Fighting Lyme disease through diet

joesmichele

I was diagnosed with Lyme disease 3 years ago (May 2014). My physician believes I went undiagnosed and untreated since 2002 due to extremely high inflammation lab results. After undergoing long term antibiotic treatment, (1+) year, with no positive response my physician stopped the antibiotics. My long term prognosis boils down to : because of the long untreated time of infection and lack of response to antibiotics. I have always thought managing my symptoms through diet may be possible and much healthier than antibiotics. I recently read a few medical journal articles about the ketosis diet possibly improving Lyme disease symptoms. I know next to nothing about the diet but hope my fitness pal will help me on this journey. Today is day 1 and here I go. Wish me luck!

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joesmichele

I appreciate the response! This has been quite the journey (when I have the energy). I had seen probably upwards of 20 specialist before finally find my physician who specializes in Lyme. The unfortunate reality is that it was left untreated for so long that I have permanent mitochondrial damage and produce almost no ATP. There is an ongoing fight in the medical community about Lyme and common confections. The only treatment to date that I have found in my research is antibiotics and it’s my fear and my physician’s that long term antibiotics (that I am not responding to) is potentially harmful. I contracted Lyme while in the US Army and this has given me the following perspective:
1. After years of specialists not finding anything I’m thankful for a diagnosis. I was starting to wonder when I went from being an extremely fit, focused and energetic type a person to possibly being a hypochondriac!
2. Having a diagnosis allows for monitoring of the illness and damage.
3. The only known treatment was an epic failure. I took several types of antibiotics to hypothetically find and kill the infection in all its forms and in all types of tissue to no avail so what would it hurt to try to feed my body what it needs while trying to figure out how to starve these little invaders .
4. Lyme is a bacterial infection so I hope to find foods that are antibacterial.
5. Long term, chronic disease causes inflammation (joint pain and muscle pain)I hope to find anti inflammatory foods (hence trying keto).
6. There is another treatment possibility that I have discussed with my physician but that topic is not food related so I figure inappropriate for this venue.

I have found it to be very difficult to find substantive information on this disease. The reason I chose to post such personal information in my introduction was because of my honest hope to network with anyone who may have information, insight and/or personal experience with this issue.

Long story short, any feedback is greatly appreciated!

corinasue1143

I don't have information, but I have a million questions. Starting with, who is your Doctor. Where? It has been suggested to me that I be tested, but I wasn't referred to anyone for tests.

joesmichele

Hi Corinasue.
It is really difficult to find a good physician. Are you near Houston, TX? Just a warning...I had to wait 3 months for an initial appointment.

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corinasue1143

joesmichele wrote: »

Hi Corinasue.
It is really difficult to find a good physician. Are you near Houston, TX? Just a warning...I had to wait 3 months for an initial appointment.

Sorta

joesmichele

I have no problem giving her name and will message you the information. Many of her clients travel to see her from outside the area. I will share an experience I had with her on my first meeting with her that sealed the deal before she even ran my first blood tests. I filled out a lengthy medical history prior to my first appointment. As I wrote in my introduction, I had seen tons of specialists before going to her. In the past I would fill out medical histories and then the doc would come in and say something like....”so what seems to be the problem “