Severe Intolerance to Protein
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Not an expert. I like these ideas, @xcalygrl "What about quiona, tempeh, tofu, non-meat proteins other than beans?"
@ClubSilencio also has a great idea to take a protein digesting enzyme with.
I find texture is really important. Like moon cheese compared to a regular block of cheese. Or a souffle instead of scrambled. People with weight loss surgery like me have individual tolerances and we have to find what works compared to what doesn't. For instance, I have the most difficult time with soft breads but toasted, I am fine. The change is texture is enough to make it digestible.
I think it is critical that you tackle this like a scientist and try quantities, what you were eating with (lots of veggies might help too by spreading the protein out for digestion, or maybe not. Try it), and the texture of the food.
Since your options are lots of little meals with a little protein versus one big session, and you are still in testing stage, I'd go with lots of little meals with little bits of protein, keeping track of what works. Once you are settled on what works, you can try slowly increasing the protein on your designated meal and eat other things the rest of the time.
http://www.webmd.com/digestive-disorders/pancreas-function-tests
Noone has ever brought to my attention the texture of the foods. Thanks! I'll keep an eye on that too. I never would have thought it would make a difference. Interesting.0 -
michellesz wrote: »Not sure if I missed it above. Do you have any reactions after eating eggs. Good source of protein. Sorry to hear of this too. Great advice given to try.
I do have problems with eggs which sucks because I love them. I could eat them every meal if I could.0 -
GenRoberts wrote: »TheLittleRedHairedGirl wrote: »This may seem stupid, but have you tried different types of protein powders?
oh yes... no good. I have used soy and whey but I haven't tried Hydrolysate. I hear it's the highest quality of protein, and that scared me. With that being said, I also hear it's the easiest to digest. I just have to get my courage up.
Before you commit yourself to buying a lot of it see if there's a sample packet that you can try first. There's also pea protein.0 -
Just reiterating trying digestive enzymes. There should be one out there that will help enough to let you eat at least some things that you can't now.0
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Just a thought, but if it's the protein that's the problem, how is varying up the source going to help?
Not asking to be snarky,but generally curious. Since all proteins are made of aminos, the source will have different qualities and quantities, but still the same or similar aminos. I don't actually know the mechanism of protein intolerance, but it stands to reason that, provided it's the protein that actually caused the problem and not the source, that simply changing the source would have little effect since the aminos would be the same.
Am I drastically mistaken?
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Not knowledgeable on protein intolerance specifically, but I've got a decent background with immunological function.
Based on a quick Google (yes, I know) and a visit to Medscape, protein intolerance is an immunological reaction (whether non-immunological reaction plays a role in protein intolerance is disputed). It is the conformation of the protein (or parts of the protein) that makes the antigen. If you completely denature the protein before it hits the GI tract in OP's case, she would likely not have any reaction at all.
An interesting read on the pathology: emedicine.medscape.com/article/931548-overview#a5
ETA: Reading on, there's little info on how to go about dealing with protein intolerance as an adult. Medscape mentions nearly all cases are infants and children, most grow out of it, and there are some adult cases - and then just about everything they discuss afterwards is only pediatric. Must be frustrating for OP.0 -
Have you tried seitan? It is wheat protein.0
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GenRoberts wrote: »Have you always been this way? is one of the specialists a nutritionist that specializes in digestive disorders?
They thought for a long time it was my gallbladder. Ultrasound after ultrasound after ultrasound and there was nothing wrong with it. I would get referred to another specialist, and they would send me for another ultra sound... I kept telling the specialists that I would get ill about 45 mins to an hour after I eat, but not after every meal. No one would listen to me. I saw numerous nutritionists, and they kept telling me I probably was eating greasy foods. I assume it's because I am a big lady. I started keeping track what I was eating to show them I wasn't eating bad foods, but I always got the impression they thought I was leaving things off the list.
Finally I booked myself an allergy test (unrelated: I thought I had a pineapple sensitivity), and told him about to sickness after foods. He immediately said I had a protein intolerance. Numerous tests after that, it was concluded I wasn't allergic to the food, just intolerant to the protein in it. They said there is nothing anyone can really do. I can't get rid of it, and I need protein. I just need to figure out how to get it, without being really sick. We are currently in the process of trying to find a scale. For example 1-10... Fish 3.... Heavy cream 9.
That was it? No referral to a dietician to work out a diet? No amino acid supplement suggested, even for the short term? Have you been tested for an eosinophilic disorder?0 -
protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.0 -
protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.
Amino acids are not proteins, they are the building blocks of proteins. It is the intact or partially intact protein that is the problem.
OP can most certainly be protein intolerant since it is a medical diagnosis.
The name is a bit misleading, because it does not mean she is intolerant to all proteins. She has an allergic/inflammatory reaction to certain proteins or groups of proteins. According to the link I posted, dairy and soy proteins are the most common culprits, but I have to wonder if that is because most diagnoses are infants whose diets are almost exclusively formula.0 -
Not knowledgeable on protein intolerance specifically, but I've got a decent background with immunological function.
Based on a quick Google (yes, I know) and a visit to Medscape, protein intolerance is an immunological reaction (whether non-immunological reaction plays a role in protein intolerance is disputed). It is the conformation of the protein (or parts of the protein) that makes the antigen. If you completely denature the protein before it hits the GI tract in OP's case, she would likely not have any reaction at all.
An interesting read on the pathology: emedicine.medscape.com/article/931548-overview#a5
ETA: Reading on, there's little info on how to go about dealing with protein intolerance as an adult. Medscape mentions nearly all cases are infants and children, most grow out of it, and there are some adult cases - and then just about everything they discuss afterwards is only pediatric. Must be frustrating for OP.
So, based on this, and your comment on denatured protein, then, theoretically, OP should be safe with powders as they have been denatured? Correct me if I'm wrong, but this is incredibly interesting.0 -
GenRoberts wrote: »drewschenk wrote: »Sounds like you are on the right track, I think a rating scale is an excellent idea. For nutrition calorie intake is the most important factor. Managing your macro intake (fat/protein/carb) definitely helps improve the results but is nowhere near as important as calorie intake. Your body can take what it gets from various foods and make what it needs. However, if your trying to build muscle there is an advantage to the concentration of amino acids available from eating chicken but it's not the only way your body can get it done. Definitely focus your diet on things that do not agitate you much, if you always feel like crap you will not want to eat healthy or workout hard and you'll just lose more progress than you gained.
I find I end up eating a lot of carbs because I'm hungry and scared to eat certain things. I need to pay more attention to that. Thanks for the suggestion, I'm going to try and figure out the least offenders. During the process I have also learned a lot about protein in foods. There are foods I never would have guessed were high in protein, and ones I thought were high have very little traces.
What percentage of carbs? For me, eating a lot of carbs isn't a problem if they are coming from foods like legumes. (As opposed to Girl Scout Cookies.)
In general, I like to eat about 40-45% carbs, but I have vegan friends who eat much higher and IIRC @BecomingBane and @janejellyroll are vegans who eat at around 60% carbs.
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kshama2001 wrote: »GenRoberts wrote: »drewschenk wrote: »Sounds like you are on the right track, I think a rating scale is an excellent idea. For nutrition calorie intake is the most important factor. Managing your macro intake (fat/protein/carb) definitely helps improve the results but is nowhere near as important as calorie intake. Your body can take what it gets from various foods and make what it needs. However, if your trying to build muscle there is an advantage to the concentration of amino acids available from eating chicken but it's not the only way your body can get it done. Definitely focus your diet on things that do not agitate you much, if you always feel like crap you will not want to eat healthy or workout hard and you'll just lose more progress than you gained.
I find I end up eating a lot of carbs because I'm hungry and scared to eat certain things. I need to pay more attention to that. Thanks for the suggestion, I'm going to try and figure out the least offenders. During the process I have also learned a lot about protein in foods. There are foods I never would have guessed were high in protein, and ones I thought were high have very little traces.
What percentage of carbs? For me, eating a lot of carbs isn't a problem if they are coming from foods like legumes. (As opposed to Girl Scout Cookies.)
In general, I like to eat about 40-45% carbs, but I have vegan friends who eat much higher and IIRC @BecomingBane and @janejellyroll are vegans who eat at around 60% carbs.
I aim for about 35% carbs but often go over. I tend to make it up over the course of the week, but I also, in a minimal way, carb cycle depending on whether I'm training regularly, if it's a rest day, etc. On training days, I'll increase carbs earlier in the day to fuel the workout later on for example, it's a lower body day today so I had a pile of protein and a sweet potato with lunch today. I'll make up the protein difference with dinner and fill the rest with carbs because yummy.
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BecomingBane wrote: »Just a thought, but if it's the protein that's the problem, how is varying up the source going to help?
Not asking to be snarky,but generally curious. Since all proteins are made of aminos, the source will have different qualities and quantities, but still the same or similar aminos. I don't actually know the mechanism of protein intolerance, but it stands to reason that, provided it's the protein that actually caused the problem and not the source, that simply changing the source would have little effect since the aminos would be the same.
Am I drastically mistaken?
I'm still learning about it all but all I know so far is my body reacts different to protein sources.0 -
protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.
Nope not dead, and have an intolerance to protein.0 -
protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.
Amino acids are not proteins, they are the building blocks of proteins. It is the intact or partially intact protein that is the problem.
OP can most certainly be protein intolerant since it is a medical diagnosis.
The name is a bit misleading, because it does not mean she is intolerant to all proteins. She has an allergic/inflammatory reaction to certain proteins or groups of proteins. According to the link I posted, dairy and soy proteins are the most common culprits, but I have to wonder if that is because most diagnoses are infants whose diets are almost exclusively formula.
Thanks for that. I understand how weird it sounds to say I'm intolerant to protein. I am absolutely not saying I'm allergic to it. It's not going to kill me(I may feel like it will during a bad attack) but it's not. I just ride our the symptoms.0 -
Have you gone to a gastroenterologist for an assessment?
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BecomingBane wrote: »Not knowledgeable on protein intolerance specifically, but I've got a decent background with immunological function.
Based on a quick Google (yes, I know) and a visit to Medscape, protein intolerance is an immunological reaction (whether non-immunological reaction plays a role in protein intolerance is disputed). It is the conformation of the protein (or parts of the protein) that makes the antigen. If you completely denature the protein before it hits the GI tract in OP's case, she would likely not have any reaction at all.
An interesting read on the pathology: emedicine.medscape.com/article/931548-overview#a5
ETA: Reading on, there's little info on how to go about dealing with protein intolerance as an adult. Medscape mentions nearly all cases are infants and children, most grow out of it, and there are some adult cases - and then just about everything they discuss afterwards is only pediatric. Must be frustrating for OP.
So, based on this, and your comment on denatured protein, then, theoretically, OP should be safe with powders as they have been denatured? Correct me if I'm wrong, but this is incredibly interesting.
If it's been completely denatured, and what Medscape describes is in fact the whole picture (there was a mention of a potential but disputed non-immunological component), then yes.0 -
protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.
Amino acids are not proteins, they are the building blocks of proteins. It is the intact or partially intact protein that is the problem.
OP can most certainly be protein intolerant since it is a medical diagnosis.
The name is a bit misleading, because it does not mean she is intolerant to all proteins. She has an allergic/inflammatory reaction to certain proteins or groups of proteins. According to the link I posted, dairy and soy proteins are the most common culprits, but I have to wonder if that is because most diagnoses are infants whose diets are almost exclusively formula.
That is probably true, but I think it's also more common in infants as many outgrow it.0 -
Need2Exerc1se wrote: »protein is a group of essential nutrients for the human body. you cannot survive without adequate protein intake. if someone was "intolerant" to any of the 7 essential amino acids (proteins), they would die very soon after being born.
perhaps you should see a doctor to figure out what it is about the fish and chicken that gives you actual pain. perhaps you always cook them in say peanut oil, but are mildly allergic to peanuts. or something like that.
Amino acids are not proteins, they are the building blocks of proteins. It is the intact or partially intact protein that is the problem.
OP can most certainly be protein intolerant since it is a medical diagnosis.
The name is a bit misleading, because it does not mean she is intolerant to all proteins. She has an allergic/inflammatory reaction to certain proteins or groups of proteins. According to the link I posted, dairy and soy proteins are the most common culprits, but I have to wonder if that is because most diagnoses are infants whose diets are almost exclusively formula.
That is probably true, but I think it's also more common in infants as many outgrow it.
That's not what I meant - I meant that the reason they make such a big deal out of dairy and soy is because for the vast majority of their patients, that's just about the only thing they eat. There may be a number of other foods that would be as bad or worse, but since infants and very young children aren't eating them, who would know?0
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