Skip to content
  • Register
    • We are pleased to announce that today, March 4, 2025, an updated Rich Text Editor has been introduced in the MyFitnessPal Community. To learn more about the changes, please click here. We look forward to sharing this new feature with you!

    Anyone with lupus?

    Posts: 40 Member
    edited December 2024 in Introduce Yourself
    Definitely not new but am dealing with a new obstical & looking for buddies who face the same or similar challenge. Anyone trying to loose weight with lupus or other autoimmune?

    Welcome!

    It looks like you're new here. Sign in or register to get started.
    Sign In
    Register

    Replies

    • Posts: 430 Member
      I was recently diagnosed with sarcoidosis. Add me
    • Posts: 2 Member
      I have lupus as well and it does present its own set of challenges
    • Posts: 40 Member
      May I add you as a friend?
    • Posts: 3 Member
      I have lupus!
    • Posts: 2,018 Member
      Fellow Lupie friend here! Actually having a major flare-up at the moment, going through different treatment options at the doctor tomorrow morning. Feel free to friend me!
    • Posts: 5 Member
      I'm here ... Newly diagnosed (3 wks ago) and now 6 lbs heavier (due to lack of exercise and I think, steroids). I'm looking for support and friends to help combat this weight gain, take it off and live healthy!!
    • Posts: 303 Member
      i have lupus...for many years. now have autoimmune hepatitis due to the lupus. on steroids for life..presents a greater challenge to weight loss, fatigue, and everyday life. have to choose my activities for the day carefully before i am too drained to function.
    • Posts: 303 Member
      lam_rohland wrote: »
      I'm here ... Newly diagnosed (3 wks ago) and now 6 lbs heavier (due to lack of exercise and I think, steroids). I'm looking for support and friends to help combat this weight gain, take it off and live healthy!!

      steroids make you retain water, more hungry and come with so many complications if taken long term. google supplements to help with long term use. i take anything to help.
    • Posts: 303 Member
      peaceout_aly wrote: »
      Fellow Lupie friend here! Actually having a major flare-up at the moment, going through different treatment options at the doctor tomorrow morning. Feel free to friend me!

      would be interested in knowing what treatment is recommended. message me. thanks jennifer
    • Posts: 303 Member
      Candy42adore wrote: »
      Definitely not new but am dealing with a new obstical & looking for buddies who face the same or similar challenge. Anyone trying to loose weight with lupus or other autoimmune?

      nice to know there are others going thru the same difficulties, but maybe different degrees!
    • Posts: 303 Member
      would be interested to know how everyone's day goes. i am good in the morning and fade by 4-5. i am out by 6. i have severe fatigue due to yhe lupus, but more so the hepatitis, for which there is no cure. i can also only take certain meds to to chronic pancreatitis. feel free to add me as a friend. maybe we could have our own little group?
    • Posts: 2,018 Member
      EttaMaeMartin wrote: »
      show previous quotes

      would be interested in knowing what treatment is recommended. message me. thanks jennifer

      I've already tried Naprosyn (unsuccessful) and Benlysta (unsuccessful) so they are now leaning towards some type of immune suppressant which would need to be administered weekly by IV. Lots of pros, but also lots of cons so I'm really debating on whether or not to follow through with the recommendation. Might feel better for a short time, but tons of weight gain, skin issues, potential kidney issues, that go along with it.
    • Posts: 758 Member
      I have SLE and was dx'd about nine years ago. Had my share of near-death experiences, flares that seemed to never end, and steroid gain, followed by extreme loss. I also have Fibromyalgia, Chronic Migraine and Behcets Disease. Feel free to add me!
    • Posts: 63 Member
      Diagnosed with Lupus (SLE) in 1991. Went through Chemo in 1994-1995. I have been in remission since then and living with the damage that was done (lungs, kidneys, and hip replacements due to treatments). I now only get bloodwork every 3 months and it suggests Lupus activity, but only mildly. I will answer questions and provide any support I can.
    • Posts: 303 Member
      does anyone deal with the chronic fatigue? if you don't mind sharing how and what you do? thanks jennifer i was diagnosed 20 years ago, but the attacking my liver has been going on for the last 2 years, contributing to more fatigue.
    • Posts: 303 Member
      peaceout_aly wrote: »
      show previous quotes

      I've already tried Naprosyn (unsuccessful) and Benlysta (unsuccessful) so they are now leaning towards some type of immune suppressant which would need to be administered weekly by IV. Lots of pros, but also lots of cons so I'm really debating on whether or not to follow through with the recommendation. Might feel better for a short time, but tons of weight gain, skin issues, potential kidney issues, that go along with it.

      steroids? methyltrexate?
    This discussion has been closed.

    Welcome!

    It looks like you're new here. Sign in or register to get started.
    Sign In
    Register

    Quick Links

    Categories