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IIH/PTC Support

von075
von075 Posts: 3 Member
edited December 2015 in Motivation and Support
Hi everyone out there with IIH/PTC! I wanted to start a thread for all of us to share our experiences, struggles, and successes.

I'm a 26 y/o F diagnosed with IIH about a month ago. Been on 500mg Diamox 2x a day (sucks!) and working hard to lose weight. It's a slow process but I'm hoping I'll come out of it happier and healthier!

Replies

  • liverliverliver
    liverliverliver Posts: 11 Member
    New to MyFitnessPal. 59 years old. 9 years diagnosed IIH. Vestibular symptoms are the worst for me. I love Duke and work with Dr, Vidwan.

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