Hypothyroidism

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I am very scared!! I have been doing really well with my weight loss. I have lost 50 lbs since my son was born 4 and half months ago. Now some of that loss was pregnancy and baby related but I still have to say that is pretty good considering I only gained 23 lbs during that pregnancy. However since my son was born and I've been exercising my blood work has shown my thyroid medicine needs to be decreased. Now normally I would say that is good but this is the second time they have reduced it and now I don't want to get out of bed in the morning and I'm falling asleep on the couch. On the higher dose I felt like doing things including exercise. I am still pushing through on the exercise though I am scared that decreasing my dose is going to mess with my metabolism and it will be harder for me to lose it not to mention I don't have the stamina to keep up with my kids. Any one else ever have this problem? I am considering going to see a specialist instead of having my primary dr monitor it. I don't want to go back to feeling like I'm fatigued all the time. I hadn't felt that good in a long time. I thought it was because of the exercise but since they have decreased my dose and I'm still exercising I think my body requires the higher dosage. Any thoughts would be appreicated. BTW.... I have been on medication for 10 years now.

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  • MaraDiaz
    MaraDiaz Posts: 4,604 Member
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    I am very scared!! I have been doing really well with my weight loss. I have lost 50 lbs since my son was born 4 and half months ago. Now some of that loss was pregnancy and baby related but I still have to say that is pretty good considering I only gained 23 lbs during that pregnancy. However since my son was born and I've been exercising my blood work has shown my thyroid medicine needs to be decreased. Now normally I would say that is good but this is the second time they have reduced it and now I don't want to get out of bed in the morning and I'm falling asleep on the couch. On the higher dose I felt like doing things including exercise. I am still pushing through on the exercise though I am scared that decreasing my dose is going to mess with my metabolism and it will be harder for me to lose it not to mention I don't have the stamina to keep up with my kids. Any one else ever have this problem? I am considering going to see a specialist instead of having my primary dr monitor it. I don't want to go back to feeling like I'm fatigued all the time. I hadn't felt that good in a long time. I thought it was because of the exercise but since they have decreased my dose and I'm still exercising I think my body requires the higher dosage. Any thoughts would be appreicated. BTW.... I have been on medication for 10 years now.

    I hope you've explained this to your doctor. Make your doctor listen to you and yeah, a specialist also sounds like a good idea, especially if your doctor gets stubborn and unreasonable.
  • Steffi330
    Steffi330 Posts: 110 Member
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    I am very scared!! I have been doing really well with my weight loss. I have lost 50 lbs since my son was born 4 and half months ago. Now some of that loss was pregnancy and baby related but I still have to say that is pretty good considering I only gained 23 lbs during that pregnancy. However since my son was born and I've been exercising my blood work has shown my thyroid medicine needs to be decreased. Now normally I would say that is good but this is the second time they have reduced it and now I don't want to get out of bed in the morning and I'm falling asleep on the couch. On the higher dose I felt like doing things including exercise. I am still pushing through on the exercise though I am scared that decreasing my dose is going to mess with my metabolism and it will be harder for me to lose it not to mention I don't have the stamina to keep up with my kids. Any one else ever have this problem? I am considering going to see a specialist instead of having my primary dr monitor it. I don't want to go back to feeling like I'm fatigued all the time. I hadn't felt that good in a long time. I thought it was because of the exercise but since they have decreased my dose and I'm still exercising I think my body requires the higher dosage. Any thoughts would be appreicated. BTW.... I have been on medication for 10 years now.

    I hope you've explained this to your doctor. Make your doctor listen to you and yeah, a specialist also sounds like a good idea, especially if your doctor gets stubborn and unreasonable.

    Thanks for the input! I'm really hoping she will listen but a primary dr is just that. They treat the symptoms not necesarily the patient.
  • cardbucfan
    cardbucfan Posts: 10,427 Member
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    I second the specialist suggestion.
  • flowerpower263
    flowerpower263 Posts: 28 Member
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    hi steff, i also have had my synthroid decreased by my doctor last year!! i freaked out!! i had the biggest argument with him but he wouldn't budge!! after a week of adjustment i did settle in, so just wanted you to know it will be ok. your body just has to re-adjust to the lower dose. good luck and i'm pullin' for ya!!
  • DenverKos
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    Find a new doctor, one that specializes in hypothyroidism. That doesn't mean they have to be a "specialist" or endocrinologist. My endo wasn't very ...."understanding" or supportive. Fortunately, I have a great primary care physician who always asks me "How do you FEEL?" and we work together to keep me feeling as well as I possibly can.
    I know what you're going through, and I always freak out when I go in for a physical afraid that my dosage will be reduced. But we've worked out a great program for me.
    I must ask - are you "just" hypothyroid, or do you have Hashimoto's, autoimmune thyroiditis (I have it)? When your doctor tests your thyroid levels, do they only test TSH or are they testing t3 and t4, too? Just because your TSH is within range that DOESN'T mean that your thyroid is functioning properly. I'm on combination therapy with Synthroid and Armour because my body doesn't convert t4 to t3 in appropriate amounts (My TSH will still read "normal" regardless of this). For the record, my endo was against combination therapy - thankfully, my primary listens to me and agreed to give it a shot and that's what works for me.
    I was on meds for 7 years before a doctor even suggested that I might have an autoimmune disease, and it was discovered when my TSH shot through the roof even though I was on medication. I had never even heard of it before then, and been through 3 other doctors over the course of that 7 years just because of moves and what not.
    Good luck to you.
  • Steffi330
    Steffi330 Posts: 110 Member
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    Find a new doctor, one that specializes in hypothyroidism. That doesn't mean they have to be a "specialist" or endocrinologist. My endo wasn't very ...."understanding" or supportive. Fortunately, I have a great primary care physician who always asks me "How do you FEEL?" and we work together to keep me feeling as well as I possibly can.
    I know what you're going through, and I always freak out when I go in for a physical afraid that my dosage will be reduced. But we've worked out a great program for me.
    I must ask - are you "just" hypothyroid, or do you have Hashimoto's, autoimmune thyroiditis (I have it)? When your doctor tests your thyroid levels, do they only test TSH or are they testing t3 and t4, too? Just because your TSH is within range that DOESN'T mean that your thyroid is functioning properly. I'm on combination therapy with Synthroid and Armour because my body doesn't convert t4 to t3 in appropriate amounts (My TSH will still read "normal" regardless of this). For the record, my endo was against combination therapy - thankfully, my primary listens to me and agreed to give it a shot and that's what works for me.
    I was on meds for 7 years before a doctor even suggested that I might have an autoimmune disease, and it was discovered when my TSH shot through the roof even though I was on medication. I had never even heard of it before then, and been through 3 other doctors over the course of that 7 years just because of moves and what not.
    Good luck to you.

    Thanks for the input! I know at my regular physical they usually test T3 and T4 but not on a routine blood draw. I'm going to monitor how I feel! Thanks again. Its nice to know I'm not the only one.
  • Steffi330
    Steffi330 Posts: 110 Member
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    hi steff, i also have had my synthroid decreased by my doctor last year!! i freaked out!! i had the biggest argument with him but he wouldn't budge!! after a week of adjustment i did settle in, so just wanted you to know it will be ok. your body just has to re-adjust to the lower dose. good luck and i'm pullin' for ya!!

    Hi Flower,

    I hope your right but this is the second decrease I have had in 2 months and I don't think my body likes it at all. Like I said I'm starting to feel sluggish! I was feeling the best I ever had before they started decreasing it!
  • flowerpower263
    flowerpower263 Posts: 28 Member
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    what is your dosage? i went from .150 to .125 and now i am taking .100 so i also have had 2 dose changes. give it about a week and if you still feel bad tell your doctor. if you are not satisfied find a specialist.
  • Steffi330
    Steffi330 Posts: 110 Member
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    what is your dosage? i went from .150 to .125 and now i am taking .100 so i also have had 2 dose changes. give it about a week and if you still feel bad tell your doctor. if you are not satisfied find a specialist.

    I was at .175 reduced to .150 and now at .125. I got that prescription filled on 12/22 so tomorrow will be a week. :-(
  • Juliane_
    Juliane_ Posts: 373 Member
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    FInd a good doctor who will treat you more by symptoms than by labs. I recommend reading up on "stop the thyroid madness".

    If you are feeling bad after your dosage decrease it means you need your dosage back up. I can always tell when I need a dosage increase. I start feeling horrible. I'm on Armour thyroid med.