Crohns and your fitness journey

I was diagnosed with Crohns about 10 years ago. Never really had much trouble till this past June when I had 2 feet of my intestine and my gall bladder removed.

So I'm wondering if anyone has had a similar journey and what advice they could give me...

Replies

  • zanthia81
    zanthia81 Posts: 2 Member
    edited February 2016
    I'm just starting the journey myself. I got diagnosed with IBD, but my GI thinks it's Crohn's. They were only able to do a small scope. I hope to know more when they do the whole colonoscopy. Right now, I'm on steroids and mesalamine.. both seem to be helping. I'm going on my third week. I'm trying to work food back into my life. I use to eat a ton of fruit, nuts, veggies... everything they say to stay away from at the moment. I know I don't have any advice, but it's nice to see someone going through some of the same issues...even though it sucks!
  • Qu1ckerMe
    Qu1ckerMe Posts: 5 Member
    This is rough. I have IBD and just had surgery in November for an abscess and a perforation. I am still recovering and have a very long and sore incision. I also had a seroma and ended up wearing a wound pump for a month. My movement is limited and I need to be on a low residue diet (read high carb low fiber). The condition makes it difficult to loose weight but I am hoping the journaling will help both situations. Anyone else had surgery for gastro problems?
  • TrailRunn3rMN
    TrailRunn3rMN Posts: 162 Member
    edited February 2016
    I found out someone close to me has Crohn's so I introduced her to Glutamine. She took it religiously and it helped her immensely. In her words: "it was like night and day". She also started taking probiotics and that helped quite a bit as well. She didn't have the best reaction to Garden of Life's Primal Defense but other people have. I think a lot of it will come down to personal experience and experimentation. If you do decide to take glutamine, I would do 3 servings throughout the day and start with anywhere from 2-3g per serving. I personally take 20g+ a day just to keep my immune system up to par.

    Since there is supposedly no cure for Crohn's when it comes to conventional medicine, it is up to the patient to figure out what works for them. Most doctors don't know anything about the healing properties of certain foods and supplements. They only know what pharmaceuticals can help with symptoms.

    Tthere have been many stories of people healing their Crohn's and putting into remission. I would highly recommend anyone who has an autoimmune disorder to do your research and not depend on conventional medicine doctors for the answers.

    Just my .02.