Diagnosed w/a Pituitary tumor
xSirensSong
Posts: 615 Member
Okee dokee, first, the fun stuff: I'm Meagen (Or you can call me Sirens), 23 from Indiana, & am into video games ~ League of Legends every night & for hours on end on the weekends, ESO, Guild Wars, Skyrim, Minecraft, silly games on Steam, Smite, Dawnstar, yada yada yada.. A goal of mine is to be able to cosplay once I get to my goal weight: so super excited about that!
I have around 75 more pounds to lose in total. I break my goals down into nerdy-licious mini goals in order to break up the large number that stares at me in the face. Every 5% of my body weight lost, I reward myself with something NOT food related. You can check out my profile if you'd like to see how I've got it goin' on. Also, I break down my ticker that way. Once I hit that goal, I'll redo my ticker & add on another 11 or so pounds to lose.
And now the not so fun stuff that brings me to this post: I was diagnosed with PCOS/Insulin Resistance & hypothyroidism last year around July. I didn't really start taking the diagnosis seriously until I was weighing in at 225 pounds & all that I saw was weight gain consistently. I went to my OB/GYN feeling so down, stuck, & like there was no way out. I felt so embarrassed breaking down in front of her, just crying because I didn't know what else to do. She was very comforting & has helped me every step of the way. I started feeling better, lost a little bit of weight, but now, I'm starting to get back to that very emotional place.
About a week ago, I had some more blood tests done because nothing is happening (7 pounds lost since last November). My levels in some areas came back very high & now I'll be going in to confirm the presence of a tumor on my Pituitary Gland in my brain. My doctor is 99% certain, the tests will just confirm this. I'm a bit scared at this point because I am so young & am having to deal with this, but on the other hand, this could be the 'answer' to everything that is going on with me.
Support is much needed & I'd love to meet new people along the way, anyway. Any takers or tips or pointers for someone going through this?
~Sirens :flowerforyou:
I have around 75 more pounds to lose in total. I break my goals down into nerdy-licious mini goals in order to break up the large number that stares at me in the face. Every 5% of my body weight lost, I reward myself with something NOT food related. You can check out my profile if you'd like to see how I've got it goin' on. Also, I break down my ticker that way. Once I hit that goal, I'll redo my ticker & add on another 11 or so pounds to lose.
And now the not so fun stuff that brings me to this post: I was diagnosed with PCOS/Insulin Resistance & hypothyroidism last year around July. I didn't really start taking the diagnosis seriously until I was weighing in at 225 pounds & all that I saw was weight gain consistently. I went to my OB/GYN feeling so down, stuck, & like there was no way out. I felt so embarrassed breaking down in front of her, just crying because I didn't know what else to do. She was very comforting & has helped me every step of the way. I started feeling better, lost a little bit of weight, but now, I'm starting to get back to that very emotional place.
About a week ago, I had some more blood tests done because nothing is happening (7 pounds lost since last November). My levels in some areas came back very high & now I'll be going in to confirm the presence of a tumor on my Pituitary Gland in my brain. My doctor is 99% certain, the tests will just confirm this. I'm a bit scared at this point because I am so young & am having to deal with this, but on the other hand, this could be the 'answer' to everything that is going on with me.
Support is much needed & I'd love to meet new people along the way, anyway. Any takers or tips or pointers for someone going through this?
~Sirens :flowerforyou:
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Replies
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I really hope its better news for you and you can get some answers. I can't imagine how you must be feeling right now! keep smiling!0
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Wow, you're going through some tough times. I don't have much to offer, except to say that I hope you get well soon.0
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A good friend of mine has gone through this, you can message me if you would like. I am sending prayers your way. Please keep us posted.0
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Hi there! My story is a bit different but I just wanted to let you know that I have a pituitary adenoma (non-cancerous tumor). I was first diagnosed in 2009 and since then I have been closely followed by an endocrinologist and most recently added some eye doctors and a neurosurgeon to my "team".
According to my first endocrinologist, pituitary tumors are pretty common, especially in women. Most are not cancerous. As for my health care, I take a pill twice a week that re-adjusts my hormones that are wonky from the tumor. I have to have a yearly MRI and follow up with the endocrinologist and have routine blood tests. I see the eye doc yearly to make sure the tumor doesn't mess with the nerves in my brain that connect to the eye and I just learned last week that I don't have to see the neurosurgeon again unless something changes (yay for less doctors!)
Feel free to friend me and ask any questions that pop into your head.
Good luck with everything!
-Hannah0 -
I had a friend go through this. She had it removed and that was that. Be strong and take heart! FR sent. I'll try to find her youtubes she did. :happy:0
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