Hi I'm a 28yo caregiver lookin for buddies, re starting my journey

aurora15

Hi everyone, my name is Aurora and I'm a 28yo from Asia. I was here 2,3 years ago and then last year for a while but life dealt some blows. I'm still here and I'm back! Along with an ongoing battle with life struggles and moods, i'm restarting my life and slowly moving on. I've managed to stop binge eating and destructive cycles, slowly taking daily walks. Somehow I ended up being a caregiver to my ailing parents and that's the source of stress and pain. Finally gathered myself together to slowly walk outside again. Used to be able to run a half marathon easily for my workout sessions, but now I've just started to jog 20 minutes at a snails pace. Every step is a victory I tell myself. Out of shape but not out of my game. Hoping to find people choosing health and motivate each other. Thanks.

jbaile07

Created a new group for just caregiver support and motivation. A bit of my story.

If we sacrifice ourselves for others, we must remember to keep up our own maintanence. I met Heather in 1997. Long blonde hair with purple bangs. I would give my life to this woman. Almost 20 years later, we have endured more than anyone should experience. My wife heather has cystic fibrosis and I am her caregiver. There's a long, terrifying, yet inspirational story woven into the life of people with CF, their caregivers often blend into the background. That's our job and we don't mind. I feel that too often caregivers put themselves second and let their health go. We give so much from ourselves that it would seem we have no time left. I'll give you an example. When Heather came home after a month long coma, and another month and a half of recovery post transplant. I was alone to care for her. She had a feeding tube and tracheotomy, so she could not talk or eat by mouth. She had survived a massive stroke during the transplant, and many normal tasks were not possible for her. I spent my days hanging IV medicine and crushing 70+ pills a day with a mortar and pestle. Some nights when administering feedings, the tube would get clogged and I would spend two hours working to unclog it. I would wake at 6am and pass out after midnight. This was my life. I ate what was quick and a cold beer seemed great to help me sleep. My health was going right out from underneath and I didn't notice. A year later, an old spine injury arose and I had to have a cervical fusion. I recovered from that and kept on going. That was 2010. Well, here I am now. 100lbs heavier and fighting to recover and still be her caregiver. Running a household while working a full time job. She is my inspiration and I am hers. In December at a doctor appt., I weighed in at 283. Oh man! 5' 6" and 283 lbs. Damn. At one point in my life I was a surfer and a track star. In the Army I was a ground infantryman awarded an Army Commendation Medal. Now I'm a 35 year old in very poor shape. Physically and mentally. Time for change. Time to bear witness to life and bounce back. I have been working very hard. I'm down to 261 lbs as of this morning. It's very hard but I know I will do it.

aurora15

Your story is inspirational and I applaud your strength as well as love for your wife. I hope both of you are healing well. I'm working on my own health as well. I have good days and bad days and at my heaviest I was 61kg or about 140 pounds. Now I'm 55kg or 125 pounds. It's not just the number, it's how we feel physically inside and inside our minds too. I agree that caregivers need to take care of our health because we cannot help our care recipients of we are sick too. I hope your journey goes well. Peace.