Fibromyalgea and ALL the fun times!

Valienz

Well, hi. This is mildly terrifying for me, but here goes, yea? I was diagnosed with fibro when I was 17 and it changed just about everything as it got worse. I watched my father go through a lot of this, in addition to other issues, and to a degree I know where my fate is headed. The first thing the doctors did was pump me full of drugs, maxed out doses, and my weight spun out of control. After some years I decided I was done with side effects nearly as awful as the disease and being at a weight that just didn't reflect my life style.

It's been a heartbreaking fight of trying to get back to healthy in terms of weight. This last year was the first time in ten I lost ANY weight, and then my system went to hell. I felt defeated, had to get a cane for whenever I was out of the house. I don't walk very well, we had to move our bedroom downstairs to eliminate my chances of falling. I feel very alone, and I imagine that I am not, so here's my shot in the dark to see if anyone else is on this road and would maybe like some company.

Danilynn1975

I don't have fibro, but do have other issues and some of them are the same.

I battle insomnia and fatigue that lacks a good description daily. In January I fainted and fell down the stairs in our house. I haven't been upstairs since then. (for fear of it happening again.)

The fatigue has impacted my balance and this is difficult considering my job is very active. I have had to stop and lay on the ground to regroup and be able to carry on.

For now despite the balance issues, I am still walking fairly well, just slower and with pain I try my best to deal with. Not very well, but I try. The joint pain and muscle pain are the absolute worst and I have no suggestions for it. I wish I could offer you and myself something more.

I do know now what Pez candy and Tylenol have in common: neither one works to make it not hurt.

You aren't alone. Please don't feel that you are. There are others of us out there with similar or same issues. But you aren't alone and you can do this.