"Water Toxicity" or "Hyponatremia". Drinking too much water can kill you!

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  • Unknown
    edited August 2017
    This content has been removed.
  • jennybearlv
    jennybearlv Posts: 1,519 Member
    edited August 2017
    Let me clarify. I am on Trileptal as a mood stabilizer for what my psych doc feels is a form of Bipolar. I hesitate to use that word as it scares a lot of people. Many just use the word "Mood Disorder" which is ok too. So please don't judge me too harshly that "oh she's just mentally ill." So not classic, but some form. It has been a great med and for the most part I've been stable. I cut the dose by 1/4th on my own, but the psych doc cut it by another 1/4th, thus 1/2 the dose now. However, after getting the news my sodium was back to normal I think I'm been having some form of mania or hypomania the past week. I've just been so damn happy and I can't help it. I want to shout it from the roof tops. I love my therapist of 2 yrs and I see for her for EMDR for PTSD. For 2 years she has raged about the BP dx saying so many want to label people with PTSD with a BP dx when that's not the problem.

    Well I see her once a week. I saw her two days ago and rattled on and on and on about the past week, how happy I was, on and on and on, saying I really don't think I need therapy anymore. For the very 1st time in 2yrs I heard her use the word "mania". I stopped but didn't say anything as I was so stunned. I definitely will bring it up next week. However, my H and I discussed it in depth last night as he said I'm definitely manic. Whether it't due to cutting the Trileptal or the stress that triggered it, not sure. Only got 3 hrs sleep last night. I honestly don't want to ruin my happiness, but as one specialist pointed out to me several years ago "what goes up, must come down." Meaning if you go into mania, the opposite is going into a depression. Haven't been in a serious depression for many many years, but it wasn't pretty when I was in it. I don't want that to happen. So I'm getting ready to rest for awhile and try to stay calm. I can't focus or accomplish and have so much to do it really bothers me.

    I don't want this to turn into a mental illlness thread, but wanted to honestly answer your question. I see my psych doc in 2 weeks and if still this way will probably get another med added or I may even call him sooner if not feeling stable. The problem when you're feeling happy you don't think it's a problem so why would I want anybody to ruin it. I've worked so hard to get off of so many meds it will be a hard pill to swallow. So going to try to use some self care to come down.

    Thanks for taking the time to respond.

    There are plenty of us on this board who are open about our bipolar disorder. The normals are used to us. As someone who has dealt with my own manic episodes I would highly recommend getting in to see your psychiatrist as soon as possible. Once you stop sleeping things can get out of hand fast. Your pdoc can get you on something to stabilize you without it messing with the sodium. Call this weekend if your doctor is available. If not ask your family to keep an eye on you until Monday. In case things get bad they can get you help from the ER.
  • marymickaela
    marymickaela Posts: 190 Member
    Dear Cat, paralthpiiano, and mph323,

    Thank you for your kind responses. I actually took a med I was prescribed to use to bring me back down a little while ago and while I am feeling sedated it's working. Slept for a hour or so and hoping to sleep well tonight. The mania seems to be subsiding, but it could be the med. I don't like using it as it causes an increase in hunger. .


    I've been able to stop myself from making financial decisions (spending money. not that I didn't think about it) and I think the worst thing I've done is tell perfect strangers about the sodium crisis. I have been bouncing off the walls. The euphoria has just made me so happy and as I told my H it truly is contagious. People seem enchanted hearing about regaining my eye sight suddenly and I can give him examples to prove it. I'm always apologizing for taking up their time, but they want to hear it. My being happy seems to make others happy. You just have to take my word for it. Is my perception distorted? Maybe, but I do have examples to prove my theory.

    I did write an apology to 2 of my girlfriends after re-reading what I wrote them. I said I don't how you wallowed thru this novel. Said if I ever write a book will definitely need an editor. I've been so thankful for the people who have reached out to me.

    So, I am learning that OP is not offensive so thank you for enlightening me. I kept thinking here's my profile pic with my name and I just felt like I was a non-person standing there while people talked about me.

    Oh, I've cut my water intake and my vision is improving again.

    Mary
  • CattOfTheGarage
    CattOfTheGarage Posts: 2,745 Member
    Well, don't worry about telling us any of this. At the end of the day, we don't know who you are. Sometimes people vent online, and it doesn't do any harm in the long run.
  • marymickaela
    marymickaela Posts: 190 Member
    Well, don't worry about telling us any of this. At the end of the day, we don't know who you are. Sometimes people vent online, and it doesn't do any harm in the long run.

    Thanks, that's nice to hear!
  • 12774
    12774 Posts: 1,416 Member
    You have a lot of serious medical issues for which you should be following your doctors advice and MFP is not the platform for which should seek any advice. Please follow doctors' orders!
  • mph323
    mph323 Posts: 3,565 Member
    12774 wrote: »
    You have a lot of serious medical issues for which you should be following your doctors advice and MFP is not the platform for which should seek any advice. Please follow doctors' orders!

    Her problem at the moment is that she has conflicting orders from different doctors.
  • marymickaela
    marymickaela Posts: 190 Member
    edited August 2017
    12774 - You have a lot of serious medical issues for which you should be following your doctors advice and MFP is not the platform for which should seek any advice. Please follow doctors' orders!


    I was never seeking medical advice. The original purpose of my post was to share what happened to me after drastically increasing my water intake. I certainly didn't realize it would turn into such a lengthy discussion. I was just trying to share.

    and mph323 is definitely correct in that I have way too many Specialists and they are all giving me different advice. Who am I to listen to?
  • marymickaela
    marymickaela Posts: 190 Member
    wrote: »
    -

    I just wanted to say thank you for sharing, Mary. I know we have kind of turned this into a thread about your health. I need to change something in my meds when I see my doctor this week and it is good to know trileptal can cause low sodium levels. Important information for people like me who may drink 3 liters of water while doing outdoor activities.

    You are very welcome. This is why I wanted to share in hopes it brings something like this to other's attention. Since I certainly didn't know, thought maybe it might help. I did look up side effects from Trileptal and "blurred vision" is also one of the side effects. When I talk to my psych dr I will have to discuss getting off the Trileptal, which will mean switching to yet another med.
  • Noreenmarie1234
    Noreenmarie1234 Posts: 7,492 Member
    edited August 2017
    Are you talking about pure water or all fluids? I drink about 200oz a day including water that is used to make coffee, protein powder shakes, tea etc. and I am only 105lbs.
  • Noreenmarie1234
    Noreenmarie1234 Posts: 7,492 Member
    Never mind read whole post lol
  • Machka9
    Machka9 Posts: 25,592 Member
    I've had hyponatremia twice.

    Once as a part of an ultra distance cycling event in 2007 ... and once as a part of a surgery in May this year.


    Hyponatremia is not new or unusual. We've known about it for more than a decade.
  • marymickaela
    marymickaela Posts: 190 Member
    Machka9 wrote: »
    I've had hyponatremia twice.

    Once as a part of an ultra distance cycling event in 2007 ... and once as a part of a surgery in May this year.


    Hyponatremia is not new or unusual. We've known about it for more than a decade.

    Of course now that I know about it and researched it and am getting educated I agree, but like I said I was never informed about this possible problem. I'm feeling more stable this morning. Actually got a good nights sleep for the 1st time in a couple weeks. Sleep has such healing properties and one of the necessities of life as that's when our bodies repair.

    Will talk to psych doc on Tuesday and when I see kidney specialist on Thursday I will certainly have a lot of questions regarding this problem. It looks like something I'll have to stay on top of. I did watch a YouTube video where a woman went into a coma due to hyponatremia. As she recovered she's now able to recognize when this is recurring. Her memory is a biggie so her H will test her everyday. She's very much into Ancestry so can rattle off info L & R. When the sodium drops this is her 1st sign as her memory goes. For me the memory, blurred vision. and severe leg weakness were all symptoms. However, I blamed it on Cataracts, macular pucker in eyes, possibly a low thyroid for leg weakness and gee am I getting Alheizmers for the memory.

    I truly believe the Trileptal was causing the hyponatremia even before I increased my water. However, it was when I increased the water my symptoms exacerbated. I know I'll have to get totally off the Trileptal as suddenly being able to see seemed miraculous as well as my memory returning. Not worth losing my eyesight or memory over a med.
  • marymickaela
    marymickaela Posts: 190 Member
    edited August 2017
    [quote="marymickaela;c-40233351
    quote]There are plenty of us on this board who are open about our bipolar disorder. The normals are used to us. As someone who has dealt with my own manic episodes I would highly recommend getting in to see your psychiatrist as soon as possible. Once you stop sleeping things can get out of hand fast. Your pdoc can get you on something to stabilize you without it messing with the sodium. Call this weekend if your doctor is available. If not ask your family to keep an eye on you until Monday. In case things get bad they can get you help from the ER.

    I want to thank you for posting this. I was only dx'd at age 53 after a nervous breakdown and hospitalized. However in the following years it was very upsetting as I'd have one specialist say I had rapid cycling bipolar, hospitalized again and told "not bipolar", hosp again, "yes, you are." So you can see the confusion. I love my psych doc of 7yrs. The psych doc I'd been seeing had me on Lithium and I was having severe reactions. She was a horrible dr and passed me off to my current dr. Well when current dr saw the state I was in he said "this is totally unacceptable" and took me off the Lithium and got me stable. We've discussed the BP dx at length as it's been a bitter pill to swallow. He has told me I don't have classic BP, but am on the BP Spectrum.

    Looking back over the past week or more I now recognize I was having mania. Whether it was triggered by the stress, cutting the Trileptal. Not sure. H and I finally had a very long talk 2 nights ago and made me realize I was in mania. I said "but it feels so good". I mean I've been dancing all over the house the past week non-stop and just put the euphoria down to a week from hell and hearing my sodium was back to normal. Plus, the song "Despocito" is sure to get those feet dancing.

    It was hearing my Therapist use the word "mania" after 2 yrs denying my BP that got my attention. As I said I got a good night's sleep last night and definitely feeling more stable. My youngest d was dx BP as a teen, although now stable I do worry about her. My 19yo granddaughter has also been dx BP and her (crappy bio-dad) is severely BP). We're just now getting her stable with the right meds. It's been a very rough year with her thou. Seeing her getting stable now is wonderful.

    Again thank you for the response. It's nice to know I can be open about this and not judged.
  • orangegato
    orangegato Posts: 6,572 Member
    edited August 2017
    Mary @marymickaela , maybe you can recognize symptoms of hyponatremia in you after going through this experience, but if you remain on Trileptal at whatever dose, I would ask my docs who will be monitoring the sodium level, how often etc - so that you don't have to take on more responsibility to monitor symptoms yourself; let the docs be responsible for monitoring sodium by getting blood tests. Just my $0.02.
  • VintageFeline
    VintageFeline Posts: 6,771 Member
    There is definitely a balance to be found between efficacy and side effects. if the low sodium is easily fixed by just upping dietary sodium and the med is otherwise effective it may be ill advised to come off it.

    I am not saying this is the situation in this case but it should always be part of the discussion. I always weigh things up when starting a new med and keep an eye on side effects. I get some now but my moods are more stable than they've ever been so the not so great but manageable side effects are worth it.

    For context, I am bipolar type 2, only diagnosed for a couple of years.
  • ssbbg
    ssbbg Posts: 153 Member

    I am also on a lot of other meds. I have no thyroid due to cancer at age 26 so see "Endocrinologist" he tests thyroid. RLS - See "Neurologist". 2 yrs ago started having hematuria in urine. See "Urologist", and of course my Internist for everything else, esp. High Blood Pressure which I finally agreed to start meds in March. Thinking back. When I started feeling so tired and lethargic in May I had many things I blamed it on so started back on Shaklee Protein & Vitamins after reconnecting with best friend. June, still not feeling good. Well, maybe I need to start eating better. So July, start new Sugar Smart Diet and the 20th increase my water. Hindsight is wonderful, but I had no reason to suspect the "Trileptal".

    I think some high blood pressure meds also mess with water and electrolyte balance. I highly recommend that you point this medicine out to whatever doctor you talk to next about your sodium issues. This is something else that changed recently and may have contributed to things going very wrong when you increased your water intake.

    Are you going over your entire medication list with your doctors? I'm sure you update them when you add something new, but I mean take them the entire list and doses and timing and make them go through _everything_. Many times they don't review the file to see the big picture or the office records aren't updated properly, so they don't necessarily see all the potentials for interactions.

    Your pharmacist may also be able to review your medication list with you and they may have more time. They could at least flag worrying combinations which you could talk to your doctor about. (Talk to a pharmacist, not a pharmacy tech.)

    I'm glad you are feeling better and I hope you get everything sorted with your doctors.
  • RamboKitty87
    RamboKitty87 Posts: 272 Member
    Wow what an eye opener, I can sometimes drink 3 litres quite easily, normally I stay around 2 litres per day but everyone I spoke to when I told them I was eating healthier said I should drink as much water as I can, its like one of the first things I get told / read about when looking for tips about losing weight its always "increase water intake" or "drink a pint of water whenever you feel hungry" etc etc so you cannot blame people for over-doing it, I will take this onto account from now on though, I sometimes get dizzy and eye sight can get blurry when I am out in public but I always put that down to my anxiety, thank you for sharing your story and I am sorry this has happened to you, I would suggest possibly getting a smaller water bottle, freezing a bottle of water and drink it as its thawing so you drink slower or try and monitor as best you can your water intake, just be careful and stay safe :)
  • mph323
    mph323 Posts: 3,565 Member
    Wow what an eye opener, I can sometimes drink 3 litres quite easily, normally I stay around 2 litres per day but everyone I spoke to when I told them I was eating healthier said I should drink as much water as I can, its like one of the first things I get told / read about when looking for tips about losing weight its always "increase water intake" or "drink a pint of water whenever you feel hungry" etc etc so you cannot blame people for over-doing it, I will take this onto account from now on though, I sometimes get dizzy and eye sight can get blurry when I am out in public but I always put that down to my anxiety, thank you for sharing your story and I am sorry this has happened to you, I would suggest possibly getting a smaller water bottle, freezing a bottle of water and drink it as its thawing so you drink slower or try and monitor as best you can your water intake, just be careful and stay safe :)

    1. You only need to drink enough fluids daily to keep your urine light yellow, unless you have a medical condition that requires you to drink more.

    2. If you're having dizziness or blurry eye-sight you need to be checked out by a doctor - don't self-diagnose, there are multiple causes for these types of symptoms and not all the causes are benign.
  • marymickaela
    marymickaela Posts: 190 Member
    mph323 wrote: »

    1. You only need to drink enough fluids daily to keep your urine light yellow, unless you have a medical condition that requires you to drink more.

    2. If you're having dizziness or blurry eye-sight you need to be checked out by a doctor - don't self-diagnose, there are multiple causes for these types of symptoms and not all the causes are benign.

    Well in May I was so concerned about my eyesight I moved my eye surgeon's appt up early. My eyesight had definitely changed so got driving glasses. Saw my Retina Spec in July for the Macular Pucker in my L eye. I had Lasik in 2000. Had R eye done in Am & L in afternoon. Right eye was great. I believe this was purely a fluke and you'll probably flinch, but as we pulled into our drive coming home I believe a gust of wind caught the cornea in my L eye. I knew something was wrong, but was going back to surgeon 9am next morning. Went in and he took one look and rushed me into surgery. My cornea had come off and was up in the corner of my L eye. I won't get into how excruciating this was. I'm now told (by my current spec) that the dr did a good job sewing it back on but the cornea has been damaged so I have a shadow in my L eye. In July my Retina Spec said I should have the cataract surgery and then he would do the macular pucker surgery.

    The hematuria was discovered during a routine dr's visit 1 1/2yr ago. I was referred to urologist and have had every text under the book and no cause has been found. However a hematuria test done end of June to determine if the bleeding was coming from the upper or lower tract said I have severe bleeding coming from my kidneys. Thus my need to see kidney specialist. At last weeks apt he did say it's definitely not normal, but we need to get the sodium under control first.

    Here's the interesting part of the hematuria. When I cut back on the water little to no blood shows up on the dip stick. When I increase my water it shows up. I think I mentioned this to kidney spec, and will see him again on the 17th. Hopefully, the sodium will still be stable and we can focus on what this is about. The good news is it's been going on so long and all my kidney function tests came back normal. I may have to have a kidney biopsy to find out for sure. However, the worrisome part is my mom died of kidney cancer at age 63. No kidney symptoms until it has spread thru-out her body. I've already outlived her & her mom (maternal gma) died of cancer at age 68. Well, I've already had cancer at 26 going thru a 3hr surgery during my 5mo of pregnancy.

    As you can see I have had a lot to deal with so no wonder my stress level has reached the breaking point.

    I truly appreciate all the helpful advice. Trust me I'm not looking for advice and am in the hands of a great Urologist, new fantastic Nephrologist, incredible Endocrinologist for my thyroid cancer, wonderful Neurologist if I don't count his PA, great psych dr, a fantastic orthopedic surgeon as all the cartilage is gone in my R shoulder in addition to rotator cuff tear, great Opthalmologist, & Retina Specialist, and my great Internist of many years. Oh, can't leave out my ICU nurse daughter. They are all up to speed on my meds. Let's see, who am I leaving out. LOL!!

    Thank You All!!!
    Mary
  • RamboKitty87
    RamboKitty87 Posts: 272 Member
    mph323 wrote: »
    Wow what an eye opener, I can sometimes drink 3 litres quite easily, normally I stay around 2 litres per day but everyone I spoke to when I told them I was eating healthier said I should drink as much water as I can, its like one of the first things I get told / read about when looking for tips about losing weight its always "increase water intake" or "drink a pint of water whenever you feel hungry" etc etc so you cannot blame people for over-doing it, I will take this onto account from now on though, I sometimes get dizzy and eye sight can get blurry when I am out in public but I always put that down to my anxiety, thank you for sharing your story and I am sorry this has happened to you, I would suggest possibly getting a smaller water bottle, freezing a bottle of water and drink it as its thawing so you drink slower or try and monitor as best you can your water intake, just be careful and stay safe :)

    1. You only need to drink enough fluids daily to keep your urine light yellow, unless you have a medical condition that requires you to drink more.

    2. If you're having dizziness or blurry eye-sight you need to be checked out by a doctor - don't self-diagnose, there are multiple causes for these types of symptoms and not all the causes are benign.

    I know this now..., not everyone wakes up with all this knowledge on eating healthy etc you know, I was just stating whenever I tell someone I am eating better / dieting or look at tips online they always say "drink more water" so I don't blame people for thinking that drinking lots of water is good for them... also I only ever get dizzy when I am feeling anxious, if I did not self diagnose I would still be in crippling pain not knowing what was wrong with me as I knew I had gallstones but my doctor was convinced all I had was constipation, I went to see her so many times about the pain and she said the same thing every time and when I kept insisting it wasn't to the point where I was in tears due to pain and frustration she said she'd sort out an ultrasound for my own piece of mind and that it would most likely come back with nothing because she was so sure nothing was wrong and it actually did turn out I had gallstones. Doctors are so fracking useless at times.
  • mph323
    mph323 Posts: 3,565 Member
    mph323 wrote: »
    Wow what an eye opener, I can sometimes drink 3 litres quite easily, normally I stay around 2 litres per day but everyone I spoke to when I told them I was eating healthier said I should drink as much water as I can, its like one of the first things I get told / read about when looking for tips about losing weight its always "increase water intake" or "drink a pint of water whenever you feel hungry" etc etc so you cannot blame people for over-doing it, I will take this onto account from now on though, I sometimes get dizzy and eye sight can get blurry when I am out in public but I always put that down to my anxiety, thank you for sharing your story and I am sorry this has happened to you, I would suggest possibly getting a smaller water bottle, freezing a bottle of water and drink it as its thawing so you drink slower or try and monitor as best you can your water intake, just be careful and stay safe :)

    1. You only need to drink enough fluids daily to keep your urine light yellow, unless you have a medical condition that requires you to drink more.

    2. If you're having dizziness or blurry eye-sight you need to be checked out by a doctor - don't self-diagnose, there are multiple causes for these types of symptoms and not all the causes are benign.

    I know this now..., not everyone wakes up with all this knowledge on eating healthy etc you know, I was just stating whenever I tell someone I am eating better / dieting or look at tips online they always say "drink more water" so I don't blame people for thinking that drinking lots of water is good for them... also I only ever get dizzy when I am feeling anxious, if I did not self diagnose I would still be in crippling pain not knowing what was wrong with me as I knew I had gallstones but my doctor was convinced all I had was constipation, I went to see her so many times about the pain and she said the same thing every time and when I kept insisting it wasn't to the point where I was in tears due to pain and frustration she said she'd sort out an ultrasound for my own piece of mind and that it would most likely come back with nothing because she was so sure nothing was wrong and it actually did turn out I had gallstones. Doctors are so fracking useless at times.

    Neither of my points were included in your post. And you left out the part where you were seeing a doctor for your dizziness and blurry vision and were diagnosed with gallstones instead of the anxiety you were putting it down to.
  • WatchJoshLift
    WatchJoshLift Posts: 520 Member
    After reading this thread I have come to the conclusion that I have lived for too long.
  • xvolution
    xvolution Posts: 721 Member
    Wow what an eye opener, I can sometimes drink 3 litres quite easily, normally I stay around 2 litres per day but everyone I spoke to when I told them I was eating healthier said I should drink as much water as I can, its like one of the first things I get told / read about when looking for tips about losing weight its always "increase water intake" or "drink a pint of water whenever you feel hungry" etc etc so you cannot blame people for over-doing it, I will take this onto account from now on though, I sometimes get dizzy and eye sight can get blurry when I am out in public but I always put that down to my anxiety, thank you for sharing your story and I am sorry this has happened to you, I would suggest possibly getting a smaller water bottle, freezing a bottle of water and drink it as its thawing so you drink slower or try and monitor as best you can your water intake, just be careful and stay safe :)

    Dizziness and blurry vision are two symptoms of low blood pressure, but without getting it checked out by a doctor you can't be entirely sure. If you're not on a sodium-restrictive diet, next time these symptoms occur lick about 1/8tsp salt and see if that helps. Most of the time low blood pressure is caused by not having enough sodium in the blood, and taking in some pure salt should help with that (if that's the problem).

    I think I'm developing hyponatremia myself, mainly from loss of sodium through sweat (I went back to work yesterday after a long medical leave due to a foot injury, and my BP after work was 95/54, my shirt was completely drenched in sweat. That was after treating dizziness using a bit of salt water).
  • jgnatca
    jgnatca Posts: 14,464 Member
    I just want to pipe in that the advice to "see your doctor" is fine for critical conditions but for chronic illnesses the patient will always be their best advocate. In this case the OP has three chronic conditions; a cycling mood disorder on the bipolar spectrum, high blood pressure and kidneys. I think. I've got them all.

    And now managing electrolytes will be very important.

    The problem with waiting to see the doctor for a chronic condition is that symptoms can get out of control before the next appointment.

    OP, it sounds like you have trusted family members who are alert enough to warn you when your mood flies past average. Make a pact to act on their advice. You might get used to logging your daily mood between -10 to +10. Tracking your sleep symptoms is also very helpful. Not enough sleep is heading to manic, too much in to depressive. When you shoot out of range, see your specialist sooner rather than later.

    Do you have a BP monitor at home? That might be handy to have. Track it and if you get too low, eat something salty.

    When you get those blurry wobbly symptoms, eat something salty and cut back on the water.
  • RamboKitty87
    RamboKitty87 Posts: 272 Member
    @mph323 Look I was just making a comment to the OP, I didn't want a debate with anyone alright, I was just trying to say tell her thank you for sharing this as I did not know and that people are always telling me to drink lots of water that is it. I never said I did see a doctor about my dizziness I was just saying that doctors are useless besides I don't have to explain myself to you. so take care, bye bye.


    @xvolution
    In my case the dizziness is a symptom of anxiety, I only get this feeling when I am out and about and feeling anxious, the blurred vision is just due to the dizziness, if I was feeling like this when I wasn't anxious I would go see my doctor even though the doctors in my surgery are pretty useless.
  • CattOfTheGarage
    CattOfTheGarage Posts: 2,745 Member
    @RamboKitty87 is right, a lot of people are getting the message that drinking huge amounts of water is necessary to weight loss (it isn't) and that water is harmless/ more is always better (not true).

    Please, people, be careful where you get your information. Be a sceptic. Don't accept every tip as gospel. Most nutrition information on the Web is wrong. It's that simple. And this "drink as much water as you can" thing is wrong. It's everywhere, not because it's true, but because it's in fashion. Don't be a victim of fads.

    Drink as much as you need to keep you pee the right colour (pale straw colour). That's all. Any more is unnecessary, your body cannot use it, and in extremes it can cause harm.
  • marymickaela
    marymickaela Posts: 190 Member
    Glad that my post has stirred up some useful debate.

    Regarding my blood pressure. It was still high last week while having hyponatremia. I have a very good digital cuff Omtron blood pressure monitor that's bluetooth so I can sync my #'s to my IPhone and show my doctor. At my physical she wanted to add yet another med, but said she'll give me 3 months on my new diet to see if it comes down. Said you need to take it when you've been active as that's when you're going to have a stroke. So say after a walk, being busy. Not while you're just sitting.

    Also I'd like to repost what my daughter posted under my Facebook post regarding my problem last week. I was getting some pretty outrageous advice. Not taking any, but it really bothered my daughter hearing this. However, I think this is good advice in general as we don't know everybody's entire story. I know mine is very complicated and it would have been much too wordy to give you the entire story. I guess my reasoning for my original post was to just bring this problem to light.


    This is what my d posted on FB:
    Everyone, please stop giving advice. Mary is under doctors instructions. Some of the advice I've read here could kill her. I understand you all have good intentions but stop. You are not physicians and have no idea what medications she is on nor what medical conditions she has.

    This was my response to her post:
    Amy is my daughter and an ICU nurse and is looking out for me which is why she's being so hard, not mean. I love her to death and the fact she cares so much. She's been giving me great advice, and slapping my hand many times today. Actually got my blood retested yesterday so will find out today if I'm out of the woods. Thank you all for your concern. Love you all!

    I will end this topic now and if I have any updates will just start a different post. Thank you all for all the insightful comments and concerns. Wishing you all the best of good health.

    Mary
  • orangegato
    orangegato Posts: 6,572 Member
    @marymickaela it is better to update on this same thread for continuity. Otherwise, people will be confused if they don't know your "story" and history. Starting a new post but updating the same topics is like creating blog entries, but this is a community forum, not a blog. Take good care.