anyone here with EDS?

tattooedmomma93b

Hii. I'm 21 and have ehlers danlos syndrome hypermobility. I would love to talk to other people with EDS that are losing weight and get some tips and advice about Not only how they exercise without injury but also on if they have changed their diet to help with the pains and side effects of EDS.

lizzieloveslife13

I am 39 and just starting out again after 11 weeks of recovering from January childbirth and a really tough pregnancy (thanks EDS!). Weights, elliptical and boxing workout DVDs have been helpful exercise for me in the past. Pilates is also good.

tattooedmomma93b

My pregnancy was really tough too, in the past I have done a lot of strength training but my EDS has gotten worse and doing too much with weights scares me. But I'll try some boxing DVDs to start with! I do have an elliptical machine I'm buying off a family member and I'm excited for that....thank you!

peaceloveabby01

Oh my god I was like freaking out when I saw this. I have ehlers danlos as well. I got diagnosed several years ago and it wasn't too bad but after extreme stress placed on my body after a nearly deadly eating disorder, it got dramatically worse to the point where it's virtually debilitating. I can't work or go to school because I can't handle the stress on my body or even stay awake that long. I stick to a "two a day rule" where I only do two things a day like if I go to the grocery store and go walk or run, that's all for the day. The drugstore will have to wait for tomorrow. That keeps me within my limits but still keeps me active so my mind doesn't go biserk haha. So glad to have other friends with the condition

tattooedmomma93b

I'm sorry to hear that! Glad you found a way to cope with it. Mine has been Really bad since 2007 but even before the e'er n I suffered many broken bones because of the brittleness of my bones . I'm 21 and used to play all kinds of sports and was very active. But I have to have surgery to reconstruct my ankle and my surgeon told me I Couldnt continue my life of sports ( I had many opportunities for full ride soccer scholarships).... since then it's gotten so much worse because of weight g as in and pregnany....I have a very high pain tolerance but there are days that it's all I can Do to pick up my 2 year old or walk up stairs....it sucks. But I refuse to live on pain pills:/

olweenis

Hi, I am 28 years old, I don't have EDS but I do have Stickler Syndrome which is also a connective tissue disorder and I was just diagnosed with Hypermobility 6 weeks ago. I was very flexible as a child a very active doing gymnastics for a while and then irish dancing but in my teens my knee started bothering me and had to stop, artrithis is very common with Sticklers so that's what we assumed was the problem but at 26 when my joint pains began to get very bad and finally I was referred to a specialist and diagnosed with HMS. It mostly affects my hips and lower back, knees and ankles but lately my its started in my wrists and fingers. I didn't want to go the painkiller route but last winter(a particularly cold winter in Ireland) I gave in and now am on daily anti-inflamatories and pain killers. I work fulltime at the moment but will be switching to partime after the summer on the advice from my doctors as I am on my feet all day causing stress on my joints and have been advised to bring my weight down also to lessen the stress. I have began a healthier diet and excercising again for the first time in a year, I stick to low impact cardio like the cross trainer and exercise bike and weight training. I'm hoping by bringing my weight down and lessening my work hours I won't need to rely on painkillers to get me through a 10 hour workshift anymore.