IIH/PTC Support

von075

Hi everyone out there with IIH/PTC! I wanted to start a thread for all of us to share our experiences, struggles, and successes.

I'm a 26 y/o F diagnosed with IIH about a month ago. Been on 500mg Diamox 2x a day (sucks!) and working hard to lose weight. It's a slow process but I'm hoping I'll come out of it happier and healthier!

liverliverliver

New to MyFitnessPal. 59 years old. 9 years diagnosed IIH. Vestibular symptoms are the worst for me. I love Duke and work with Dr, Vidwan.