Hemochromatosis

cjpnh

Anyone else here have hemochromatosis?
My ferritin levels were 1887 when I was diagnosed. I had 16 weekly phlebotomies and they went down to 50. Now I'm on maintenance, one phlebotomy every two months.

mrsway

I was diagnosed when I was 31. I was told how rare it was for a female to be diagnosed so young! I have been doing maintenance phlebotomies now only once every three months which is way better than the biweekly ones at the beginning.

concordancia

My mother's has improved since losing weight. Never saw that mentioned anywhere when I was helping her research after diagnosis, though.

MarcA1218

My brother has this. I went to my dr. To see if I had the genetic markers but she didn’t seem too worried about it. I may get a 2nd opinion.