Fans of Gluten-Free Diet?
Replies
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minniemoo1972 wrote: »RachelElser wrote: »CorneliusPhoton wrote: »My doctor recommended that I try eliminating gluten for a couple of months to see if it would alleviate my fatigue and brain fog. It was kind of hard to tell how much better I was feeling while it was eliminated, but upon re-introducing it, I felt horrible. I got migraines, weird irritated bowel stuff, and heavy fatigue. So I think that I am now stuck with going "gluten free" (did I lose a tolerance to wheat?). I did lose weight during the initial elimination phase (no more beloved pale ales), but quickly gained it back after I started eating more rice, potato starch, and sugar, simple carbs that replace wheat in most of the gluten-free stuff on the supermarket shelves.
I still have regular pizza a couple of times per year. And sometimes you just can't avoid gluten. But I always pay the price afterwards with fatigue, migraines, and weird poop stuff.
So I would add that if you do it, be prepared to possibly be stuck with it, whether you want it or not.
why in the world didn't he just run the allergy test!!??
Because they are expensive and for celiac you have to carb load for weeks to inflame
You don't have to carb load if you are not eating gluten free1 -
RachelElser wrote: »People with celiac yesterday I was in a lot of pain and went to the ER of course they could do nothing for me. How do you handle it? Does your doctor give any pain meds? I have a followup with my primary next week.
My brother (who has it) says nothing really helps when he accidentally (or on purpose, stupid McD fries!) eats gluten. He tends to just sleep it off as much as possible. For him, he's figured it out it's really not worth it to eat it on purpose, but sometimes you makes a mistake.
I ate cheerios that say gluten free but I guess they had a cross contamination at their factory and it was bad. I usually do try to sleep it off but I was at work and crying because I was in so much pain.1 -
Byronic_Ryu wrote: »I have to be gluten free because of my illnesses. I am happy to no longer have to take steroids for itching, my stomach rarely has painful inflammation, and I haven't had an IBS episode in a while. However, it is restricting, expensive at times, can be a hit or miss when it comes to trying out new recipes or requires more steps (I have a chronic pain illness so this is a huge pain), and people judge you because they assume you do it because you buy into a fad diet (honestly, why can't people ask first before lecturing, I don't understand).
For real. Wish my allergy was nothing but a fad diet....2 -
socalrunner59 wrote: »I'm celiac. Never, never would I choose to be gluten free otherwise.
The problem with people jumping on the gluten free fad diet it the horrible backlash/pushback by society for those of us with a real disease.
People don't understand how serious celiac disease can be. My doctor tells me research scientist have long established a connection between celiac and lymphoma.
For celiacs gluten free isn't a fad diet, it's the only known management for a debilitating disease.
I couldn't agree more. My Dr's are monitoring my lymphnodes now. I hope some never have to fear certain foods in the way I do.1 -
RachelElser wrote: »People with celiac yesterday I was in a lot of pain and went to the ER of course they could do nothing for me. How do you handle it? Does your doctor give any pain meds? I have a followup with my primary next week.
My brother (who has it) says nothing really helps when he accidentally (or on purpose, stupid McD fries!) eats gluten. He tends to just sleep it off as much as possible. For him, he's figured it out it's really not worth it to eat it on purpose, but sometimes you makes a mistake.
I ate cheerios that say gluten free but I guess they had a cross contamination at their factory and it was bad. I usually do try to sleep it off but I was at work and crying because I was in so much pain.
Gluten Dud has a blog and he discussed the safety of GF Cheerios. It's a joke. http://glutendude.com/gluten/are-gluten-free-cheerios-safe-for-celiacs/
I wouldn't trust their gluten removed efforts.
I hope you are feeling better. All I know to do is wait it out. L-glutamine might assist with healing but it probably would not be a big difference0 -
Thanks for the info on cheerios. I didnt know that.0
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minniemoo1972 wrote: »RachelElser wrote: »CorneliusPhoton wrote: »My doctor recommended that I try eliminating gluten for a couple of months to see if it would alleviate my fatigue and brain fog. It was kind of hard to tell how much better I was feeling while it was eliminated, but upon re-introducing it, I felt horrible. I got migraines, weird irritated bowel stuff, and heavy fatigue. So I think that I am now stuck with going "gluten free" (did I lose a tolerance to wheat?). I did lose weight during the initial elimination phase (no more beloved pale ales), but quickly gained it back after I started eating more rice, potato starch, and sugar, simple carbs that replace wheat in most of the gluten-free stuff on the supermarket shelves.
I still have regular pizza a couple of times per year. And sometimes you just can't avoid gluten. But I always pay the price afterwards with fatigue, migraines, and weird poop stuff.
So I would add that if you do it, be prepared to possibly be stuck with it, whether you want it or not.
why in the world didn't he just run the allergy test!!??
Because they are expensive and for celiac you have to carb load for weeks to inflame
that sucks! I did not know that.0 -
i've been gluten free for a little over a year now and my life has drastically improved. no more bone/joint aches, no more brain fog, less ibs (not gone, but very improved), less inflammation. pic of me is comparison between 7/3/15 and 7/8
/16. 25 pounds difference, but what a difference in inflammation! for the record, i succeeded on GAINING weight while gluten free, so there's that LOL. what i mean is, i don't think anyone in their right mind would/should go gluten free just to lose weight because it's not foolproof.
i've found that i'm intolerant to many "gluten free" products - mostly breads. dunno why, but i am.
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RachelElser wrote: »minniemoo1972 wrote: »RachelElser wrote: »CorneliusPhoton wrote: »My doctor recommended that I try eliminating gluten for a couple of months to see if it would alleviate my fatigue and brain fog. It was kind of hard to tell how much better I was feeling while it was eliminated, but upon re-introducing it, I felt horrible. I got migraines, weird irritated bowel stuff, and heavy fatigue. So I think that I am now stuck with going "gluten free" (did I lose a tolerance to wheat?). I did lose weight during the initial elimination phase (no more beloved pale ales), but quickly gained it back after I started eating more rice, potato starch, and sugar, simple carbs that replace wheat in most of the gluten-free stuff on the supermarket shelves.
I still have regular pizza a couple of times per year. And sometimes you just can't avoid gluten. But I always pay the price afterwards with fatigue, migraines, and weird poop stuff.
So I would add that if you do it, be prepared to possibly be stuck with it, whether you want it or not.
why in the world didn't he just run the allergy test!!??
Because they are expensive and for celiac you have to carb load for weeks to inflame
that sucks! I did not know that.
Well here you do.....you have to be gluten loaded to have the test because they have to take pictures and even take a pieces of your insides. ....if you are gf it all settles down and gives a false negative which isn't good....of course for a deadly allergy they would never make you gluten load.0 -
cariduttry wrote: »i've been gluten free for a little over a year now and my life has drastically improved. no more bone/joint aches, no more brain fog, less ibs (not gone, but very improved), less inflammation. pic of me is comparison between 7/3/15 and 7/8
/16. 25 pounds difference, but what a difference in inflammation! for the record, i succeeded on GAINING weight while gluten free, so there's that LOL. what i mean is, i don't think anyone in their right mind would/should go gluten free just to lose weight because it's not foolproof.
i've found that i'm intolerant to many "gluten free" products - mostly breads. dunno why, but i am.
Are you wheat/yeast intolerant instead of gluten??? Im all three it causes major pain.0 -
FunkyTobias wrote: »CorneliusPhoton wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »Panda_brat wrote: »What is so unhealthy about gluten unless you have a condition that makes you unable to tolerate it?
Some non-celiac people make antibodies to it and it causes inflammation and a host of other issues. Here are a few articles about gluten and grains from the paleo world. The underlined bits are references: http://www.marksdailyapple.com/does-gluten-have-any-effect-on-non-celiacs/
http://www.marksdailyapple.com/why-grains-are-unhealthy/
Instead of Mark's Daily Apple, look at the actual science
...
http://www.realclearscience.com/blog/2014/05/gluten_sensitivity_may_not_exist.html
http://www.ncbi.nlm.nih.gov/pubmed/23648697
Actual science? From a science blogger? Ok...
If you looked at the multitude of links in Mark's articles, most of them come from nih.gov, just like (one of) yours. Don't assume I am pushing a no grain agenda. I'm not here to debate. I was simply providing the perspective on grains and gluten from the paleo community, as they are the ones who are the loudest about not eating those foods.
As far as the "realclearscience" blog author, he is no more legit as Mark Sisson. However, Mark Sisson has posted numerous literature reviews on the subject, and continues to do so. It is his life's work. Regardless, the bottom line is that there is currently no diagnostic test for it (but maybe there will be soon http://www.ncbi.nlm.nih.gov/pubmed/27388423), but that does not mean that sensitivity does not exist.
An open mind allows that the truth might lie somewhere in the middle.
Then ignore the blog and read the actual study, which, in fact, was done by the person that originally hypothesized the existence of non celiac gluten sensitivity.
And your link says nothing about gluten.
As far as Sisson is concerned, he's a supplement shill turned blogger. Nothing more.
While i agree that Mark Sisson isnt the best of resources there are plenty of medical conditions that have adverse reactions to gluten. And even then, the NIH has only started to evaluate these things.
But if someone doesnt have these conditions cutting out gluten does nothing.
Have they determined that it's gluten per se? I'm asking because the study above suggests that it might not be gluten that is causing the problem, but rather other components (ie FODMAPs )
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FunkyTobias wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »Panda_brat wrote: »What is so unhealthy about gluten unless you have a condition that makes you unable to tolerate it?
Some non-celiac people make antibodies to it and it causes inflammation and a host of other issues. Here are a few articles about gluten and grains from the paleo world. The underlined bits are references: http://www.marksdailyapple.com/does-gluten-have-any-effect-on-non-celiacs/
http://www.marksdailyapple.com/why-grains-are-unhealthy/
Instead of Mark's Daily Apple, look at the actual science
...
http://www.realclearscience.com/blog/2014/05/gluten_sensitivity_may_not_exist.html
http://www.ncbi.nlm.nih.gov/pubmed/23648697
Actual science? From a science blogger? Ok...
If you looked at the multitude of links in Mark's articles, most of them come from nih.gov, just like (one of) yours. Don't assume I am pushing a no grain agenda. I'm not here to debate. I was simply providing the perspective on grains and gluten from the paleo community, as they are the ones who are the loudest about not eating those foods.
As far as the "realclearscience" blog author, he is no more legit as Mark Sisson. However, Mark Sisson has posted numerous literature reviews on the subject, and continues to do so. It is his life's work. Regardless, the bottom line is that there is currently no diagnostic test for it (but maybe there will be soon http://www.ncbi.nlm.nih.gov/pubmed/27388423), but that does not mean that sensitivity does not exist.
An open mind allows that the truth might lie somewhere in the middle.
Then ignore the blog and read the actual study, which, in fact, was done by the person that originally hypothesized the existence of non celiac gluten sensitivity.
And your link says nothing about gluten.
As far as Sisson is concerned, he's a supplement shill turned blogger. Nothing more.
While i agree that Mark Sisson isnt the best of resources there are plenty of medical conditions that have adverse reactions to gluten. And even then, the NIH has only started to evaluate these things.
But if someone doesnt have these conditions cutting out gluten does nothing.
Have they determined that it's gluten per se? I'm asking because the study above suggests that it might not be gluten that is causing the problem, but rather other components (ie FODMAPs )
Its the current belief its gluten based on the accounts of research done. For my wife's conditions (POTS), 50% of patients see an improvement in symptoms. Not only is this confirmed through an elimination diet by a team of specialist (GI, Endo and Cardiologist), it is well established and promoted by the leading researchers for her condition (Mayo clinic).
Interestingly enough, we have had this same conversation and you keep using the same one study. Many of these syndromes are new and the diet aspect has yet to be addressed. The bigger money is in drugs and treatment.
Below is the response from EvgeniZyntx to touched on the complexity of the condition. But in the end, your opinion isnt supported in the very small community that know and treat my wifes condition. And her Electrophysiologist would suggest that you need to research more outside of one study. I dont doubt that many people dont need to be gluten free but there isnt a ton of testing for it currently.A possible reason for the issue is that there is a nerve bundle called the celiac plexus (some tend to know it as the solar plexus). It is a bundle of nerves that sits (more or less) on your intestine (think getting punched in the gut and losing the ability to breath) and radiates upward to ... the heart. Celiac plexus affects autonomic function like cardiac rhythm, diaphragm. Issues with gluten sensitivity and celiac disease might be responsible for local inflammation that impact triggering in the plexus thus increasing POTS likelihood. For example, Orthostatic Hypotension is sometimes a side effect of anaesthesia to CP - a procedure called Celiac Plexus Block - used to manage pain - can lead to POTS like condition.
Given that POTS is really complex and has many different causes - and those causes are all over the place - I'm going to guess that 50% you mentioned might be anywhere from 10% to much more but it is going to be very visible when some people actually get better.
Edit: to clean up some wording.2 -
FunkyTobias wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »Panda_brat wrote: »What is so unhealthy about gluten unless you have a condition that makes you unable to tolerate it?
Some non-celiac people make antibodies to it and it causes inflammation and a host of other issues. Here are a few articles about gluten and grains from the paleo world. The underlined bits are references: http://www.marksdailyapple.com/does-gluten-have-any-effect-on-non-celiacs/
http://www.marksdailyapple.com/why-grains-are-unhealthy/
Instead of Mark's Daily Apple, look at the actual science
...
http://www.realclearscience.com/blog/2014/05/gluten_sensitivity_may_not_exist.html
http://www.ncbi.nlm.nih.gov/pubmed/23648697
Actual science? From a science blogger? Ok...
If you looked at the multitude of links in Mark's articles, most of them come from nih.gov, just like (one of) yours. Don't assume I am pushing a no grain agenda. I'm not here to debate. I was simply providing the perspective on grains and gluten from the paleo community, as they are the ones who are the loudest about not eating those foods.
As far as the "realclearscience" blog author, he is no more legit as Mark Sisson. However, Mark Sisson has posted numerous literature reviews on the subject, and continues to do so. It is his life's work. Regardless, the bottom line is that there is currently no diagnostic test for it (but maybe there will be soon http://www.ncbi.nlm.nih.gov/pubmed/27388423), but that does not mean that sensitivity does not exist.
An open mind allows that the truth might lie somewhere in the middle.
Then ignore the blog and read the actual study, which, in fact, was done by the person that originally hypothesized the existence of non celiac gluten sensitivity.
And your link says nothing about gluten.
As far as Sisson is concerned, he's a supplement shill turned blogger. Nothing more.
While i agree that Mark Sisson isnt the best of resources there are plenty of medical conditions that have adverse reactions to gluten. And even then, the NIH has only started to evaluate these things.
But if someone doesnt have these conditions cutting out gluten does nothing.
Have they determined that it's gluten per se? I'm asking because the study above suggests that it might not be gluten that is causing the problem, but rather other components (ie FODMAPsFunkyTobias wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »FunkyTobias wrote: »CorneliusPhoton wrote: »Panda_brat wrote: »What is so unhealthy about gluten unless you have a condition that makes you unable to tolerate it?
Some non-celiac people make antibodies to it and it causes inflammation and a host of other issues. Here are a few articles about gluten and grains from the paleo world. The underlined bits are references: http://www.marksdailyapple.com/does-gluten-have-any-effect-on-non-celiacs/
http://www.marksdailyapple.com/why-grains-are-unhealthy/
Instead of Mark's Daily Apple, look at the actual science
...
http://www.realclearscience.com/blog/2014/05/gluten_sensitivity_may_not_exist.html
http://www.ncbi.nlm.nih.gov/pubmed/23648697
Actual science? From a science blogger? Ok...
If you looked at the multitude of links in Mark's articles, most of them come from nih.gov, just like (one of) yours. Don't assume I am pushing a no grain agenda. I'm not here to debate. I was simply providing the perspective on grains and gluten from the paleo community, as they are the ones who are the loudest about not eating those foods.
As far as the "realclearscience" blog author, he is no more legit as Mark Sisson. However, Mark Sisson has posted numerous literature reviews on the subject, and continues to do so. It is his life's work. Regardless, the bottom line is that there is currently no diagnostic test for it (but maybe there will be soon http://www.ncbi.nlm.nih.gov/pubmed/27388423), but that does not mean that sensitivity does not exist.
An open mind allows that the truth might lie somewhere in the middle.
Then ignore the blog and read the actual study, which, in fact, was done by the person that originally hypothesized the existence of non celiac gluten sensitivity.
And your link says nothing about gluten.
As far as Sisson is concerned, he's a supplement shill turned blogger. Nothing more.
While i agree that Mark Sisson isnt the best of resources there are plenty of medical conditions that have adverse reactions to gluten. And even then, the NIH has only started to evaluate these things.
But if someone doesnt have these conditions cutting out gluten does nothing.
Have they determined that it's gluten per se? I'm asking because the study above suggests that it might not be gluten that is causing the problem, but rather other components (ie FODMAPs )
_____________________________
Gibson -
"The other factor is that the two mechanism (protein-induce injury or inflammation and FODMAP effects) are independent of each other and both can occur in the one person. This has not been directly studied because we are still struggling to devise good methods to identify those with wheat protein sensitivity.
It is also worth noting that in our study on NCGS, wheat protein did cause current feelings of depression – a finding that is currently being re-examined in a larger and more complete study (the other was another ‘pilot’)"
Gibson himself can't understand the backlash.
"PG: It is a pity that findings are over-interpreted and ‘dramatic’ spins are put on data. The people who suffered the most were those with IBS and food intolerances – the non-believers felt justified in saying it is in the imagination. IBS is not all in the head. The real question that was at times missed was what part of wheat was causing the problems. It is quite difficult to understand how the fact that demonstrating wheat protein is not the cause in a group of people equates to the idea that these people do not have a problem at all (except in their imagination)."
Full interview..
http://glutendude.com/interviews/does-non-celiac-gluten-sensitivity-exist/0 -
"Silent" CD. I have psoriasis and arthritis associated with it. I only have fatigue (I feel drugged) and bloating. Not lower bowel symptoms.
http://www.medscape.com/viewarticle/514108_40 -
Many people have issues with the fructans in wheat, not the gluten. Such as people with Ibs...it's just mistaken for ncgs. So these people eat gluten free, but in reality they can eat some wheat and won't get sick. And likely they are sensitive to other fructans and other foods.2
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"Silent" CD. I have psoriasis and arthritis associated with it. I only have fatigue (I feel drugged) and bloating. Not lower bowel symptoms.
http://www.medscape.com/viewarticle/514108_4
My husband had awful psoriasis all over his body. Went away when he stopped drinking beer (and was eating the GF dinners that I was making!).1 -
@minniemoo1972 - you're doing GF wrong. Cook/bake for yourself. I was diagnosed with celiac disease five years ago. Nothing I eat tastes like sadness. I'd never put up with that. I love food.
OP - I am not a"fan". It's rather like treating asthma. I just have to do it. The truly difficult things are reading every label and finding a pharmacist who will actually make sure my drugs are GF. Wheat is an awfully popular filler. oh,and someone mentioned GF beer. I'm not sure it actually is, so I've never tried it. I got sick this week because someone put a regular piece of toast on my plate. It doesn't take much.2 -
@_SKIM_ I was silently celiac until I stopped eating gluten. I had all of your symptoms, but nearly died of malnutrition - needed blood transfusions, in fact. This week, just the bread crumbs I missed on my plate when someone else put toast on it, gave me real bowel distress, but thankfully not the fatigue etc.1
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