large dose of steriods helped get that down, and now I'm on a low dose a few things that interact and keep it to a manageable level.
  • harleygaljojo
    harleygaljojo Posts: 111 Member
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    I have lupus, osteoarthritis, fibromyalgia, and chronic fatigue syndrome. I can do very little that does not hurt. On good days I just do as much as I can and on bad days I just have to take it easy. That's about all I can do. Hopefully as the weight drops I will be able to do more things and get to walking. Good luck, your not alone.
  • Vonnie2006
    Vonnie2006 Posts: 246 Member
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    I don'r have RA, I have Lupus. The pain in my joints however are not from the Lupus but the damage caused by the steriods, avascular necrosis. I have chronic joint pain and swelling. I was working out pretty hard there for a minute despite the pain but have recently been thrown into a major tailspin. I've just decided that I should try water workouts to relieve some of the pressures from my knees and shoulders. I don't have any advice really, just wanted you to know I share your pain and I too REFUSE to let this condition sideline me. Nuh uh ain't gonna happen.
  • Roni_M
    Roni_M Posts: 717 Member
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    I have psoriatic arthritis which is also autoimmune. A slightly different variety from Rhuematoid. No fun at all! I exercise when I can (and thankfully warmer weather is here so I can get more in!). A dx of RA doesn't mean you can't run again, it just means you'll have to listen to your body and do what you can when your joints are good. Doing some resistance training with the joints that aren't flaring will help keep your muscles strong, which in turn will help stabilize the joints if and when you have problems with them. I have periodically been out of commission during my 7 months of exercising and eating better, but I'm still chugging along! I hope they get the right combo of drugs to help you as quickly as possible. Just do what you can and don't beat yourself up when you can't.
  • Ritzbrit
    Ritzbrit Posts: 211 Member
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    I'm 27 and was diagnosed with RA at 19. Meds have definitely helped up until the last couple years. The extra weight and lack of exercise definitely put a strain on my body (especially my knees). It got to the point this past December I could hardly walk. I was sick of feeling this way and getting oh poor me's from family every time I attempted to get up and/or walk. I was re-evaluated and upped my meds. My healthy lifestyle started in March. I started slowly by walking 20 minutes, then 30. Added some swimming. I joined a boot camp Monday nights with my mom but was very hesitant because I wasn't sure I'd be able to do a lot of it. The trainer was amazing! She knew of my RA beforehand and was able to show me different things I could do to strengthen my knees or alternatives if I couldn't do something. I started MFP in April and just started tracking my calories. It's now June, I'm 16 pounds lighter and I have been able to run again. :) I continue boot camp and LOVE it! I have gotten so much stronger. I can do a modified push up when before I couldn't because of bad elbows, among other things.

    My advice is to first make sure you are on the correct meds to help control the pain and stop the disease from progressing. Then, when it comes to exercising, take it slow. Don't over do it or you'll be spending the next few days recovering. It sounds like you are very active already so you might just have to slow down a bit. Your body will tell you.

    I haven't gone gluten free because I like bread and food way too much. I did cut out pop and try not to have a lot of acidic foods because that triggers my RA.

    I'm feeling a lot better then I was months ago! Overall, keep on exercising because it does help RA. I can tell if I take a day or two off.

    Oh and P.S. cortisone injections suck! I've had them numerous times in the knees. I just had them in my elbows a few weeks ago. I feel your pain!
  • linder115
    linder115 Posts: 8
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    Hi! I'm currently waiting on a Rheumotolgist appointment, but my regular doctor thinks I either have Rheumatoid or Psoriatic Arthritis. My hands are awful, they are actually killing me right now. When I flare up (usually once a month or every couple of months) every joint in my body hurts from my fingers to my toes. My fingers swell up really bad, I get horrible back and neck pain with it. I also get really bad fatigue and an increase in depression. I ride my bike and take walks and use the elliptical. It feels better to do those low impact things while I'm doing it, but sometimes I hurt really bad afterward. I went for a 4 mile walk yesterday and just flared up today.
    Its such a struggle and I don't know what's ahead of me, but i'm not giving up on loosing weight, because I am overweight (technically obese) so it will only help to keep on chugging.
    No advice as even though I've suffered from this for about 3 years the flares are coming quicker and i'm finally getting help for it...but i'm here for support!
  • newmommynewfitme
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    Hi there ! I have lupus, RA, and hashimoto's according to my rheumy they are all connected. I've been on prednisone since the begining of my diagnosis of just having adult still's which is RA, pred is a godsend but the devil at the same time. I have cushings from being on it so long and on various levels . I would say try to stay on the lowest levels on pred as possible if you need to take it and make sure your on medications that really help. RA can make your life hard but I would say just keep pushing, don't push yourself too hard now as that causes flares and you will regret that but keep enjoying life! My flares can be anywhere from super mild to severe, not being able to get out of bed on my own. STRESS is one of my biggest flare causes, so I try to keep stress to a minimum ...yoga really helps me that . NSAID's can be your bestfriend, I miss them as you can't take them pregnant but they really keep the inflammation down and give me the ability to do more than I can without them.
  • mommydearest4ever
    mommydearest4ever Posts: 4 Member
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    I didn't read all the replies, just skimmed them. I have found that cherry extract pills help. You can find them at GNC and it takes about two weeks, but will help enough that you can walk and sleep most nights. I have several types of arthritis from my knees to my toes and my biggest problems are wearing shoes, walking and sleeping.
  • cakeums
    cakeums Posts: 231 Member
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    I was diagnosed with RA two years ago this July, but I've been having symptoms since my late teens. (I'll be 29 in August.)

    Ask for the anti-CCP test when you see the rheumy, if you didn't have it done in your initial bloodwork. It is the most specific diagnostic test for RA currently available. Co-morbidity (having more than one condition at once) is common with autoimmune disease.

    I have taken prednisone, methotrexate, sulfasalazine, Plaquenil, and Enbrel. I'm currently in Enbrel only, but I have seen a huge decline in its effectiveness since I discontinued methotrexate. (I had been on it for about 12 months straight, 21 months on and off.) Do not be afraid of taking the meds...they sound scary, but RA isn't just about joint damage. It can affect your heart, lungs, nervous system, and anything that involves synovial fluid. It is important to treat it to prevent serious complications.

    Despite being in flare right now, I have still been trying to run when I can. I've only gone twice in two weeks, but today I ran 3.4 miles in 37 minutes, so at least it's something! Other weeks I can get out 4 or 5 times in a week and run 2-3 miles each time, You can still work out with RA, you may just need to adjust what you're doing. I can lift if I keep workouts fairly short, I wear lifting gloves even for 10lbs dumbbells, but I am still able to lift. I have pain, swelling, and/or stiffness in my fingers, hands, wrists, elbows, shoulders, hips, ankles, and feet. I also have cervical spine issues that need to be investigated further, and I have neuropathy. Not saying this to scare you, just to let you know that you can still achieve some of your fitness goals while dealing with RA complications.

    Go check out RAWarrior.com. It is a blog with tons and tons of resources, stories, etc. Johns Hopkins Arthritis online is also full of accurate basic information as far as symptoms, treatments, etc. Find a good rheumatologist and a supportive general practitioner, if you don't already have one. Friend me on here if you'd like, and find others with RA who can help you with support.
  • julzzz4
    julzzz4 Posts: 72
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    I dont know how to do the add friends thing, but would love to chat to you. I have had rheumatoid arthritis since I was 10, I am now 35. I have it from my jaw to my toes. Yay me!

    If you can get the correct Med's to control the swelling, then move move move! Even if it is just a tiny amount on the days when you just cant get out of bed, even just a walk up and down the hallway. Moving in a warm pool also worked for me.

    I have only been a gym member for about 6 months, but it has been amazing for pain!

    I have been on almost even type of medication, but my life saver has been Enbrel injections. However i think you need to have tried many other options before you can qualify for this. Hopefully for your sake, you will have luck on your first pill!

    As to foods and what you should and shouldn't eat, I really dont think it makes a difference pain wise. Well that is my experience anyway.

    I have found that high amounts of fish oil to be of some help.

    It really does come down to the correct Meds for you, everyone is different. It becomes a game of trial and error sometimes and it can get disheartening, but a positive mind work wonders, even though when your in extreme pain, it's really hard to "keep your chin up"!

    All the best to you for the future x