Exercise and auto-immune diseases

I always have pain. I always have fatigue. Any others with the same? Tips? Thanks.

Replies

  • monicawking
    monicawking Posts: 1 Member
    janaepp wrote: »
    I always have pain. I always have fatigue. Any others with the same? Tips? Thanks.

  • daringxdreamer
    daringxdreamer Posts: 41 Member
    janaepp wrote: »
    I always have pain. I always have fatigue. Any others with the same? Tips? Thanks.

    Hi janaepp! I was recently diagnosed with fibromyalgia and know the struggle of pain/fatigue taking over your days. I agree with concordancia - it's all about starting slow. For me, it started with pushing myself just to get out of bed or off of the couch. Then grew to taking back some chores around the house. My doctors have suggested that I start a walking regimen and go from there.
  • lleberman8224
    lleberman8224 Posts: 4 Member
    Yeah, two autoimmune diseases here along with si joint and facet joint problems. I'd love advice as well, pain is what got me to this weight and this level of unhealthy. You're not alone!
  • GottaBurnEmAll
    GottaBurnEmAll Posts: 7,722 Member
    Yeah, two autoimmune diseases here along with si joint and facet joint problems. I'd love advice as well, pain is what got me to this weight and this level of unhealthy. You're not alone!

    Your specific SI joint and facet joint issues likely need some intervention with a physical therapist before starting any exercise program, even a gentle, graded one.
  • eucid
    eucid Posts: 1 Member
    edited January 2019
    I have ankylosing spondylitis (spine fusing together) it's not a sever but it also affects heels, thumbs and elbow ligaments. Also two bulging discs. The only time I'm not in pain is when I swim. Whether flat out or gentle, I don't feel pain. I also lift weights and cycle, both hurt a bit at the time, but better for keeping on moving. The worst thing for me is sleeping. Staying still isn't good.
    I'd advise exercising as much as possible.... But gently to begin with AND after speaking with your doctor. Swimming, walking, weights - all have benefits and if done properly shouldn't cause issues.
  • emmylootwo
    emmylootwo Posts: 172 Member
    Just go easy and perhaps try walking? I have inflammatory/autoimmune back pain along with my eye disease. Walking has helped tremendously! (That and diclofenac. Freaking MIRACLE drug)
  • New_Heavens_Earth
    New_Heavens_Earth Posts: 610 Member
    I have fibro and exercise helps immensely. I started slow, built up time and intensity, and followed doctors guidelines- stretch, light to moderate weight training, cardio.

    I listen to my body as well. When it feels tired or my mind says "I just don't want to " I take a rest day and just work on getting my steps in, or do something low intensity.
  • ruqayyahsmum
    ruqayyahsmum Posts: 1,514 Member
    I have several autoimmune disorders
    Been getting worse and worse over the last few years getting back to pretty immobile again
    I begged to see physio (I'm UK based) who after a couple sessions and realising how weak I am sent me to podiatry. Specialist insoles were made as I apparently roll inwards wayyyyy to far which they think is a big contributor to my joint damage (not the whole picture though as the damage to elbows and hands can't be due to my feet)
    The podiatrist has then referred me on to a specialist to look at why my ligaments are so tight

    With everyone working together for me and telling me to go slow and steady with exercise I'm starting to improve In stamina and Pain levels