looking for buddies with hypothyroidism

leahcollett1

hi, im not new here, but i am new to hypothyroidism and i have heard it can be quite difficult to lose weight with it.
i would like to find friends that are in the same/similar position needing to lose a couple of stone but am faced with the extra difficulty of the blasted thyroid disease. im currently on 100mcg per day and i have a new levels of 0.47

purebredpolly

Hi, you can add me. I have a thyroid condition as well.

leahcollett1

purebredpolly wrote: »

Hi, you can add me. I have a thyroid condition as well.

thank you x

leahcollett1

hi hun i dont think i can? can you add me?

Fuzzipeg

Have you done any research on the Stop the thyroid Madness site? You can discover much more from there and other support sites than most doctors know. I've had issues for years and have used this and other sites to help myself. Presently working with a nutritionist. I'll do my best to share what I have discovered.

leahcollett1

yep, i am a member of that site and also health unlocked. i have researched my condition so i know what to go in with when seeing the dr as they sometimes dont know what there on about lol

d_mom_of_4

You can add me. Ive been on medication since last year had issues when I started. End of July I did whole30 and after that eating paleo 90/10 bit still staying GF.
I work out daily and managed to loose 18kg with lots of work.

joannenewman999

hi i have had under active thyroid for 2 years , on 125mg a day

millzy64

Me too, 200mcg a day here. I'm now on maintenance but found losing the weight (around 50 lbs) wasn't too difficult. The key is having your dosage correct and getting tested on a regular basis. Feel free to add me if you like.

leahcollett1

thank you everybody ive added you all xxx

crackpotbaby

I have hypothyroidism secondary to lithium use. You are welcome to add me.

leahcollett1

do any of you find that it gets easier to lose weight if your tsh levels are below 1?

Ipedalforpleasure

Hi I'm also hypothyroid and have lost 75 pounds, taking 35 mcg of synthroid daily. I haven't had any issues, I just watch what I eat and workout 5-6 times per week.

Fuzzipeg

The things I have found which have improved my symptoms have absolutely nothing to do with tsh. In fact when on liquid levo and my tsh was .5 I felt so much worse than at any time in the previous 40 years. Taking the pill form made my symptoms worse. Taking levo suppresses the tsh. Do you know if you are iodine deficient hypo or like the majority of us have Hashimotos thyroiditis an autoimmune disorder. Doctors treat both the same but reducing one's thyroid antibodies really helps those with hashi.

I'm down more than 100 lb, none of it with the help of t4 thyroid medication. What helped me was taking thyroid support supplements, doing a candida diet, eliminating intolerances and using probiotics to repair my digestive biome. I was so ill at one time that I could not walk easily and my reactions to other peoples perfumes and household cleaning products made it impossible for me to do all the things I loved. Now I can do so much more than when I was in my 40's.

leahcollett1

i have no choice but to take levo, its the only thing that is offered in the uk unfortunately

Fuzzipeg

ME to I'm UK. True you have to go to the health food shop. Optibac is the range of probiotics which are also no histamine. Biocare do a brilliant thyroid support, I can't remember the proper name but it has 207 in it. I bought it for my daughter this morning. I know there are other brands available but these are ones which helped me.

I know what you are going through. My doctors would not have it that I react to their favourite t4.

leahcollett1

Can you take that as well as the levo?

hotel4dogs

I've been zero thyroid for almost 40 years, taking full supplement. My doctor says that it "doesn't play nearly as large a part in weight control as people like to think". Apparently studies have shown that being low thyroid for several years *might* account for about a 5-10 pound weight gain, but there have been no true cause/effect studies done. Lord knows I've gained more than 5 pounds over the years! However, sorting out my thyroid issue certainly did help with the dry skin, hair loss, being constantly cold, and low blood pressure.

Here's some information, taken from http://www.thyroid.org/thyroid-and-weight/.

I am sharing this simply because I don't want people to be disappointed when they get their thyroid issues sorted out and the weight doesn't start to disappear, and as tough love for those who blame their excess weight on thyroid issues. It just doesn't make that much difference.

HYPOTHYROIDISM AND THYROID HORMONE
WHAT IS THE RELATIONSHIP BETWEEN HYPOTHYROIDISM AND WEIGHT GAIN?
Since the BMR in the patient with hypothyroidism (see Hypothyroidism brochure) is decreased, an underactive thyroid is generally associated with some weight gain. The weight gain is often greater in those individuals with more severe hypothyroidism. However, the decrease in BMR due to hypothyroidism is usually much less dramatic than the marked increase seen in hyperthyroidism, leading to more modest alterations in weight due to the underactive thyroid. The cause of the weight gain in hypothyroid individuals is also complex, and not always related to excess fat accumulation. Most of the extra weight gained in hypothyroid individuals is due to excess accumulation of salt and water. Massive weight gain is rarely associated with hypothyroidism. In general, 5-10 pounds of body weight may be attributable to the thyroid, depending on the severity of the hypothyroidism. Finally, if weight gain is the only symptom of hypothyroidism that is present, it is less likely that the weight gain is solely due to the thyroid.
HOW MUCH WEIGHT CAN I EXPECT TO LOSE ONCE THE HYPOTHYROIDISM IS TREATED?
Since much of the weight gain in hypothyroidism is accumulation in salt and water, when the hypothyroidism is treated one can expect a small (usually less than 10% of body weight) weight loss. As in the treatment with hyperthyroidism, treatment of the abnormal state of hypothyroidism with thyroid hormone should result in a return of body weight to what it was before the hypothyroidism developed. However, since hypothyroidism usually develops over a long period of time, it is fairly common to find that there is no significant weight loss after successful treatment of hypothyroidism. Again, if all of the other symptoms of hypothyroidism, with the exception of weight gain, are resolved with treatment with thyroid hormone, it is less likely that the weight gain is solely due to the thyroid. Once hypothyroidism has been treated and thyroid hormone levels have returned to the normal range of thyroid hormone, the ability to gain or lose weight is the same as in individuals who do not have thyroid problems.

leahcollett1

i must be one of them anomalies! in july when my thyroid took a dive, i gained 11lbs in 2 weeks 8lbs first week and 3lbs the next on 1400 calorie deficit. thats what spurred me to get tested at the drs.

all i have wanted is for myself to be put on the same level as everybody else who can lose weight normally i definitely know that the pills arent magic as i have stayed the same these past 2 weeks so no weight loss doesn't come with a thyroid below 1. i just wanted some success stories of those suffering but have still managed to lose

KourageousKarina

Feel free to add me

amyteelboswell

I was diagnosed with hyperthyroidism in 2003 after two miserable years of being misdiagnosed and treated for depression. I gained 60 lbs in 6 months and nothing would take the weight off. Finally a GP ran a simple thyroid screen & started me on synthroid. After about a year I started seeing an endo who over a period of 8 years decreased the dose from 200mcg/day to 100 until my labs were in line. But I never felt quite right and still carried 15-20lbs of that added weight. I never asked what my labs were bc I really didn't have the mental strength to deal with it due to brain fog. When we moved out of state, my new gynecologist said he could handle my thyroid. He started me on T3 (cytomel) in addition to my synthroid and I felt immediately better! A co-worker told me about NDT & the STTM website, I started researching & found a functional medicine doc. She confirmed I had Hashimoto's & a MTHFR gene mutation & we switched to Armour (which I didn't like) & then to WP Thyroid, which I love plus the T3. Now that I was "awake" I kept researching & learning. I now see an awesome doc, take the WP, T3, magnesium chelate, PodiaPn, D, turmeric, and there are others that I will begin as soon as labs come back & money allows like curcumin & iodine. One of the BEST things I did was go on an AIP (autoimmune paleo) diet! My pain is minimized and I've effortlessly lost the last 15 lbs. I'm 46 now, workout regularly, can think straight(er), and feel better than ever! I hope this helps someone bc I now know this CAN be managed well and it's not my fault.

kellyw92

I've been struggling with hypothyroid since 2012, after my 2nd child in 2015 I was treated for anxiety/depression I am still on anti depressants as well as 25 mcg of synthroid, same dose since 2012, and have packed on a good 30 lbs in 3 months! I'm afraid to switch meds for mental health reasons but I never feel good, I have good days but mostly *kitten* lol I am just beginning the research to aid my thyroid because my docs tell me the numbers are "normal" any pointers would be greatly appreciated!!

CSARdiver

Welcome aboard! Feel free to add me to your list.

I had a total thyroidectomy in 2000 and put on ~70 lbs due to not being aware of my caloric intake, shifting from a high active military career to a cushy civilian job in academia, and pretty much stopping working out. Since I found MFP 2 years ago I lost ~60 lbs and feeling great. I'm on 175/200 mcg Synthroid alternating daily. My TSH is in the .1-.2 range.

A key with all hormonal conditions is that they will not be in balance if you are overweight. Hormones are free cycling and this make is tremendously difficult to be at normal levels. Set your numbers in MFP, use light to moderate exercise, drink plenty of water and stick with a routine. It doesn't matter so much what the routine is as long as it is something you can live with for the rest of your life.

moomin492

Any thyroid friends want to add me