Anybody else with a tic/movement disorder?

rescueisnotamyth

Hey guys. I joined MFP a little over a year ago. Through MFP and running I have lost 45 pounds.
However, the last two months have been incredibly hard. At the beginning of March I was diagnosed with motor tics. For those of you who don't know, motor tics are uncontrollable muscle movements.
I spent a few days in the hospital for neurological testing mid-March. They didn't find anything so they are currently tracing my tics back to a supposed strep infection I had mid-February.
Because the root of the problem has not been established or taken care of and the medication I am on only helps some, I am going to see a movement disorder specialist in the next few months.

Because of the stress the tics cause me and the fact that I cannot control them, I have found myself controlling my food. I know this is dangerous and I already have eating disorder-like tendencies, but I cannot stop. The tics make me feel out of control.

Is there anyone else out there who has tics or a movement disorder who understands what I'm saying? No one I personally know has tics, so I'm incredibly alone in this.

rescueisnotamyth

Bump

laulip0p

Hello there,

I've been through something similar. Last fall I noticed that there were periods of time when my arm would shake uncontrollably. I had to see a neurologist because the episodes were lasting longer than an hour. Although they didn't find anything (I'm almost certain it's due to stress, not a physical condition), the tremor still happens every so often. Also now I sometimes have a tic in my head. I know it must be hard on you. I've felt pretty alone too. One thing that's helped me is doing yoga because it relieves some of my stress. My tremor also made me want to have more control over my life: I've started cleaning my dorm whenever I'm stressed.

I hope everything turns out ok for you. The best advice I can give is to not worry about it. If you're constantly anxious about your motor tics, it will only make them worse. Try to find a healthy outlet for your stress, like yoga or going for walks instead of controlling your food. (That's easier said than done, I know!) Just remember, you're never as alone as you think you are.