Hashimotos, just starting out.

emm3rs

I got diagnosed with Hashimoto's (auto-immune disease that attacks your own thyroid resulting in hypothyroidism) 6 weeks ago, and I have been put on levothyroxine and have become therapeutic since then. Monday I had a follow up appointment with my endocrinologist, and she wanted to know my goals for the next 6 months, besides staying therapeutic on my medications.

I mentioned that loosing some weight and getting pregnant were important goals for me. She asked me what I had been doing about the weight loss and I mentioned Weight Watchers. In the past 6 months I had been able to lose 12 lbs., which obviously isn't the amount I should have lost, but at least it was something. Keeping in mind that I was battling my own body (thyroid and metabolism) to loose that, I think that I did a great job.

I left the office Monday upset and with a prescription for phentermine, which I promptly shredded as soon and I got home. First of all I didn't ask for medicinal help for weight loss, and I just got therapeutic on my levothyroxine. I'm a nurse and I already knew that I wasn't planning on taking it, and furthermore, what's the point because at some point you come off of it and gain all the weight back.

I feel like she didn't even give me a chance to have a go on it on my own. So here I am, measuring and weighing everything I put in my mouth, and exercising with my apple watch and appropriately logging the calories burned.

I know I can do this, loads of people do, just frustrated that my Dr. resorted to medications. I would love to have like minded people join me on my journey, and help hold me accountable and encourage me to meet my goals.

SW: 275
CW: 261
GW: 150

Nice to meet you all !

FlyersRN

Hi there! I have Hashimotos as well. It's so frustrating to lose weight and keep it off with this pesky disease. I was diagnosed in 2014, started Synthroid, 50 mcg , and was able to lose thirty lbs in 5 months with diet and exercise and MFP! Over the last two years my meds constantly had to be tweaked and I gained back almost 20 lbs despite diet and exercise. It seemed as though I would have 1 cheat meal per week and would gain instead of losing. I tried 21 day fix, HIIT workouts, anything that would help boost my metabolism but nothing helped. In january, my endo started me on Cytomel in addition to my Tirosint (levothyroxine) I started a three week challenge on 2/8 and am down about six lbs. I don't weigh in until Friday but I feel like I'm starting to see some weight drop off. I've put on a bit of muscle as well so I'm not paying too much attention to the scale and am hoping to have seen some inches lost st the end of the week. Hashimotos stinks and stay on top of your doctor. If you don't feel well, call her. If you think you need your meds adjusted, call her. I'm lucky to have a doctor who treats my symptoms, not just the blood levels. I have been working hard at gym, approx 7-10 hours per week. Intervals on elliptical, weights, fitness classes like Zumba, kettlebell, and piloxing. I still feel very sluggish so I may need my Cytomel raised again. It's a constant battle. It takes time to get the right combination/dosage of meds. Hang in there. I'm back to using MFP since this has worked so well for me the last time! Eat clean, exercise 5-6 days per week. Allow yourself a cheat meal or treat once per week so you don't go crazy and binge! Good luck and you got this!

emm3rs

FlyersRN wrote: »

Hi there! I have Hashimotos as well. It's so frustrating to lose weight and keep it off with this pesky disease. I was diagnosed in 2014, started Synthroid, 50 mcg , and was able to lose thirty lbs in 5 months with diet and exercise and MFP! Over the last two years my meds constantly had to be tweaked and I gained back almost 20 lbs despite diet and exercise. It seemed as though I would have 1 cheat meal per week and would gain instead of losing. I tried 21 day fix, HIIT workouts, anything that would help boost my metabolism but nothing helped. In january, my endo started me on Cytomel in addition to my Tirosint (levothyroxine) I started a three week challenge on 2/8 and am down about six lbs. I don't weigh in until Friday but I feel like I'm starting to see some weight drop off. I've put on a bit of muscle as well so I'm not paying too much attention to the scale and am hoping to have seen some inches lost st the end of the week. Hashimotos stinks and stay on top of your doctor. If you don't feel well, call her. If you think you need your meds adjusted, call her. I'm lucky to have a doctor who treats my symptoms, not just the blood levels. I have been working hard at gym, approx 7-10 hours per week. Intervals on elliptical, weights, fitness classes like Zumba, kettlebell, and piloxing. I still feel very sluggish so I may need my Cytomel raised again. It's a constant battle. It takes time to get the right combination/dosage of meds. Hang in there. I'm back to using MFP since this has worked so well for me the last time! Eat clean, exercise 5-6 days per week. Allow yourself a cheat meal or treat once per week so you don't go crazy and binge! Good luck and you got this!

Wow thank you for the response ! I often feel like i'm nuts! Thankfully, my endo did listen to me, I was on 112mcg of levo and switched me to westerthryroid 81.25. The change from just T4 to T4 and T3 has helped a lot. I was doing loads better on the levothyroxine, but I was starting to slowly experience fatigue and other symptoms again. I will try and clean up my diet as Im thinking its probably the culprit! Please feel free to be friends with me and offer advice my journal for food is always open, and Im always open for advice! Glad to see there is a light at the end of the tunnel!

CSARdiver

Welcome aboard! You're among good company here and there are several members here with various thyroid disorders.

You definitely have a great attitude on this - keep that up. This is much more a mental game than it is physical. Sounds like you have an excellent endocrinologist. This is usually one of the biggest hurdles most people face.

I had thyroid cancer in 2000 resulting in total thyroidectomy. I put on ~70 lbs over 14 years - nothing to do with my thyroid. I transferred from a high active military career to a cushy civilian job in academia - rarely if ever worked out, but still ate as if I was running 6 mi/day and swimming 2 mi/day. I work in pharmaceuticals and used to manage the pharmacovigilance of Synthroid. Now managing a different portfolio, but have full access to a metabolics lab and get to play mad scientist.

Don't overthink the metabolism aspect. Even at 0 thyroid this only impacts your Resting Energy Expenditure (REE) by ~5%. What matters most is you caloric intake and output.

Make sure your physician is pulling your full thyroid panel periodically - TSH, fT3, fT4, and rT3.

Other than taking your meds and establishing a routine, there isn't much else I can think of. There are several elite level athletes with hypothyroidism and a number of physicians believing that this may be a result of continued endurance competitions.

My diary is open and just send me a note if you have any questions.

Again - welcome!

robbinmaynard0570

Me too, but not so new, since 2011. But I have been immobile due to plantar fasciitis. but surgery this past January. joined a gym and decided I better track myself in order to stay focused. I am not as dedicated to losing the weight, but just getting my strength and stamina back.

kebass01

I just got the call today that my hypothyroidism for 15 years is now Hashimotos. I'm only 29, no kids. I am being switched from levythyroxine to Nature-roid 81.5. I thought I was feeling dizzy and light headed from dieting (down 15lbs in a little over 2 months) so I ate more and about a week and a half ago I started feeling more nauseous and just run down. I assumed my immune system was under attack since I had recently donated blood, dieting, and training for a marathon will run one down. I guess I am part of the Hashimotos group now. A couple of my coworkers have it as well and one said when she makes the switch to whole 30 or gluten free she sees a tremendous decrease in fatigue and after research it is more common for people with Hashimotos to be gluten sensitive. I just really don't want to give up my fries and pasta, but I might try to incoroprate a gluten free meal here and there now.

Morganbennett1

I used to be hyper, then I received radioactive iodine treatment, now I'm hypo on levothyroxine. Feel free to add me, so far I've lost 57lbs on here, looking to lose 30 more.