PCOS

Jeanine_Colavecchi
Jeanine_Colavecchi Posts: 185 Member
edited September 29 in Health and Weight Loss
I was just diagnosed with PCOS and just wanted to add some friends that are familiar with it :)

After freaking out a ton about my blood work...I realized from talking to some other people with PCOS, that they had the same results lol

So add me if you want ! :)

Also, any tips on diet? I have only been eating fish, chicken, veggies. I heard dairy and carbs are bad? Is all dairy bad?

Replies

  • whitehandlady
    whitehandlady Posts: 459 Member
    add me if you like...i've had it since i was around 17 years old and i'm 33. i feel for you.
  • Kelly_Wilson1990
    Kelly_Wilson1990 Posts: 3,245 Member
    My daughter has it. We were just discussing it this evening.
  • red_hatorade
    red_hatorade Posts: 166
    I have it too. Was diagnosed in 2007. It can be so scary in the beginning, but it is something that can be "cured" by weight loss in many cases. I ma going to add you!
  • DawnWendalynn1973
    DawnWendalynn1973 Posts: 97 Member
    I was diagnosed when I was 25. It has so many symptoms and things that cause your body to fight against you.

    I hope that weight loss isn't one of the things.

    Im 38 now, one of my symptoms was issues getting pregnant. I have no children and mid may had to have a hysterectomy because they found cancer (I am okay with it all...had already come to terms about no kids, thankfully).

    This condition is not one I would want to see anyone have. There is just so much going on and what you have to watch....and what it makes you more susceptible as you age.

    There is an amazing site for people with PCOS called Soul Cysters, if you google it you will find it. Awesome information and message boards to help someone newly diagnosed.
  • cobarlo14
    cobarlo14 Posts: 582 Member
    Add me! PCOS for like ever.....I also have insulin resistance

    Protein good!!!
    Carbs not so good!

    You can do it!!!!
  • Jeanine_Colavecchi
    Jeanine_Colavecchi Posts: 185 Member
    Yea I'm still a little freaked out LOL Just had some tests on my insulin levels and the whole inflammation level being at 10.....is what scared me the most
  • DrPooh
    DrPooh Posts: 21
    I haven't been diagnosed with PCOS yet but I have all the symptoms from what I read & will bring it up with my doctor because I have been married for 7 yrs now & still no baby. Drs say everything is fine but I need to lose weight so we shall see before I try fertility drugs. The more a read about PCOS I just have a feeling that is what is causing my problem. Please feel free to add me...I need all the support I can get.
  • HungryMom
    HungryMom Posts: 280
    I am a baaaaad PCOSer. When I was diagnosed I bought the books and read on-line about insulin resistance diets, but only stuck with it for about 10 days. It was too much of a struggle for me that I knew it couldn't become a life-long change. I find by limiting my calories and making healthier food choices in general my carbs are naturally lower. I don't remember anything about diary, but like I said I am bad. :happy: My OB/GYN did put me on Spironolactone and Metformin.
  • LeonaB17
    LeonaB17 Posts: 304
    A low glycemic diet (not to be confused with low carb diet although they do have some commonalites) is the generally recommended approach for weight loss with PCOS. I've never heard or read anything about dairy being bad. If anything dairy is fine b/c it is low glycemic. You just have to watch out for added sugars.
    Anyway - my best advice -Talk to your doctor about it - google it - read books on it. Knowlege is power :)
  • prsop98
    prsop98 Posts: 23 Member
    I was diagnosed several years ago after trying to get pregnant (obviously without success). Trying to lose weight has been a huge challenge, but this site has been so great for me.
  • DawnWendalynn1973
    DawnWendalynn1973 Posts: 97 Member
    I have it too. Was diagnosed in 2007. It can be so scary in the beginning, but it is something that can be "cured" by weight loss in many cases. I ma going to add you!

    I just have to post on this one, PCOS has no cure, and though things you do like weight loss can make symptoms less or easier to handle, you will always have it. So, you have to always be diligent with your health.

    I wish they would hurry up and find something to cure it.
  • Jeanine_Colavecchi
    Jeanine_Colavecchi Posts: 185 Member
    Thanks, this realy helped!
  • MissMaryMac33
    MissMaryMac33 Posts: 1,433 Member
    Another Soul Cyster here.... had it for over 20 years but of course they had no idea what it was that long ago....
    Just hope you don't have to become best friends with your laser hair removal artist! Personally I think that is the worst symptom you get -- well that and high infertility. I was never able to have kids..which used to feel like a bad thing, but not anymore :)

    It's not nearly as scary as you think... I eat plenty of dairy, but carbs are tricky. Ditch the bad carbs, eat the good ones -- whole grain, quinoa etc. Have to really watch those because this makes you very insulin resistant -- and if you get unlucky enough to also develop type 2 diabetes -- then you have a double whammy and its nearly impossible to lose weight to fix either one.

    I modified my goals here so when I track my food, my carbs are lower than what they calculate and my protein is much much higher. Protein shakes and lots of lean meat, seafood etc. Seems to work :) Lots of good reading out there...dont be freaked out. It's really something you can live with pretty easily.
  • DawnWendalynn1973
    DawnWendalynn1973 Posts: 97 Member
    Another Soul Cyster here.... had it for over 20 years but of course they had no idea what it was that long ago....
    Just hope you don't have to become best friends with your laser hair removal artist! Personally I think that is the worst symptom you get -- well that and high infertility. I was never able to have kids..which used to feel like a bad thing, but not anymore :)

    It's not nearly as scary as you think... I eat plenty of dairy, but carbs are tricky. Ditch the bad carbs, eat the good ones -- whole grain, quinoa etc. Have to really watch those because this makes you very insulin resistant -- and if you get unlucky enough to also develop type 2 diabetes -- then you have a double whammy and its nearly impossible to lose weight to fix either one.

    I modified my goals here so when I track my food, my carbs are lower than what they calculate and my protein is much much higher. Protein shakes and lots of lean meat, seafood etc. Seems to work :) Lots of good reading out there...dont be freaked out. It's really something you can live with pretty easily.

    I totally agree, both with your last sentence and the one about kids...LOL
  • sauerkrautpolka
    sauerkrautpolka Posts: 266 Member
    I also have PCOS. It's amazing how many women I've found that suffer from it as well. 10 years ago, I'd never heard of it, even though I've been suffering from the PCOS symptoms since my teens, I just thought that was something everyone went through. It wasn't until I started doing some research on my period irregularity, abnormal hair growth, weight gain and it being nearly impossible to lose and other pesky problems that I learned of PCOS. I brought it up with doctors and finally saw an endocrinologist a few years ago, who officially diagnosed me with it. I've found that eating low-carb (on top of medications) helps me the most with losing weight and keeping my PCOS at bay. I'll gladly be your friend (and any others that'd like to be friends).
  • kaleigh787
    kaleigh787 Posts: 10 Member
    I'd be happy to be a support as well. I was diagnosed when I was 11... I'll be 24 in 2 weeks.

    Kaleigh
  • joseefus
    joseefus Posts: 1
    What is PCOS? It doesn't sound like a very good thing. I feel for all of you who suffer from it--by the things I'm reading here.
  • prsop98
    prsop98 Posts: 23 Member
    It's an endocrine disorder. Makes it hard to lose weight, get pregnant, get rid of acne...among other symptoms. It pretty much sucks.
  • Halld9
    Halld9 Posts: 6 Member
    I have had PCOS for more years than I care to remember. It is a very frustrating disease that few understand or able to relate to unless they have it. For those of you who hope to have children let me offer words of encouragement. I have two beautiful girls, a sixteen and twelve year old. Both daughters were conceived without any fertility treatment. At that time we did not know of my issues. However, we went back and forth on having a child so I was on and off birth control, a method that is sometimes used in the early stages of PCOS to conceive. We knew nothing about my condition and remained in ignorant bliss. God had a plan and we were blessed with our first child. It was not until we decide to have another child that we became aware of my condition. In July of 1997 I stopped having periods after seeking and trying many things my gyn/ob sent me to a fertility specialist. After many tests she informed me of my options. The expense was overwhelming and the chances slim to none. I told her that I was not willing to risk or entire future on a maybe. During this whole time my family and I prayed for a child. I felt like Hannah in the Bible. In the Fall of 1998 I found out I was expecting our second child. The pregnancy was difficult and I knew I could miscarry at anytime. God continued to be good to us and blessed us with a second beautiful baby girl in March of 1999. I thank God everyday for the two beautiful gifts he has given us. My advice to those who have PCOS is to eat right with low carbs and sugars. When you eat carbs pair them with protein. As hard as it is keep your weight under control. Five pounds will throw me in a downward spiral where I look at food and it causes me to gain, but most of all trust in God to meet your every need.
  • sarah829522
    sarah829522 Posts: 139
    I was also just diagnosed with PCOS. It is frustrating because I have been at this weight loss thing since October and haven't been able to lose more than 5-7 lbs. It is good to finally have some answers. I'm new to this site and would love to be able to get support from all of you who also have PCOS.
  • I just got told i have it about a year ago. all the signs showed up at once like over night :( never had a problem losing weight until this year. 1 year only 15 lbs! I'm here for ya, we all are!
  • Add me to the list. I was recently diagnosed after 6 years trying to conceive. I am still learning, but feel free to add me if you like.
  • pitarms
    pitarms Posts: 14
    I TO WAS DX WITH PCOS WHEN I WAS 21. TOOK ME 3 YRS TO GET PREGNANT BUT WE DID IT!! AND LOSING WEIGHT IS A BIG FREAKING CHALLENGE!!! IT WAS HARD ON ME AT FIRST BUT I GOT USE TO IT. I HAVE TO BE ON BIRTH CONTROL FOR ME TO EVEN BE REGULAR. IM GONNA ADD YOU.
  • mgmlap
    mgmlap Posts: 1,377 Member
    I have been dealing with PCOS for about 15 yrs...finally this year in February...I started taking Metformin...1000 mg which has helped. I have also been diagnosed with hypothyroid..so 45 mg of Armour for that.

    I have gone through so many means to get pregnant..everything but invitro..cause thats just not financially possible. I have come to terms with not having bio children..but I do have 2 wonderful daughters who are the joy of my life..There are other ways besides bio to have children.

    My doctor has me on a low glycemic diet...and I have lost almost 20 pounds since April. It is possible..What I mostly watch is my sugars and carbs..since I am insulin resistant..There are ways to control it..just ask as much as you can when you see your doc next
  • MissMaryMac33
    MissMaryMac33 Posts: 1,433 Member
    Polycystic Ovarian Syndrome -- if you want to google for more info. It's extremely common but not always diagnosed correctly because the symptoms are easily mistaken for other things.

    What is PCOS? It doesn't sound like a very good thing. I feel for all of you who suffer from it--by the things I'm reading here.
  • kylee_marie
    kylee_marie Posts: 299 Member
    I was diagnosed not that long ago with PCOS after i had an ectopic pregnancy. My doc. *strongly* encouraged me to lost at least 30 lbs... so here i am!
  • Another PCOS-er here, feel free to add me. I'm very very lucky in that I've managed to have 2 wonderful children, but I'm unlucky in that some of my symptoms don't improve with weight loss.:sad:

    Louise x
  • jenniebny
    jenniebny Posts: 1
    I was dx with PCOS at age 16 & am quite a bit older than that now! Had twins after fertility treatments & then a surprise pregnancy 2 & a half years later. Gained lots of weight during the pregnancies & lost 50 pounds last year doing the Eat to Live plan by Dr. Joel Fuhrman. It's a very strict way to eat though so sadly I have fallen off the wagon. Trying to get back on track & looking for support!
  • cobarlo14
    cobarlo14 Posts: 582 Member
    OK - Saw weight loss Doctor today!!! For those with PCOS - He said that my daily diaries are great and the only changes he would make were two: 1> More protein in the morning!!! 2> Change my calories from 1700 to 1800 per day = SCORE!!! What!! Up my calories??? Ummm OK!
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