Losing weight with PCOS

agentscully514

This is not really true. PCOS doesn't cause insulin resistance; insulin resistance causes PCOS. Not everyone with insulin resistance/PCOS become overweight. You may have been lucky for those years.

Sort of. PCOS is not actually a disease, but rather a constellation of symptoms, one of which is insulin resistance. EDITED TO ADD: People can have varying numbers of those symptoms. Few have all.

The terms I've read are "many", "most", or "the majority" of women with PCOS are insulin resistant. I've even read it as a percentage ("up to 80%"). Let's just say it would be news to me and those other sources that all PCOS women are insulin resistant.

Myself, I only ever had inovulatory dysfunction, which disappeared when I started gaining weight. At this time, I have zero PCOS symptoms, save anyone who knows I've lost weight in the past few months, thanks to diet, exercise, and cinnamon improving my fasting glucose levels. I have had ample boloodwork over the years, with no evidence of anything abnormal. To suggest that I was insulin resistant for 25 years at 97lbs & 5'4", and just lucky I didn't gain weight or could lose weight whenever I wanted, is curious to me. Can you explain how that would be possible if someone was truly insulin resistant?

Since I suddenly, and rapidly, began gaining weight about 5 years ago, I thinks it's fair to say "something" changed. And, to date, the only evidence is better fasting glucose levels since taking cinnamon. All signs point to acquired insulin resistance.

I suppose you might argue I had barely detectable insulin resistance all my life, and it simply worsened about 5 years ago, to the point of causing weight gain (and causing my periods to become regular?). Is that kind of what you were getting at?

Thanks for your thoughtful response. Let me back up a bit.

I was diagnosed back in the 90s by Dr. Charles Glueck, who was one of the pioneers in PCOS research. he was one of the very first to make the connection between PCOS and insulin. He hadn't even been looking for it -- he was studying insulin's effect on cholesterol, and some of his patients with PCOS happened to improve their other symptoms.

Dr. Glueck explained to me at the time that insulin resistance was THE root cause of PCOS. I just poked around on the web, after reading your post, and you're right, most sources don't use such certain language. It's possible Dr. Glueck had a bit of a bias in the matter. In any case, whether or not insulin resistance is THE root cause, it is certainly A root cause. This is demonstrated because controlling insulin helps resolve the other symptoms in so many women. It's not just another symptom. It influences all of the others.

Your blood work is definitely good evidence that you didn't have insulin resistance before.

I guess at this point, all we can say is that the ultimate cause is not fully understood, and there may be multiple causes.

anasf139

Hey! Loads of studies and people suggest differen things. But I have found that what works best for me is somehing that fits into my life! I have given up most carbs except for brown bread and weetabix which i have a small portion of one or the other. That's worked best for me. Give stuff ago and find a system that works for you.

jenrod1118

bump - i'm getting ready to leave the office and really want to reply later

MissMaryMac33

I've had PCOS for many years and if you have symptoms (hair growth especially) there really is nothing that will make them go away. There is no miracle treatment or cure -- there are just a bunch of things known to improve your situation.

Before my weight loss, I was also diabetic -- do double whammy insulin resistance, not fun.
Cinnamon did nothing for me. I actually had an ablation out=patient surgery that finally fixed my insane periods by making them stop. Not suggested if you're planning to have children. (I couldn't - infertility is another fun PCOS symptom)

The only thing that really helps is making a life long decision to eat lower carb, higher protein, exercise, exercise, exercise, get plenty of sleep -- and get laser hair removal. (This is not permament either with PCOS but it does help make the hair growth thinner)

You do not need to go drastic low/no carb extreme... but the MFP defaults are much too high. I changed mine to 40% protein, 30% carb, 30% fat and it works for me.

Wait until you also get to deal with PCOS and peri-menopause Better than dealing with diabetes but it sure makes weight loss hard.

ShalisaClam

I suspect I have PCOS, but my dr. seems hesitant to test me for it. I am having no problem losing weight, but do have some of the other symptoms (i.e. heavy periods, extreme water retention, a LOT of facial hair). What is the process for the testing?

agentscully514

I suspect I have PCOS, but my dr. seems hesitant to test me for it. I am having no problem losing weight, but do have some of the other symptoms (i.e. heavy periods, extreme water retention, a LOT of facial hair). What is the process for the testing?

Your doctor may be hesistant to test if you are not *missing* periods. That's one of the requirements for a PCOS diagnosis.

The other requirement is elevated androgens in the blood (testosterone). This is a simple blood test.

Some doctors like to do an ultrasound to check for ovarian cysts. Other doctors do not feel this is necessary.

Are you seeing an OB/GYN or an endocrinologist? I strongly recommend an endocrinologist. He/she will know what to look for, and they will also be able to check for other conditions that might be causing your symptoms.

best of luck!

sarammorgan

I'd like to encourage everyone with PCOS to join our MFP group. It is a great group of people who are very knowledgeable and helpful.

The group is here: http://laist.com/2009/03/10/photos_of_barbies--yes_the_doll--ne.php#photo-1

I don't think this link it right. I got a website on Barbies

agentscully514

Aw crap. it won't let me edit the other post.

Once again, the CORRECT link for the PCOS group is:
http://www.myfitnesspal.com/forums/show/170-pcos-cysters-losing-together

privatetime

Thanks for your thoughtful response. Let me back up a bit.

I was diagnosed back in the 90s by Dr. Charles Glueck, who was one of the pioneers in PCOS research. he was one of the very first to make the connection between PCOS and insulin. He hadn't even been looking for it -- he was studying insulin's effect on cholesterol, and some of his patients with PCOS happened to improve their other symptoms.

Dr. Glueck explained to me at the time that insulin resistance was THE root cause of PCOS. I just poked around on the web, after reading your post, and you're right, most sources don't use such certain language. It's possible Dr. Glueck had a bit of a bias in the matter. In any case, whether or not insulin resistance is THE root cause, it is certainly A root cause. This is demonstrated because controlling insulin helps resolve the other symptoms in so many women. It's not just another symptom. It influences all of the others.

Your blood work is definitely good evidence that you didn't have insulin resistance before.

I guess at this point, all we can say is that the ultimate cause is not fully understood, and there may be multiple causes.

Thank you! Very informative!

Did you read about the research showing there may be a link between the gene that causes premature balding in men, and their daughters' PCOS? I came across so many interesting bits of trivia during my research, including how cinnamon was discovered to improve fasting glucose levels.

I find it all fascinating but, at the same time, as I move closer to menopause and have seemingly cracked the sudden weight gain nut (fingers crossed that it continues), i'm just glad I'm getting back to normal. (Thank you, cinnamon.) If only I could go back to the inovulatory dysfunction.... I suppose there's something to be said for predictability, I guess. ...Every 28 days.

mnbramos

I don't know if I'm being a hypochondriac but I have being reading up more on PCOS and think that I could possibly have this. I decided to go off of my birth control the other year because I wanted my body to adjust normally by the time I was married so I could start thinking about having kids. Well, after almost 6 months I got nothing! My OBGYN put me back on and my period started again. I, once again, decided to try and go off of them to see what would happen and I haven't gotten my period in almost 3 months.

I'm not sure if I should ask for a lower dose and see if it works? I'm scared to "wait it out" because I have read that the uterine lining can become thicker the longer you go without a period, which could possibly affect fertility in the long run.

I had blood tests (at least 2-3) this past summer, along with a pelvic ultrasound (not fun), and everything seemed normal to them with the exception that my brain wasn't telling my ovaries to release as much estrogen as they should be. I have also had trouble losing weight when on birth control.

I was thinking to go back to the OBGYN and get more blood work and ask about a lower dosage, or more natural ways to try and get my period back on my own other than pills.

Any advice? I'm at a loss of what to do...

agentscully514

Did you read about the research showing there may be a link between the gene that causes premature balding in men, and their daughters' PCOS? I came across so many interesting bits of trivia during my research, including how cinnamon was discovered to improve fasting glucose levels.

I find it all fascinating but, at the same time, as I move closer to menopause and have seemingly cracked the sudden weight gain nut (fingers crossed that it continues), i'm just glad I'm getting back to normal. (Thank you, cinnamon.) If only I could go back to the inovulatory dysfunction.... I suppose there's something to be said for predictability, I guess. ...Every 28 days.

I did not know about the balding connection! However, it is *definitely* not true in my case. My dad and all of the men on his side have a full head of hair.

I really want to try the cinnamon. Very helpful! I have stalled in my weight loss as well.

As far as the other symptoms, I have been taking metformin for about 9 years. It completely fixed my menstrual cycle within a month, and I have never missed a period since. It also cleared up my acne, and over time, my body hair has diminished greatly. I still have the facial hair, unfortunately, but I did many hours of electrolysis to address that. I can't do laser hair removal at *all* because it does not work on red hair.

peacemongernc

Your doctor may be hesistant to test if you are not *missing* periods. That's one of the requirements for a PCOS diagnosis.

The other requirement is elevated androgens in the blood (testosterone). This is a simple blood test.

Some doctors like to do an ultrasound to check for ovarian cysts. Other doctors do not feel this is necessary.

This always makes me feel weird when I read it, and when I claim to have PCOS. My doctor diagnosed me with it after years of going back and forth because I have so many of the symptoms, but I don't have the "most important" ones. My periods are not all the irregular, and until I was in my 20s, they were so regular I could have told you a year in advance when my period was going to start. Also, I got pregnant without intervention 3 times. The first time we had been trying for over a year, but after that I didn't have trouble. I suspect that the difference between the first pregnancy and the next two is that I was breastfeeding both the 2nd and 3rd times. Breastfeeding helps regulate glucose and insulin. Many of my symptoms improved while I was breastfeeding. Of course I was sort of lucky just to be able to GET pregnant the first time, and then to be able to successfully breastfeed. I have insulin resistance, facial hair, weight issues that go back to my childhood. I thought for years I didn't have PCOS because I wasn't infertile and my periods aren't as irregular as most women's with PCOS. But I think I have every single other symptom I've ever read!

I've wondered if I actually have something a little different than PCOS because of this. However, so far everything that works for women with PCOS works for me, so I just go with it and don't worry too much.

So anyway, my point is, and I DO have one LOL, is that even if you don't have a diagnosis and if you don't meet all the criteria, IF the treatment makes a positive difference, just go with it. Make the dietary changes, take the supplements, exercise, and avoid sugar, and reap the benefits.

agentscully514

mstengel - if your blood work and ultrasound were normal, that suggests you don't have PCOS. But it's worth talking to your doctor about it. You should talk to your doctor regardless. It's possible to "reset" the menstrual cycle with a short term dose of hormones. I did this many times before I took metformin, and I had periods that went for weeks at a time. A high dose of progesterone stopped my period and reset all of the other hormones. Maybe a similar thing is possible in your case.

good luck!

privatetime

You do not need to go drastic low/no carb extreme... but the MFP defaults are much too high. I changed mine to 40% protein, 30% carb, 30% fat and it works for me.

Cinnamon worked like magic for me but, coincidentally, someone I respect suggested I change my diet and aim for 20-25% protein, 30-35% fat, and 40-45% carb's.

I am new to MFP and only recently figured out how to adjust my dietary goals. When I tried to adjust the fat/carb/protein ratio, the closest I could get to the amounts recommended for me was what you just described, since the program doesn't seem to permit truly manual input.

I've only been with MFP for a week, but have been consistently losing around 2-2.5lbs/week for the past couple of months (since literally the day I started taking 3g of cinnamon per day). Since I joined MFP, I've been gradually optimizing my fat/carb/protein ratio. Eight days in and I've lost 4lbs so far...almost double the norm. I know that can't...probably shouldn't...last. But I feel like it might be partly due to getting a bit more protein in me, while reducing carb's a bit. I do feel like it is helping. I'm all about that pie chart on my phone. ;-)

peacemongernc

I still have the facial hair, unfortunately, but I did many hours of electrolysis to address that. I can't do laser hair removal at *all* because it does not work on red hair.

My doctor put me on Spironolactone to help with facial hair. It is a diuretic and blood pressure medicine, but a side affect is that it helps to prevent the worsening of facial hair in women. It doesn't do much to get rid of what you have, but it slows the growth and helps keep it from getting worse over time. I still have a lot, and it has gotten worse over the past 10 years I've been taking the meds, but it seems to me that it isn't getting worse as rapidly as it was. Also, now that I have high BP, which I didn't have 10 years ago, it helps with edema.

I'm REALLY hoping my BP will be normal after I drop some weight. I guess it is too much to ask that my facial hair will go away, though.

peacemongernc

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Cinnamon worked like magic for me but, coincidentally, someone I respect suggested I change my diet and aim for 20-25% protein, 30-35% fat, and 40-45% carb's.

I am new to MFP and only recently figured out how to adjust my dietary goals. When I tried to adjust the fat/carb/protein ratio, the closest I could get to the amounts recommended for me was what you just described, since the program doesn't seem to permit truly manual input.

I think mine is set to about what your friend suggested. When I tried to change mine, I adjusted the amount of saturated fat and sodium at the same time. It wouldn't accent what I had put in until I went through and calculated the amount of saturated, and unsaturated fats, so that they would add up to what I had for the total fat goal. Does that make sense? After I recalculated my individual types of fats, it accepted the changes I made in the other percentages. All the math has to add up.

I keep thinking I need more protein, but I'm having trouble just making it to 25% protein without my saturated fat going too high. I don't really LIKE most protein.

I haven't been a member here very long, but I'd be happy to try to help you with the manual settings if you want to try to tweak them. No promises, but I'll try!

Shannon

privatetime

Did you read about the research showing there may be a link between the gene that causes premature balding in men, and their daughters' PCOS?

I did not know about the balding connection! However, it is *definitely* not true in my case. My dad and all of the men on his side have a full head of hair.

I'm starting to think the gene thing is going to be debunked, or shown to be only relevant in some cases. Even though my own father went bald early, only about 50% of the PCOS women I've asked also have fathers who went bald prematurely. I don't know what the rate of premature balding is in men, but potentially 50% of the maybe 10% of women (who have PCOS) may just be the expected rate of premature balding in men.

privatetime

I keep thinking I need more protein, but I'm having trouble just making it to 25% protein without my saturated fat going too high. I don't really LIKE most protein.

I haven't been a member here very long, but I'd be happy to try to help you with the manual settings if you want to try to tweak them. No promises, but I'll try!

Shannon

Thank you so much, Shannon! You are so sweet! :-) I, too, struggle with achieving that protein goal, while getting enough calories and nutrients. I'm vegan, and even though there are lots of great plant-based proteins, they are also, in and of themselves, carb's.

shannon4health

Hi ladies, thanks so much for posting all this fabulous info:):):)

I am wondering if i may be struggling with this as well. Never been diagnosed but have some symptoms.

I am STUCK with my weight loss...when i do 'behave and stick to calories" I still dont' lose weight unless I work my bum off and i have found that I still sometimes gain weight. I could cry!!! It's so frustrating. I wanted to lose 10 pounds in February and NOPE nothing!!! I have been upping my workouts and trying to track my foods and I am so irritated. I actually gained a couple pounds!!!

I cut all gluten out in January and cut out all sugar, all pork, and dairy and that is how I was losing. I guess It sounds Like i need to go back to that extreme to lose.

Please add me as a friend:) It's great meeting you all on here:):):):)

thanks and God Bless
Shannon

agentscully514

My doctor put me on Spironolactone to help with facial hair. It is a diuretic and blood pressure medicine, but a side affect is that it helps to prevent the worsening of facial hair in women. It doesn't do much to get rid of what you have, but it slows the growth and helps keep it from getting worse over time. I still have a lot, and it has gotten worse over the past 10 years I've been taking the meds, but it seems to me that it isn't getting worse as rapidly as it was. Also, now that I have high BP, which I didn't have 10 years ago, it helps with edema.

I'm REALLY hoping my BP will be normal after I drop some weight. I guess it is too much to ask that my facial hair will go away, though.

I did try spironolactone years ago, and unfortunately it did nothing for me. so electrolysis was the only route. Metformin did seem to help little bit, but not enough. So I did mybe 200+ hours of electrollysis. I still need more, but I can't afford it these days. I dearly wish I could do laser but with red/blonde hair, there is just no way.

MissMaryMac33

I suspect I have PCOS, but my dr. seems hesitant to test me for it. I am having no problem losing weight, but do have some of the other symptoms (i.e. heavy periods, extreme water retention, a LOT of facial hair). What is the process for the testing?

My doctor had no clue what PCOS was! I had to bring him articles and diagnosis myself -- and them made him refer me to an endocrinologist --- who finally diagnosed it and made me realize I was not just crazy!

It's sad that so many primary care doctors are clueless about PCOS -- you have to be your own advocate sometimes.

Good luck!!

mnbramos

mstengel - if your blood work and ultrasound were normal, that suggests you don't have PCOS. But it's worth talking to your doctor about it. You should talk to your doctor regardless. It's possible to "reset" the menstrual cycle with a short term dose of hormones. I did this many times before I took metformin, and I had periods that went for weeks at a time. A high dose of progesterone stopped my period and reset all of the other hormones. Maybe a similar thing is possible in your case.

good luck!

Thank you for the advice! I will definitely be looking into it, I'd rather be safe than sorry

chippy83

Hi ladies! I have been taking 400mcg/day of Chromium for the last couple months, and notice that I'm at least maintaining my weight despite having a stressful/food-filled like. Better than gaining, so I'm counting that as a success!

I am getting ready to add Cinnamon tomorrow and am curious to see how it goes!

Any new thoughts on this subject?

kazsjourney

I have PCOS and have lost 180 pounds with it. I found moderate carbs and high protein with a pretty intense exercise program (cardio and resistance works best for me) I dont take any medications (metformin makes me very weak and have dizzy spells) but have noticed a significant improvement in the hair on my stomach. My cycle was every 7 months or so when at my highest weight (380 pounds) but now its very regular (every 28-32 days and has been for at least the last 18 months)

notenoughsleep

I started reading this based upon the cinnamon respose to help PCOS and it's true! Metformin never helped me infact I was gaining weight on Metformin and it seemed to make things worst. I tried only one 500mg tablet of cinnamon each day along with a multivitamin everyday for 30 days. I would say within 27 days of the 30 days my period came on prior to this it had been missing for four months. The next thing I noticed was that I had "naturally" lost 3 pounds and to this day I am still losing weight consistantly but slowly losing about a pound to a pound in a half per month with only just cutting back calories wise (no exercise but my job has me literally on my feet all day long). I no longer feel as hungry as I did prior to taking the cinnamon, so it's curbed my appetite because of the effect it is having on my blood sugar level. I also use to skip breakfast which is something no one should do whether you have PCOS or not. Now in the morning I eat a moderate calorie breakfast and take my cinnamon and vitamins. (7:30-8:00 am - breakfast, then lunch, snack, dinner try all before 7 pm)

VeganBoo

Thanks for all the info ladies!

shiseido_faerie

I do not have PCOS but I wanted to share anyways...
Last week my naturopath recommended I take DIM supplements for a condition I have that is, like PCOS, estrogen dependent. I guess the DIM gets rid of the excess bad estrogens (xenoestrogens) and helps your body to balance out. It is all natural, from cruciferous vegetables like broccoli, cauliflower, cabbage, kale, except you'd have to eat pounds of veggies each day to get the same benefit. The reason I mention it is because as I've been researching it for myself, I've seen a lot of positive mention of use for PCOS so maybe you ladies might be interested in learning a bit more too! Best of luck!