WOMEN ONLY RESPOND PLEASE

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  • Amy62575
    Amy62575 Posts: 422 Member
    Is it possible I have endometriosis or whatever the spelling is?

    I would definitely get a second opinion or third or fourth...I have endometriosis and ended up having to have my uterus removed at age 32 because of pain, heavy and irregular periods. Inevitably I will have to get a full hysterectomy at some point but they only did a partial due to my age. It has helped tremendously (no periods :bigsmile: ) but I still have pain and things like that even without them.

    The only way to truly diagnosis it is for a doctor to get up in you (for lack of a better phrase). I was diagnosed when I had a laparoscopy.
  • Janeta58
    Janeta58 Posts: 59 Member
    Hi Snowbaby,
    I am postmenopausal but i always had heavy and long periods. I was diagnosed with a fairly common bleeding disorder: Type 1 von Willebrand's Disease ... heavy menstrual periods are one of the main symptoms for females. (Males can have this disorder too.)
    I couldn't take the BCP because it made my migraines worse; so I took a medication that decreased the bleeding. It worked really well.
    If you are using so much blood that you are passing out, there there IS a problem ... don't accept "just heavy periods." You might have an issue that has a very simple solution.
    Cheers!
  • atsteele
    atsteele Posts: 1,358 Member
    I saw three different doctors about this problem and they all had the same opinion, then they said, "we are a CATHOLIC hospital" etc. I don't feel like switching birth control is the answer. Is it possible I have endometriosis or whatever the spelling is?

    I understand but that doesn't mean you dont have issues that need to be addressed. And they can be addressed via methods that do not conflict with your morality. Didn't any of your practioners mention NaPro technology? NaPro technology isn't just for treating infertility but addressing the root of the women's problem... not just masking it with BC.

    Agreed. If you have to travel to another town for PROPER MEDICAL CARE, it's worth it. YOU KNOW YOUR BODY. You know this isn't right.

    I had 3 doctors tell me that a pain and lump in my lower abdomen was simply scar tissue from my c-section. Told me it was tiny, the size of a pea. I told them it was golf ball sized and it hurt like Hades and it needed to come out.

    After 3 years of pain, I would become immobile for days after doing a 30 minute easy elliptical workout. (only tried that twice!) I would experience shooting pains that made me double over, as I sat motionless in my desk chair.

    When my doc finally performed the surgery, he found it was a golf ball sized mass of endometriosis and suddenly realized my pain was not in my head.

    (RANT: sometimes male doctors don't BEGIN to understand female issues. Like being a mechanic without having ever driven a car!)

    Sorry you had to go through all of this for some "professional" to take your pain seriously!! I've had similar experiences with doctors in the past over my issues or my children's issues. Anymore, I dont even think twice about dropping a doctor who I am not comfortable with for someone else who is better. Hope you are healed and doing much better now!
  • SaraTonin
    SaraTonin Posts: 551 Member
    My Mom had fibroid tumors the size of a seven month baby. Insurance wouldn't cover her hysterectomy (it was a bullsh!t pre-existing condition) so she waited it out and had five blood transfusions until it was life-threatening - literally!

    She was at the hospital during transfusion and started losing more blood than they could replace. Emergency hysterectomy. They were the two largest fibroids the doctor had ever seen (literally two grapefruits).

    Do try a few more doctors, and take a good iron supplement in the meantime. Good luck!
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