hidradenitis suppurativa

chiaa5988

Hello, I wanted to make this post because I have struggled so much with this conditions and it has made my life a living hell at times and even now I struggle with weight loss because of how painful it is to walk and even take care of myself. This condition has taken a toll on my health in all areas and somedays I feel completely worthless. I always catch myself thinking "why does it have to be this hard. It doesnt have to be this way why is it." And cant help but to get consumed in depression. While others can go and just lose the weight with their will alone I have to worry about when the next flare up will come and how I am going to exercise then, how am I going to keep motivation?

What I am trying to say is that I want us (if anyone else out there has this condition) to work together to succeed. I am tired of feeling alone I am tired of falling down I want to not only build myself but others with this condition. I am tired of living like this and I know you are too. Us who suffer, we all are.

So let us make some type of community especially with a helpful resource like this we can be capable of building a better path together.

So please let me know if you are interested in building something here and how we can work together to bring us strength. It's hard but it doesnt have to be this hard if we work together.

kq1981

OMG! I found someone! I hope youre still around! I have hurley stage 3 so i feel your pain, literally. Ive just been put on humira injections and i havent had a new flair up in 4 months, the old ones are still playing up though. Add me if you'd like to talk more!

jennayyyye

I have this but mine isn't severe, just a minor flare up every few months or so. Mostly when I'm stressed out. I'm so sorry you have to go through that pain, I can't even imagine how painful it is, since my small ones are usually excruciating. If you wanna chat, add me.